Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-06-2020, 05:09 AM #1
JamesR JamesR is offline
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Join Date: Apr 2020
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3 yr Member
JamesR JamesR is offline
Newly Joined
 
Join Date: Apr 2020
Posts: 2
3 yr Member
Default My experience of PCS - any guidance?

Hello guys,

I'd like to give an account of my experience with PCS and am open to any suggestions/opinions.

I'm 25 years old and sustained a nasty concussion in Mid-Jan this year playing football. I took a blow to the back of the head from another player's kick as I attempted to head the ball away. Nearly 3 months on, I am learning the hard way that this is not similar to any injury I have sustained before.. it's not a matter of a strain/sprain that you would willingly rest for weeks on end to get back to full fitness, this is your brain which is constantly working whether you like it or not!

On impact, my vision went blurry and I suffered tinnitus for about 10 seconds, but never lost consciousness. Went to hospital the same day and was advised to take a couple of days off. Returned to work on Wednesday, but come the weekend I had crashed and burned with numerous symptoms and had two weeks off as per doctor's advice.

I'm now one week shy of three months since the incident and I honestly can't say I feel much better. This 'syndrome' manifests in different ways which is why I am struggling so much with it. I had a bout of migraines/pressure headaches in March, which I can deal with as I have prescribed medication. Nausea/dizziness/fatigue are also frequent, but again I can manage these to a degree when they arise.

Where I am really, really struggling is cognitively. I am prone to jumbling up words in my head around 50 times a day. When I say jumbling I don't mean getting the word wrong, I mean the construction of sentences i.e 'how are you?' would come out as 'how you are?'. This is pretty demoralising for me because I may seem okay when I am talking to someone, but I am literally facing a battle constructing sentences in my head. It's not much fun being in my head at the moment. It is running at 100mph but because I'm not all there cognitively, I'm constantly getting things wrong in my head which is leaving me feeling pretty despondent. This is interfering with my line of work and I don't see a light at the end of the tunnel.

The referral system in the UK for a TBI clinic takes a while and my first appointment is in June. I am just wondering if in the interim there are any measures that I should be taking to speed up the recovery process? I appreciate that this is a very vague question but the guidance I have received so far of rest/sleep/limit almost everything haven't really helped me so far. I am also taking Omega 3 Oil/Brahmi Supplements/Vitamin D&Mushroom Complex Supplements.

I know this is a lengthy post but I would be grateful if anyone has any input.

Thank you!
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