Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-14-2018, 03:25 PM #1
Sticky Sticky is offline
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Default Post Concussion Syndrome for over 5 years. Need help

I was diagnosed with PCS over 5 years ago and I haven't recovered.

I was a stubborn football player who played through any injury and a headache was no different. Concussions weren't a big deal until my senior year I remember coaches saying someone got their bell rung and they'll be fine. Even though I sort of knew it was bad I wasn't about to take myself out during my senior year. Then I went and played rugby in college. I promised myself I would be smarter but I still had 3 concussions in 10 days. I lost consciousness on 2 of them and blacked out after the third.

I still have a lot of issues.

Chronic Headaches: there isn't a second where my head doesn't hurt
ADD
Memory issues: both short and long term
Slow processing speed
Anger issues and agitation/frustration
Can't stack thoughts together to get things done
Light sensitivity
Insomnia

I have talked to dozens of doctors and taken dozens of drugs. This is what I have done.

Vestibular therapy completed helped with balance still not fully coordinated
Cognitive therapy. Didn't help
Ocular therapy
Chiropractor for my neck
Exercise therapies
Hot and cold treatments

I have taken numerous drugs. None of which helped

Antidepressants (tricyclic) made me manic and suicidal
Gabapentin destroyed my ability to function
NSAIDs no longer work and actually make it worse now. Went through a bottle a week for over 4 years and had to stop
Beta Blockers didn't help
I abused and became addicted to opiates. Clean now over 6 months.
There are other drugs I can't really remember

Cannabis helps and its approved for PCS in my state of Illinois. I applied two months ago called them today and they haven't looked at my application and it'll be another 90 days...

Are there any treatments I can try? I can't get a job because of drug testing for weed and I'm bedridden and unable to function without it. Need a treatment that doesn't disqualify me from work.

Any advice is appreciated. Thank you
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Old 08-14-2018, 03:45 PM #2
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Default

Sorry forgot to mention I supplement multivitamins and Omega3s. I also work out 5 days a week.
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Old 08-17-2018, 12:28 AM #3
todayistomorrow todayistomorrow is offline
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I’d suggest HBOT. I’m also in IL. There are a few places to choose from in Chicago. It is expensive($150 session) and my plan is to do 40 which is what all the studies say.

My car accident was 7 years ago. A week of HBOT helped my chronic neck tension and removed my suicidal thoughts which were getting intense. Also helped with headaches some and helped me get off ambien.
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Old 08-20-2018, 04:31 AM #4
bobbyr bobbyr is offline
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Quote:
Originally Posted by Sticky View Post
I was diagnosed with PCS over 5 years ago and I haven't recovered.

I was a stubborn football player who played through any injury and a headache was no different. Concussions weren't a big deal until my senior year I remember coaches saying someone got their bell rung and they'll be fine. Even though I sort of knew it was bad I wasn't about to take myself out during my senior year. Then I went and played rugby in college. I promised myself I would be smarter but I still had 3 concussions in 10 days. I lost consciousness on 2 of them and blacked out after the third.

I still have a lot of issues.

Chronic Headaches: there isn't a second where my head doesn't hurt
ADD
Memory issues: both short and long term
Slow processing speed
Anger issues and agitation/frustration
Can't stack thoughts together to get things done
Light sensitivity
Insomnia

I have talked to dozens of doctors and taken dozens of drugs. This is what I have done.

Vestibular therapy completed helped with balance still not fully coordinated
Cognitive therapy. Didn't help
Ocular therapy
Chiropractor for my neck
Exercise therapies
Hot and cold treatments

I have taken numerous drugs. None of which helped

Antidepressants (tricyclic) made me manic and suicidal
Gabapentin destroyed my ability to function
NSAIDs no longer work and actually make it worse now. Went through a bottle a week for over 4 years and had to stop
Beta Blockers didn't help
I abused and became addicted to opiates. Clean now over 6 months.
There are other drugs I can't really remember

Cannabis helps and its approved for PCS in my state of Illinois. I applied two months ago called them today and they haven't looked at my application and it'll be another 90 days...

Are there any treatments I can try? I can't get a job because of drug testing for weed and I'm bedridden and unable to function without it. Need a treatment that doesn't disqualify me from work.

Any advice is appreciated. Thank you

Can you describe your headache? You say it hurts all the time. Can you expand on that.
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Old 09-06-2018, 08:02 PM #5
Saoghal Saoghal is offline
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Default long time PCS too...

Long time PCS sufferer too... In august of 2000, I was 14 year's old and had an accident; I was on my bike, no helmet and a car hit me... 4 hour unconscious at the hospital. Things went bad around until 18 year's old but eventually calmed down in my early 20's. Sadly, for some reason (stress?) it all came back in force in early 2016 and hasn't left me since... I'm on welfare (can't keep a job), been moving a LOT because with my poor salary I can't find a minimally good rent... and yeah I have too a chronic head pressure/migraine that hasn't left me since.... I don't know what to do anymore and worry I might never heal...
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