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Old 02-04-2020, 04:27 PM #1
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Default Anyone familiar with this?

Our 37 year old son suffered a brain hemorrhage as a result of a depth electrodes study that was done to access the viability of surgery for seizure control.
Following this hemorrhage he has suffered almost daily staring spells that last anywhere from 2 hours to 8 or more hours.
His neurologist and neurosurgeon have not been able to identify a cause or a cure.
Has anyone else had any experience with this?
Once in a stare his day is lost until he falls asleep and comes out of it.

Would be interested to hear from anyone about your experiences you may have had.
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Old 02-04-2020, 10:47 PM #2
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Default

We also have a forum -
For support and discussion about Epilepsy and Seizure Disorders. - https://www.neurotalk.org/epilepsy/
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Old 02-05-2020, 01:53 AM #3
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These stares sound like seizures, We called them petite mal in the 60s and 70s. Now they may call them absence seizures. I had staring spells as a child that lasted a few seconds to a minute or so. Teachers thought I was daydreaming.

Has he had any during an EEG?
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Old 02-05-2020, 10:03 AM #4
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Default Staring Spells

Thank you for your response

He has had several EEGs, and had 2 staring spells while on EEG with no recorded seizure activity.
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Old 02-07-2020, 07:53 PM #5
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Does he have access to a clinic that understands using fMRI to track his brain function?

Databases of normal and abnormal fMRI imaging are improving.
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