Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-14-2018, 03:25 PM #1
Sticky Sticky is offline
Newly Joined
 
Join Date: Aug 2018
Posts: 2
5 yr Member
Sticky Sticky is offline
Newly Joined
 
Join Date: Aug 2018
Posts: 2
5 yr Member
Default Post Concussion Syndrome for over 5 years. Need help

I was diagnosed with PCS over 5 years ago and I haven't recovered.

I was a stubborn football player who played through any injury and a headache was no different. Concussions weren't a big deal until my senior year I remember coaches saying someone got their bell rung and they'll be fine. Even though I sort of knew it was bad I wasn't about to take myself out during my senior year. Then I went and played rugby in college. I promised myself I would be smarter but I still had 3 concussions in 10 days. I lost consciousness on 2 of them and blacked out after the third.

I still have a lot of issues.

Chronic Headaches: there isn't a second where my head doesn't hurt
ADD
Memory issues: both short and long term
Slow processing speed
Anger issues and agitation/frustration
Can't stack thoughts together to get things done
Light sensitivity
Insomnia

I have talked to dozens of doctors and taken dozens of drugs. This is what I have done.

Vestibular therapy completed helped with balance still not fully coordinated
Cognitive therapy. Didn't help
Ocular therapy
Chiropractor for my neck
Exercise therapies
Hot and cold treatments

I have taken numerous drugs. None of which helped

Antidepressants (tricyclic) made me manic and suicidal
Gabapentin destroyed my ability to function
NSAIDs no longer work and actually make it worse now. Went through a bottle a week for over 4 years and had to stop
Beta Blockers didn't help
I abused and became addicted to opiates. Clean now over 6 months.
There are other drugs I can't really remember

Cannabis helps and its approved for PCS in my state of Illinois. I applied two months ago called them today and they haven't looked at my application and it'll be another 90 days...

Are there any treatments I can try? I can't get a job because of drug testing for weed and I'm bedridden and unable to function without it. Need a treatment that doesn't disqualify me from work.

Any advice is appreciated. Thank you
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