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New York Times article calling for help diagnosing concussion related problems

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Old 07-12-2018, 06:32 PM   #1
RidingRollerCoaster
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Default New York Times article calling for help diagnosing concussion related problems

After a Soccer Ball to the Head, Why Did He Develop ‘Brain Sloshing’? - The New York Times

Intersting... seems this young man has a lot of the same problems we here experience. I am hoping this will help generate more awareness of PCS within the medical world and beyond.

Your thoughts?...
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Injury: March 2014. Hit hard on top of head by heavy metal farm tool. LOC. MRIs and Cat Scans clear. PCS ever since. 33 year old female. Trying to stay positive!

Persisting Problems:
fatigue, dizziness, lightheadedness, vestibular balance and vision problems, vision static, tinnitus, hearing loss, slight sensitivity to noise, sometimes the insomnia comes back, sensitivity to stress, exercise intolerance, emotional problems - But I still have much to be thankful for.
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Old 07-13-2018, 12:07 AM   #2
Mark in Idaho
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This was a line drive goalie kick to the back of the head and neck. This was not a simple soccer ball pass. I am not surprised he suffered such severe symptoms. The back of the head and neck is easily traumatized. He suffered whiplash and a brain stem concussion, maybe more.

I notice they do not mention any neck diagnostics or therapy.

Inflammation in the upper neck can interrupt many neurological and body systems.

I question the sleep study as accurate. Sleep studies primarily look for Obstructive Sleep Apnea. They are lousy at identifying Central Sleep Apnea. Been there, done that, doc said I do not have Obstructive Sleep Apnea. He is right. I have Central Sleep Apnea. I can even have Central Apneas while awake.
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Old 07-14-2018, 05:11 PM   #3
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Thanks Mark. I see you mention the upper neck repeatedly on here. While I agree with you that a lot of symptoms we on here encounter can be from the neck, I still don't have a clear picture of what the diagnosis is.

I have seen numerous PTs, cranial sacral therapists, osteopaths, chiropractors, etc.. that have skills in the upper neck area. I have had some improvement from their treatments, but have never really gotten a clear diagnosis of what the problem is and still have a whole host of symptoms on a daily basis.

What is it specifically about the neck area that is causing these symptoms and what is the right treatment? Who is the right practitioner to treat these neck problems? Are there any diagnostic tests that are more uncommon that could help such as upright MRI, digital motion x-ray, functional-MRI, angiogram?...

These are questions that I am still trying to answer for myself. I think others probably are too.
__________________
Injury: March 2014. Hit hard on top of head by heavy metal farm tool. LOC. MRIs and Cat Scans clear. PCS ever since. 33 year old female. Trying to stay positive!

Persisting Problems:
fatigue, dizziness, lightheadedness, vestibular balance and vision problems, vision static, tinnitus, hearing loss, slight sensitivity to noise, sometimes the insomnia comes back, sensitivity to stress, exercise intolerance, emotional problems - But I still have much to be thankful for.
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Old 07-14-2018, 08:30 PM   #4
Mark in Idaho
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For me, the chiro and PT helped but did not provide a healing treatment. They just helped the C1 and surrounding vertebra settle a bit. I had to learn to be careful with sleep posture 100% of the time. I cannot sleep with my head tipped forward like most pillows do. If I sleep on my back, my pillow just supports the side of my head. If I sleep on my side, I need my pillow to lift my head so my neck stays straight.

For me, it appears that if I sleep in a bad position, inflammation sets in and messes with blood flow and nerve conduction.

What symptoms are you still struggling with?
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