Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-25-2019, 08:52 PM #11
braindamage braindamage is offline
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Default Silence is sacred?

Does anyone know if SilenceisSacred is still active **? Any way to reach him? I am desperate to find out how his HBOT and other stuff he tried went. I'm 5 years with PCS and am desperate. **

Last edited by Chemar; 01-26-2019 at 08:04 AM. Reason: NeuroTalk Posting Guidelines
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Old 01-26-2019, 08:54 PM #12
Mark in Idaho Mark in Idaho is offline
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SIS has not posted since 9/21/18.

His last comment about HBOT stated he saw improvements but have a way to go still after 130 dives. He commented how the research indicates that it works best close to the time of injury.

braindamage,

You have not posted anything about the struggles you are having. It is best to target treatment to symptoms. There are no global treatments.
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Old 01-31-2019, 11:28 AM #13
SilenceIsSacred SilenceIsSacred is offline
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How interesting that I was coming here to post an update in this thread anyway.

Quote:
Originally Posted by braindamage View Post
Hello. Don't know if you're still active here or not but I am 7 years post TBI. Am in urgent need of getting HBOT. Have contacted Paul Harch in New Orleans and am getting over there as soon as possible. I am curious as to how in the hell you afforded 130 dives? My insurance or any does not cover HBOT for post tbi syndrome. I am ** struggling exponentially. Any information that you have would be of great benefit.
Hello! Yes I am still here. I have a soft home chamber and oxygen concentrator that I own so I can do as many dives as I want. You're looking at in investment of ~$6k if you were to get my setup.

Quote:
Originally Posted by braindamage View Post
Does anyone know if SilenceisSacred is still active **? Any way to reach him? I am desperate to find out how his HBOT and other stuff he tried went. I'm 5 years with PCS and am desperate. **
The benefits from HBOT basically plateaued at some point. I do not think I am experiencing additional benefit from the HBOT alone.

As far as the stem cells go, I have definitely started to notice some improvements, as well as some unexpected and undesired effects. The improvements began to become noticeable a little after the 3 month mark.



Benefits so far:

Further improvement in ability to sleep deeply and for a full 8 hours. Drinking caffeine day after day, rather than eventually messing up my sleep, seems to actually improve my sleep, provided I've had it early in the day. It is as though the increase in adenosine receptor density is doing what it would be expected to do back when I was healthy. More receptors due to caffeine tolerance enhance the sleep mechanism in the brain once the caffeine molecules have largely been displaced from the receptor sites.

My mood is generally improved. I ruminate less about all sorts of things. PTSD symptoms (pre-brain injury) seem to have been reduced quite a lot as well. I seem to feel more optimistic in general. I have many fewer flashbacks and little to no desire to self harm anymore. I often feel like I have a broader view of life in a more general way.

I feel less apathy, and more of an inner drive. Apathy is one aspect of a brain injury that other people don't get. They think you can just do things if you choose to, but it's not that simple. Sometimes you don't have the brain power to produce the will to get things done. Sometimes you do. There is noticeably less of that now.

I feel like I can think more clearly, critically, and that my inner voice is more articulate, and my analytical abilities are better. I'd compare it to sharpening a knife.

I feel more playful and creative, the way I was before.

I am able to exercise at an even higher intensity and frequency than before, and am starting to look much more slim, toned, and healthy physically.

I am tolerating caffeine MUCH better overall now! I am able to consume larger amounts, more days in a row, with greatly reduced physical and mental side effects.



Things I wish had improved more:

Working memory and concentration are still not that much better than before, although I do notice some modest improvement.

The feeling of "fogginess" has still not lifted.

I still have difficulty processing text at the speed I used to, as well as other associated problems.



Things that have unexpectedly gotten worse:

1) Shortly after the treatment, I began to notice that I was more sensitive to caffeine headaches during withdrawal. They can get pretty nasty if I don't taper down my consumption gradually. This is normal for many people, but I never used to experience this. In any case, this is almost certainly due to the increase in adenosine receptor density, as adenosine controls both the sleep-wake cycle as well as blood vessel dilation. But for some reason, as with better sleep, I am experiencing "better" vasodilation, and hence headaches during withdrawal. I have not tried to manage the headaches with ibuprofen or something similar yet.

2)The most significant problem though is that I am MUCH more sensitive to blood sugar fluctuations than I used to be. If I consume a sugary desert or way too many carbs at once I have trouble speaking correctly, and have difficulty forming sentences, pronouncing words, and find it difficult to tell if I am speaking correctly or not. I have particular difficulty with using the past tense. Another aspect of this problem is that my internal voice becomes unclear and inarticulate, almost as though you can not think thoughts in words as well. It is hard to explain, but that is how it is.

But if I control my blood sugar by eating more fats and fiber and fewer carbs and little or no sugar, this effect does not occur at all. Drugs do not seem to affect this problem at all, so it is definitely blood-sugar related.

I would note that I experienced these sorts of symptoms early on after my injury, but that they completely went away early on. My fMRI from Cognitive FX showed very little abnormality in my language processing areas. So it is strange to have this problem popping up again, especially given the fact that I consumed an enormous amount of sugar during the first several months just to cope without it causing many bad effects at all. In fact, the side effects from drinking a lot of soda were decidedly mild compared to how that sort of thing would usually affect me.

