Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 08-30-2020, 02:08 PM #11
Tbaughcome Tbaughcome is offline
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Tbaughcome Tbaughcome is offline
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Mark,
I vehemently agree with the banning of headers in certain areas, especially for younger age groups. It appalls me now that coaches and trainers remain so unaware to the risk and damage of doing as much. Goal kicks and corners are certainly the worst culprits. Said banning almost goes without saying for those of us who have experienced concussions to such an extent, not to mention football and even boxing, which are as tragic to me now as anything.
I attempt to exercise good posture while sleeping and have definitely found throughout the day that exercising good posture can help me cope better with my difficulties in terms of movement. I always, however, when sleeping, always wake with my head hunched over, my neck completely unaligned with the rest of my body, so perhaps a brace could be of use. I thank you for your advice, and will do my best to put it into practice.

Burrito Warrier,
Oddly enough, the effect you describe as sensing a pressure on one side of the movement subject to the movement is precisely what I experience with sharper or unexpected movements. It is clear that I have neck issues as well, so our experiences differ, but strangely you have perfectly described this sensation. I agree that this can be attributed to amplified detection of movement and is probably something we will have to continue to deal with through targeted exposure and variants of therapy. I am just now beginning to hurdle a surge in symptoms, I suppose a migraine attack or perhaps neck swelling, and I thank you for sharing your thoughts and experiences. I find great solace in the similar experience of others even if I wish they too did not have to suffer.

I still am yet to find an MD who can offer proper advice, but the search always continues, though I would argue that these forums alone have been far more informative than anything I have ever found from medical professionals concerning brain trauma.

Best of luck and kind regards,
Tyler
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Old 08-30-2020, 03:42 PM #12
BurritoWarrier BurritoWarrier is offline
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BurritoWarrier BurritoWarrier is offline
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Tyler,

So sorry you are experiencing this symptom. Its honestly the most disturbing thing ever and so difficult to explain to someone who hasn't experienced it. My husband and i are both mechanical engineers and think similarly, and i still find myself wishing i could give it to him just for a day so that he could really "get" it, since I still feel like there's a disconnect between the way i describe it and the way he understands it.

If if makes you feel any better, this symptom really has improved a lot over time for me when I'm able to avoid having the "migraine attacks". Others have described similar improvement over time. So even if its miserable, don't feel like it will be that way forever. Seriously get that neck looked at! I've read stories of others who really improved after getting that treated.

I see someone locally now, but the doctor I saw who was a real turning point for me was Dr. Jeffrey Kutcher. He has done work with the NFL, NBA, NHL, etc. He does Skype appointments (though everyone probably does now!) He had a lot of experience with this symptom and really allowed me to understand it well for the first time. I think seeing a good doctor and understanding your symptoms is helpful.

I think its pretty easy for people with this symptom to freak out and be like, "My brain is moving around in my head!" Because some of the sensations can make it feel like something is IN there when you are switching directions quickly. But if you can't really articulate what is going on to your run-of-the-mill-provider, and you just end up yelling about your brain moving around, they will think you are crazy. I think a lot of people get stuck that way, sadly.

I had a long discussion with one of my old PT's about this once because she was complaining that so many of her patients complained they could feel their brains "bouncing in their heads" "And that's not what's happening!" She'd say. This was so frustrating for me because its like, "Obviously...but you have no idea how disturbing and confusing this symptom is and unless you explain to them what is causing it, they are just going to keep worrying about it. Like, you try feeling like you are getting whacked on the head every time you drive on a bumpy road."

Anyway, that was kind of rambly, but it seems like you have a good attitude and the right mindset. It will get better. Find good care and don't give up when things get hard I've gone from feeling my head violently shake just from the muscle contractions of lifting my arms over my head to put a shirt on to running in under 2 year's time. Best of luck to you!

--BW
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