How did you hit your head - forehead/frontal, sideways, top of head, back of head?

The severe pain you describe is not usually a PCS issue, some mention headaches, neck pain, but not like you describe..
Trigger points can cause some pain & referred pain.. but rarely to severe levels..
what were the scans they did? - xray, MRI, CT scan?

Sometimes things get missed or they don't show up , I hope a dr requests new imaging, if pain is this severe..

I fell march 7 skiing in CA and hit the back of my head. Went to urgent care 2 days later. They immediately sent me to the ER and they did a CT of my Brain, neck, and spine. It was clear. Told me it was a concussion and I had a 10 day no fly order. When I was cleared to fly I came home mon and went back to work Friday I then proceeded to have a problem over the next 2 weeks. I went to a dr. Told me it was a concussion and told me to get an mri. That came back clear. I went to the er a month out they admitted me spent 4 days there. They did another ct it was clear. There was a talk of a spinal tap but that was only brought up once and never mentioned again. Everything they gave me didnÂ’t really work. They tried a nerve block for Occipital neuralgia that did nothing. So when they let me go they said it was post concussion syndrome and follow up with a dr. So I searched for a concussion clinic. Got all set up with some specialists the meds werenÂ’t doing anything I was still in a lot of pain but I had hope I know meds donÂ’t just work overnight. Neither does physical therapy. When we stopped my pt I made an appointment with head of the concussion clinic and he ordered another mri of my neck. They have done one already not sure it will show anything different or if I can even sit through it. No matter what I canÂ’t touch my head and I highly doubt they will let me bring an ice pack in to let me rest my head on. So I just donÂ’t know of anything anymore. The neurologist he is referring me to see I canÂ’t see till Jan the other neurologist in her practice I have a appointment with on jun 18. So I am going to try Jefferson neurosciences in Philadelphia. But I heard they have a waitlist too. I am waiting to hear back from one of those NUCCA Clinics. Not sure how I feel about that. The only drs I have really dealt with are PAs and thatÂ’s at the practice where I am on the waiting list till June. So I am going to do a consult and go from there. I donÂ’t know anymore.

Hi Kristen,

I did not read much of your post tbh, but I saw something about bipolar. I have challenges with schizoaffective related symptoms in addition to the concussion challenges. This includes periods of mania and low energy periods.

I'm doing very well however. I recommend searching for answers outside of allopathic medicine. Medications always made me worse than better. Doctors had few to no answers. Signifcant amounts of money, time, and energy were put towards my healing with lack of results.

Chiropractic, vision therapy, reducing EMFs, infrared light therapy, getting into nature, good social life, prayer, mediation, acupuncture, and self massage have been incredible.

The sharp lightening pain from top of neck to the forehead sounds like classic occipital neuralgia. Ask your doctor about whether he thinks the occipital nerve could be involved and about getting occipital nerve blocks. I’ve heard early intervention with a block containing steroids leads to better long term healing for occipital neuralgia. Google occipital neuralgia for the symptoms.

Hi Kristin,

I have had PCS for many years and only recently developed symptoms similar to yours, and not even after a new concussion. Because this pain is so different from and so much more intense than any other symptoms I've had over the years, I too am inclined to think that it's caused by something other than PCS. I am investigating possible causes. I'll report back on the forum if I find anything helpful.