Although this effect has unnerved me and has made me feel pessimistic, it is possible that the cells are not fully mature yet and that several months from now this problem will have faded away. Another person I have been speaking with is more than a year out from treatment and reported her tolerance for sugar had improved over what it was in the past.

To sum up, I think the platelet rich plasma had a more immediate effect, where I felt somewhat better and more motivated, but the stem cells definitely had an effect around the time I was told to expect. I have taken a break from doing HBOT for the most part right now.

Hope that info helps. I'll update you guys over the next several months at some point.

Last edited by SilenceIsSacred; 01-31-2019 at 12:37 PM.
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Old 02-16-2019, 11:01 AM #14
RMCSHANE RMCSHANE is offline
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Post Protocol did you do the one or three day package with dr hughes.

Quote:
Originally Posted by SilenceIsSacred View Post
How interesting that I was coming here to post an update in this thread anyway.



Hello! Yes I am still here. I have a soft home chamber and oxygen concentrator that I own so I can do as many dives as I want. You're looking at in investment of ~$6k if you were to get my setup.



The benefits from HBOT basically plateaued at some point. I do not think I am experiencing additional benefit from the HBOT alone.

As far as the stem cells go, I have definitely started to notice some improvements, as well as some unexpected and undesired effects. The improvements began to become noticeable a little after the 3 month mark.



Benefits so far:

Further improvement in ability to sleep deeply and for a full 8 hours. Drinking caffeine day after day, rather than eventually messing up my sleep, seems to actually improve my sleep, provided I've had it early in the day. It is as though the increase in adenosine receptor density is doing what it would be expected to do back when I was healthy. More receptors due to caffeine tolerance enhance the sleep mechanism in the brain once the caffeine molecules have largely been displaced from the receptor sites.

My mood is generally improved. I ruminate less about all sorts of things. PTSD symptoms (pre-brain injury) seem to have been reduced quite a lot as well. I seem to feel more optimistic in general. I have many fewer flashbacks and little to no desire to self harm anymore. I often feel like I have a broader view of life in a more general way.

I feel less apathy, and more of an inner drive. Apathy is one aspect of a brain injury that other people don't get. They think you can just do things if you choose to, but it's not that simple. Sometimes you don't have the brain power to produce the will to get things done. Sometimes you do. There is noticeably less of that now.

I feel like I can think more clearly, critically, and that my inner voice is more articulate, and my analytical abilities are better. I'd compare it to sharpening a knife.

I feel more playful and creative, the way I was before.

I am able to exercise at an even higher intensity and frequency than before, and am starting to look much more slim, toned, and healthy physically.

I am tolerating caffeine MUCH better overall now! I am able to consume larger amounts, more days in a row, with greatly reduced physical and mental side effects.



Things I wish had improved more:

Working memory and concentration are still not that much better than before, although I do notice some modest improvement.

The feeling of "fogginess" has still not lifted.

I still have difficulty processing text at the speed I used to, as well as other associated problems.



Things that have unexpectedly gotten worse:

1) Shortly after the treatment, I began to notice that I was more sensitive to caffeine headaches during withdrawal. They can get pretty nasty if I don't taper down my consumption gradually. This is normal for many people, but I never used to experience this. In any case, this is almost certainly due to the increase in adenosine receptor density, as adenosine controls both the sleep-wake cycle as well as blood vessel dilation. But for some reason, as with better sleep, I am experiencing "better" vasodilation, and hence headaches during withdrawal. I have not tried to manage the headaches with ibuprofen or something similar yet.

2)The most significant problem though is that I am MUCH more sensitive to blood sugar fluctuations than I used to be. If I consume a sugary desert or way too many carbs at once I have trouble speaking correctly, and have difficulty forming sentences, pronouncing words, and find it difficult to tell if I am speaking correctly or not. I have particular difficulty with using the past tense. Another aspect of this problem is that my internal voice becomes unclear and inarticulate, almost as though you can not think thoughts in words as well. It is hard to explain, but that is how it is.

But if I control my blood sugar by eating more fats and fiber and fewer carbs and little or no sugar, this effect does not occur at all. Drugs do not seem to affect this problem at all, so it is definitely blood-sugar related.

I would note that I experienced these sorts of symptoms early on after my injury, but that they completely went away early on. My fMRI from Cognitive FX showed very little abnormality in my language processing areas. So it is strange to have this problem popping up again, especially given the fact that I consumed an enormous amount of sugar during the first several months just to cope without it causing many bad effects at all. In fact, the side effects from drinking a lot of soda were decidedly mild compared to how that sort of thing would usually affect me.

Although this effect has unnerved me and has made me feel pessimistic, it is possible that the cells are not fully mature yet and that several months from now this problem will have faded away. Another person I have been speaking with is more than a year out from treatment and reported her tolerance for sugar had improved over what it was in the past.

To sum up, I think the platelet rich plasma had a more immediate effect, where I felt somewhat better and more motivated, but the stem cells definitely had an effect around the time I was told to expect. I have taken a break from doing HBOT for the most part right now.

Hope that info helps. I'll update you guys over the next several months at some point.
Did you do the one or three day protocol with dr hughes.
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