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Old 04-05-2019, 05:52 PM   #1
guitardude
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Default visual snow

Anyone else with this symptom? pretty sure I had a slight amount of it beforehand, apparent in the dark, but since concussion it has been pretty out of control on some days, currently looking around my room and everything has got tiny dots shimmering on it, especially solid colored surfaces- kind of feels like a bad acid trip.
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Old 04-10-2019, 10:16 PM   #2
Getting better
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I have had the exact same problem since a week after my injury almost a year and a 1/2 ago. I agree it is like a
Bad drug trip. My neuro ophthalmologist Put me on topamax treating it like I a migraine aura but it didn't work. I've gotten used to it somewhat I can take it over the dizziness that I'm fighting any day. I notice when I'm tired it can get worse and especially noticed in low light settings. Going through neck therapy presently as all the specialists think there is a neck component to this problem.
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Old 04-11-2019, 11:43 AM   #3
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Originally Posted by Getting better View Post
I have had the exact same problem since a week after my injury almost a year and a 1/2 ago. I agree it is like a
Bad drug trip. My neuro ophthalmologist Put me on topamax treating it like I a migraine aura but it didn't work. I've gotten used to it somewhat I can take it over the dizziness that I'm fighting any day. I notice when I'm tired it can get worse and especially noticed in low light settings. Going through neck therapy presently as all the specialists think there is a neck component to this problem.
Sorry to hear about your dizziness. Out of curiosity, do you ever experience depersonalization type feelings? seems like vestibular problems as well as VS have an association with dissociative phenomena.
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Old 04-12-2019, 08:00 AM   #4
Getting better
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Yes for the first 6-8 months I felt the depersonalization almost out of body feeling. That feeling slowly faded and I'm not sure if I just got used to the vision and the shock of it wore off or I actually got better in some way. From what some specialists tell me the static is the brain not filtering correctly that is why when I read with my glasses, things look somewhat normal but look at a wall or in low light it is pronounced. Basically they said I have aura without the migraine.

Have you been to any vision specialist? I went to several standard eye doctors and of course they said my eyes looked fine. I just went to a specialist a couple weeks ago he discovered I also have a balance disorder so finding the right eye specialist is important.
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Old 04-12-2019, 12:42 PM   #5
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Originally Posted by Getting better View Post
Yes for the first 6-8 months I felt the depersonalization almost out of body feeling. That feeling slowly faded and I'm not sure if I just got used to the vision and the shock of it wore off or I actually got better in some way. From what some specialists tell me the static is the brain not filtering correctly that is why when I read with my glasses, things look somewhat normal but look at a wall or in low light it is pronounced. Basically they said I have aura without the migraine.

Have you been to any vision specialist? I went to several standard eye doctors and of course they said my eyes looked fine. I just went to a specialist a couple weeks ago he discovered I also have a balance disorder so finding the right eye specialist is important.
crazy stuff! I've also being dealing with depersonalization, some days i feel present but when it gets dark out and everything switches to artificial lights i feel the DP every time without fail. From what people say, it seems to be a psychological reaction to the altered input and it's reassuring that yours
eventually cleared up.

It took a few months but my GP has gotten me linked up with an optometrist who apparently works with PCS patients, supposedly she does a specific hour-long evaluation so i'd have to imagine that will be pretty thorough. Mine's in a few weeks so I'll report back- reading feels generally imprecise and labored, especially in weird lighting conditions so hopefully she has some kind of therapy to help restore function in that regard.
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Old 05-15-2019, 02:30 PM   #6
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Originally Posted by guitardude View Post
crazy stuff! I've also being dealing with depersonalization, some days i feel present but when it gets dark out and everything switches to artificial lights i feel the DP every time without fail. From what people say, it seems to be a psychological reaction to the altered input and it's reassuring that yours
eventually cleared up.

It took a few months but my GP has gotten me linked up with an optometrist who apparently works with PCS patients, supposedly she does a specific hour-long evaluation so i'd have to imagine that will be pretty thorough. Mine's in a few weeks so I'll report back- reading feels generally imprecise and labored, especially in weird lighting conditions so hopefully she has some kind of therapy to help restore function in that regard.
Just curious how your appt went with the optometrist went if you don't mind me asking? I'm still battling dizziness and working on visual therapy to try and reduce it but the blurry static vision I was told recently is probably in it for the long haul.
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Old 05-15-2019, 10:28 PM   #7
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I've seen the same shimmering dots as well a few times, they were so beautiful! I was told it was the halo before the migraine, sometimes I get the migraine and sometimes not. I also get the "squigglies" sometimes, sounds funny but my vision will get filled with squiggly lines, then extreme fatigue and I have to lay down.

I'm almost 2 years in and about 6 months ago I started to get dizzy quite a bit and the headpain got worse. I went to a Optometrist that specializes in Concussions and he gave a rx for prisms and bi nasal tape on the glasses. This really helps but he also wants me to pay 5K for Vision Therapy.

I went to an OT that specializes in concussion and she says that my problem is a combo of vestibular and optho. I'm leary about paying the 5K as he wants me to as it might not even help. I'm doing some exercises on my own and they seem to help..maybe

I'm in Canada and our medical system won't pay for this as they say it's not proven. I hope that you can get some of this covered and that it helps. Could yours be a combo problem as well?

Thank you for sharing and best wishes
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Old 05-16-2019, 02:08 PM   #8
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Hi Susie, I expect it is a combo problem as you mentioned. I've been going to PT for the neck and the dizziness is 50+% better than it was. I wasn't a believer that the neck could play apart of it but after 6 weeks of PT with a lot of home exercises things are better and I can walk straighter as I was drifting to the left bad. About to get some prescription glasses and my eye doc uses the same taping/dot technique you mentioned so hoping that deals with the dizziness some.

I went to a good ear specialist who ruled out that it was an inner ear problem by a lot of testing. He deals with a lot of TBI patients and said if vision therapy and PT doesn't rid the dizziness, suspect it is a central nervous issue and I may have to look at meds like Topamax or similar again that slows the excited brain down which could also improve the strange visual static I'm seeing. Not sure about the blurry vision.. I had went to a neuro optho and tried one medication but the side effects caused me to stop. May have to revisit this.

I'm sorry to hear you are having dizziness flare up. That is very frustrating as mine surfaced one year after the injury. Keep trying to modulate it with turning different knobs and there is a good chance that it will pass. All of the specialist I've been to have been confident dizziness can be resolved. Not so much confidence in the static/snow but I can deal with the strange vision..the dizziness needs to go!!

My best wishes to you as you recover.
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Old 05-16-2019, 11:20 PM   #9
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Thank you Getting Better it sounds like you've done a lot of work and have met some helpful pratitioners. That's such a big help if you can connect with someone that way, it not only helps but it gives hope, something we all need.

For The first 5 months or so I was very shaky inside , almost vibrating, and the only thing that seemed to calm me was soft music, no lyrics, and over the counter valerian, it just calmed everything down and I could function better.

Imfound,when my neck felt better the "beautiful lights" went away. Stress, fstigue and bright lights seem to set me off. Living a wuiter life is certsinly helpful but I was a type A do it all and more person amd that just isnt me anymore. i miss that but like the slower life too.

Warm wishes for your continued recovery...
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