Hi guys my name is Mitchell, I'm 21 years old and live in Australia. Since the beggining of 2018 I've been suffering extreme head sensitivity to all kinds of bumps and jarring motions. This started after receiving multiple concussions in 2016 and 2017. I have full faith that this will completely heal, but for now I want to start a consolidated support group for everyone out there who is going through the same thing.
I know from experience that it is SO MUCH WORSE to go through this when you feel like you are the only one. It's not true. However it takes a lot of digging around to find the stories of other people. My aim with this group is to rectify that by having one consolidated support group where we can share our experiences, struggles and victories, as we go through this brain sensitivity following concussions. A support group like this is something I wish I found when I first started googling earlier this year.

My life has been drastically altered by this crippling condition. Many things are a lot harder then they used to be. Car rides, public transport, exercising, I even had to adjust my walking to be more light on my feet.

If you are reading this and you are suffering from this brain sensitivity, you are not alone. You are not imagining this, its very real. Drop a post below and introduce yourself and your story.

Thanks guys,
Mitchell

A small contribution: I used to suffer a lot from walking as well and I almost solved the issue by buying some cushioned shoes that are designed for people with back / spine injuries. Please see my post here:
Special shoes for back injuries worked well for me

Also, several people reported some progress with this brain sensitivity with an anti-inflammatory diet. You can use the search tool to find these discussions.

All the best.
Vania

Great idea, thanks for sharing that Vania.

Mitch

How is your head sensitivity now? How long ago did it start?

Hi Mitchell,

I am not doing well overall but head sensitivity is the thing that has been improving the most. It started 2 years ago after my 2nd concussion and was aggravated 9 months ago after the 3rd. I think that three things helped me:
1. Time
2. The shoes
3. Managing my anxiety. I think it is part of the problem for me although there is more to it. It took me a while but after hundreds of small setbacks caused by minor events I understood that these were not damaging and that the setback would in general not last more than a few days. Now I pay less attention to it and (as a result, I think) I go quicker back to my baseline.

I hope this helps. How are things on your side?

I'm sorry to hear things are not going as well as you would like Vania. That's great that your head sensitivity has improved, what are the main symptoms giving you grief at the moment?

I agree with you big time about the importance of managing anxiety. So important! It makes the process of going through a setback less hell than it can be. I'm going ok. My main issues at the moment are my head sensitivity first and foremost, and depression. I can't wait till I am healed of this!! You realise how we take life for granted when we go through something like this.

Hi Mitchell,

Thank you. I am having headaches and cognitive issues / fatigue, basically anything beyond the dark room is problematic at the moment. But I was getting better before this relapse and I hope I can get back to this level.

I am sorry to hear about the depression. Please be confident in the fact that your head sensitivity will improve, there are plenty of people on NT for which it is the case. But I know it is hard to be patient. I wish you all the best!

had the issue, even the smallest bump.It is sort of reliving the chock and the fear from the first impact, it is similat to PTSD really the more you fear it the worst it gets, at times though it can be realted to emotional issue, concussion is like and overload. most people with post concussion suffers from others issues as well, talk to a therapist if needed.

Hi - I have had 4-5 mild concussions spread out over the past 5 years from non-contact sports and other unlucky accidents. The most recent accident happened ~1 year ago in October-17. I still have chronic Headaches/Migraines, Dizziness/Lightheaded/Vision Issues, and Extreme Sensitivity and Anxiety. On top of the physical pain, my head has been super sensitive to light and noise, and the slightest movement or touch. My brain feels loose in my head like its rattling around every time I move, so I usually try to hold my neck still. I get anxious about things like getting haircuts, sneezing, going for car rides (bumps/pot holes), and even giving people hugs. Just the other day I accidentally drove over a curb while driving and I've been experiencing worsened symptoms for the days since.

Its amazing to me that my head does not feel like it is healing, like I have a permanent concussion or something. I live everyday in fear of bumping my head or anything that could potentially cause more harm. Not sure where to turn next. It is nice to know that I am not alone, although I wish there was a magical cure out there or a doctor that actually could help.

Hi,
I am 2.5 years in since my concussion. I too have bumped my head and had a resulting symptom spike numerous times since then. I do not believe it is anxiety induced. The first time I bumped it with my thumb knuckles when pulling my shirt over my head, I didn't really acknowledge the rap as it seemed like nothing, so no anxiety, then stepped out my camper door and felt nautious because the forest was spinning. Symptoms spiked and settled down after 1-2 weeks. Same situation other times. Bump head - only sometimes resulting in intense anxiety, symptoms spiked for anywhere from 3days to 3 weeks. I used to be very sensitive, but that sensitivity has decreased over time as I heal in general. This past summer I clocked my forehead with a metal tool, and the symptom spike was very minor. I know I've seen a lot on this chat about bump sensitivity, so it's quite common, I find it very hard to accept that it's all anxiety/ptsd response.

So be encouraged, it improves, along with a decrease in symptoms. Having said that, I am still quite aware of my surroundings and very cautious. My days of playing ice hockey are over.