Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-01-2018, 11:19 PM #1
Sydthekid Sydthekid is offline
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Default Setback 1.5 years later

Hi everyone,

I'm 17 year old girl who just started my senior year of high school. In December 2015 I had a minor concussion that healed in less than a week. On March 2nd, 2017, I was slammed against the concrete wall during indoor soccer practice. I thought I was healed from that, and felt fine for about 2 weeks, but I apparently went back to sports too soon, and got whiplash after falling in a lacrosse game.

I've had PCS ever since; it's been about a year and a half now. I had almost fully gotten back my life. I was fully functional at school and was even mostly able to run again (I do cross country and track), despite having lingering neck pain and tightness and face/neck muscle spasms almost constantly.

On August 15th, 2018, I was cleaning my room when a 1 and 3/4 pound board fell on the back of my head from a few feet up when I bumped into a shelf. I'm not sure if this was a concussion or not, but I treated it like it was. I took a week of bed rest with no exercise, screens, or reading. My symptoms have been heightened ever since the incident and instead of just neck pain, I also have more intense headaches, dizziness, sensitivity to light, sensitivity to noise, and nausea induced by car rides and other things. Concentrating in school has been hard and I often feel dizzy and have a lot of neck pain. I went to the pediatrician and he said that it wasn't a concussion, just increased sensitivity because of muscle related problems.

Even before this setback I was feeling very disillusioned and like I was never going to heal. I feel like I've been through every treatment possible. I've seen a neurologist and a vision specialist. I've done two rounds of vestibular physical therapy, chiropractic twice a week for about a month, and I've taken lots of medications, including migrelief, magnesium, and aleve. My pediatrician speculates that I need to do enough muscle relaxation to stop the spasms and the neck pain. For the past few weeks I've been using a heating pad, applying Bengay, and doing lots of neck stretches. These things are certainly not hurting, but I don't feel like they're helping either. The only time I've actually felt better is after getting a massage, but the relief only lasts an hour or two at most.

I feel like I'm a different person from before my concussion. I separate everything in my life into before and after. Sometimes I have difficulty connecting to my friends who haven't experienced similar types of trauma. I cry almost every day after school. I used to be really into running, hiking, and other outdoor activities, but now I can barely motivate myself to get out of bed. I'm looking forward to college and the future, but only if I am able to heal from this.

I am hypervigilant about avoiding any potential danger. I used to play soccer and lacrosse, but I quit because I'm scared of getting hit again. Almost every time I get even a minor bump, I have an anxiety attack. It can take me hours to calm down from these and usually I need to call my dad and have him reassure me that it probably isn't anything serious. I feel like I don't know anyone who has healed from this and I don't know how I will if I keep having setbacks from every little bump. I feel like I'm wasting my youth and my life in general.

Thank you all for reading this. Do you have any suggestions for either physical or emotional relief, or similar stories that ended in success?

Thanks,
Sydney
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Old 09-02-2018, 07:13 AM #2
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Hi Sydney

Welcome to NeuroTalk .

I am sorry to read about what you have experienced.

The TBI/PCS forum is very active so I am sure that you will get lots of support and helpful suggestions from other members.

Best wishes.
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Old 09-02-2018, 07:33 AM #3
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Hello

I am excactly on the same boat with you.
Can you remember in all your life how many times you might have had a concussion. And i dont mean just bumps.

If it makes you feel better.
I got hit in boxing Nov 2015
I had dizzyness for days and headaches everyday
I got back from that only to be dropped on my head Jan 2016.
That time I had all the symptoms like headaches dizzy sensitivity to light and sound.
Then I came back 3 months after. I was able to workout and do everything.
I even started boxing again which was stupid cause on 1 August 2018
After some sparring my conditioning is back and is much worse.
But I think also iam reacting to it worse. I think I have more anxiety about it and it makes everything worse.

Im sure you are going to recover 100% because you are young.
If a 30 year old guy who smokes weed everyday and received so many concussions can you can too!!!
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Old 09-02-2018, 07:37 AM #4
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Also may I ask you what kind of symtoms you experienced last time you had it after the lacrosse incident?
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Old 09-02-2018, 08:30 AM #5
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Hi PunchDrunkLove,

Thanks so much for your reply; I hope you recover soon. I've probably had 4 concussions total, including this most recent board incident. After the lacrosse fall, I really only had a headache and neck pain/tightness, not as much of the dizziness or sensitivity to light/noise. The headaches were dull, not intense, but constant. Maybe 2-3 on a scale from 1-10.
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Old 09-02-2018, 10:21 AM #6
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Quote:
Originally Posted by Sydthekid View Post
Hi PunchDrunkLove,

Thanks so much for your reply; I hope you recover soon. I've probably had 4 concussions total, including this most recent board incident. After the lacrosse fall, I really only had a headache and neck pain/tightness, not as much of the dizziness or sensitivity to light/noise. The headaches were dull, not intense, but constant. Maybe 2-3 on a scale from 1-10.
Ok the board incident couldn’t have been a full blown concussion so dont worry too much about actual damage in your brain just focus on getting better from now on. The headached sound a lot like what i went through they would be going on every day.
So would you say that after the doard incident the symptoms are much worse?
Also did you become dizzy after the incident? Has the dizziness passed?
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Old 09-02-2018, 10:33 AM #7
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Get some professional "hands on" phys therapy for the neck & muscle pain, you could have trigger points in the muscles, and the trigger points need to be resolved before any stretching will help the muscle tension..
Trigger points can refer pain & other symptoms to other areas - eyes/vision, headaches, and more.

Trigger point information {TrPs} for short


If PT doesn't mention or check for TrPS, mention it , if they don't seem to know about them, find a better PT..as with anything , there are good & not so good providers..don't waste time or money on poor care providers..

You might consider changing from a pediatrician to a Doctors of Osteopathic Medicine, or DO.. What is a DO? | American Osteopathic Association
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Old 09-22-2018, 08:49 PM #8
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Hi Sydney,
I can relate to you big time. What age are you and where are you from? I'm 21 and experiencing similiar thing at the moment. If you want someone to talk to for support I'd be here for you to talk too.

Mitch
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