Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-10-2018, 09:47 AM #11
brokenbrilliant brokenbrilliant is offline
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brokenbrilliant brokenbrilliant is offline
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Quote:
Originally Posted by YoginiM View Post
Thank you. I will look into all of that.

I wonder if a head injury I had in third grade in the same area that I now hurt made the insult worse decades later.
Past brain injuries can make things worse. And as you've found, additional symptoms can arise some time (months, even a year+) after the injury itself.

After my last TBI in 2004, I could not read more than a few sentences at a time. My memory was terrible, and I would forget what I'd read, just one page prior. This came after always being an avid book reader. It was a big change for me, but I was so turned around, I didn't notice how much I missed it. Now I do read, but it can be exhausting. I'm better off reading research papers, which are short and focused on a narrow set of ideas. I also read online - blogs, articles, lots of short pieces, with the occasional "long read". But my dreams of going back to school and finishing my degree are pretty much impossible, under my current conditions.

We often lose the things that used to be a big part of our identity, before our injury. Finding a way to recognize ourselves (and our reactions) afterwards is an important part of our return to a quality of life that feeds us.

For me, I found my way back (over the past 14 years) through blogging about my experiences. It keeps me honest and it keeps me sane. It's not always pretty, but it's real. My recovery has largely centered around A) getting enough rest, B) daily exercies of some kind or another, C) having someone supportive to talk to on a regular basis, and D) paying attention to what I do each day to develop new routines and rituals in my daily life.

For you, I recommend steering clear of anything that makes your headaches worse, even if it's something you once loved to do. It may come back to you, eventually, but being rigid about forcing yourself to do things can set you back. Make sure you rest enough and you get good fats in your diet. When I started supplementing with MCT oil and making sure I got good fats in my diet, my brain came back online like it hadn't been, in quite some time.

Best of luck to you. Stay steady. Stay strong. You can get there.
__________________
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What happened: Sustained mild TBI #9(+) in 2004 when I fell down a flight of stairs and smacked the back of my head on the steps. Knocked out briefly, then bounced back and resumed everyday life, as usual. Then things fell apart -- lost my job, friends disappeared, spouse became terrified of me, money flew out the window, and I had no idea it was all happening, or why. Finally put things together in 2007, when I was researching brain injury for a family member. Have been actively working with a neuropsych and recovering since late 2007, with amazing results I never thought possible.

I blog about this at
.
.

Symptoms: fatigue, tinitis, sensitivity to light and noise and touch, insomnia, general pain, headache, attention issues, emotional lability, panic/anxiety, anger/rage spikes, confusion, difficulty hearing and understanding, slowed processing speed, limited short-term working memory, balance & vertigo issues, difficulty reading and learning new things, nystagmus and tremors when over-tired.
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Old 11-10-2018, 10:41 AM #12
YoginiM YoginiM is offline
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YoginiM YoginiM is offline
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Quote:
Originally Posted by brokenbrilliant View Post
Past brain injuries can make things worse. And as you've found, additional symptoms can arise some time (months, even a year+) after the injury itself.



After my last TBI in 2004, I could not read more than a few sentences at a time. My memory was terrible, and I would forget what I'd read, just one page prior. This came after always being an avid book reader. It was a big change for me, but I was so turned around, I didn't notice how much I missed it. Now I do read, but it can be exhausting. I'm better off reading research papers, which are short and focused on a narrow set of ideas. I also read online - blogs, articles, lots of short pieces, with the occasional "long read". But my dreams of going back to school and finishing my degree are pretty much impossible, under my current conditions.



We often lose the things that used to be a big part of our identity, before our injury. Finding a way to recognize ourselves (and our reactions) afterwards is an important part of our return to a quality of life that feeds us.



For me, I found my way back (over the past 14 years) through blogging about my experiences. It keeps me honest and it keeps me sane. It's not always pretty, but it's real. My recovery has largely centered around A) getting enough rest, B) daily exercies of some kind or another, C) having someone supportive to talk to on a regular basis, and D) paying attention to what I do each day to develop new routines and rituals in my daily life.



For you, I recommend steering clear of anything that makes your headaches worse, even if it's something you once loved to do. It may come back to you, eventually, but being rigid about forcing yourself to do things can set you back. Make sure you rest enough and you get good fats in your diet. When I started supplementing with MCT oil and making sure I got good fats in my diet, my brain came back online like it hadn't been, in quite some time.



Best of luck to you. Stay steady. Stay strong. You can get there.


Thank you for the good advice. I will be grateful I can read, see, write. Creating a new life two years out is my challenge. I do not know if I am or will be employable. I was self employed most of my life. Now, I prepare to enter the job market at nearly retirement age with these syndrome limitations, fears, and chronic pain. I am scared about even being able to be on time to a job. Most days, my head is ”too heavy” and feels ”too swollen” to lift off the bed easily. The facial scars get visibly more swollen at times, too. The suture lines themselves don’t swell, the flat skin around the old sutures swell, especially on my forehead. When I over-exert, even too much housework, the skin looks puffy. Maybe the tissues get some congestion. That is likely not the post concussion syndrome, but it is part of my total experience.

Understanding the successes and coping skills of others is treasure for me. Thank you for sharing.



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