Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-21-2007, 12:44 PM #1
Chris1090 Chris1090 is offline
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Default Does it ever go away???

Hello Everyone,

Does PCS ever go away? I mean for good, not just temporary gaps where you feel alright for a little while.

It's so frustrating....


Christine
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Old 09-21-2007, 04:19 PM #2
yannimac yannimac is offline
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How long have you had it?

Some people get over it and some people have long term problems. There are several stories of full recovery here. I had a bad concussion 10 months ago and I still do not feel right, although I know I feel much better than I did the first few months. I think my recovery from here will be gradual, but I am expecting a full recovery eventually. Hopefully sooner than later
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Old 09-23-2007, 01:42 PM #3
gerbil gerbil is offline
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Chris 1090.. I have had PCS for 2.5 years now. I won't lie to you, there IS a chance it can be permanent BUT more likely than not, it will eventually go away. Every Neurologist I have spoken to about it can never say for sure. They always mention that it is a question of time...

Mine IS improving in a strange back and forth kind of way. I'm putting a 5-7 year sort of expectation on mine, although of course I have no idea when it will get better.

My PCS has improved over time. It is less acute and less 'in my face' like the first year. I am in control a lot more than I used to be. It is hard and I know what you're going through BUT the key is to not lose sight of the future. 2.5 years, well, I thought I'd never get here. But here I am. I have loads of symptoms and can't work full-time yet... but it doesn't take my sense of wanting to get better away.

I suggest you live your life in the present, day-to-day progress will help you feel less frustrated. And, above all, I recommend combatting stress in any way you can! Stress will make every symptom just that much worse, and eventually drag you down. The more positive you feel, the chances are that you'll start to feel better sooner.

Furthermore, a head injury can mean long recovery in some cases. Don't expect overnight recovery but do expect that things get better. In my first 6 months I thought my life was essentially over. When I changed that attitude, things changed for the better. I have changed, refocused my life and priorities. I found that the most refreshing and useful thing to do.

Good luck with it and keep positive as much as you can.
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Old 09-23-2007, 02:21 PM #4
Dmom3005 Dmom3005 is offline
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Honestly its a thing that each person and there case is different.

Its according to how you take the symtoms. And make them work
for you. If you let them bring you down and don't work to get better
then they will always be with you and bear a weight on your life.

But if you decide that you aren't going to let them run your life,
then thats what will happen to the biggest extent.

In my case, it wont completely ever go away. Because I have other
issues that have to go with the symptoms. And I know this now.

So I know that even as it gets better other things happen to bring
back the things that I felt. So I am learning to live with having
these and other problems.

But I'm being given the chance to not feel so overwelmed.

Donna
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Old 09-24-2007, 12:31 PM #5
Nancy F Nancy F is offline
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Hi,
Stress will bring symptoms back and slow down recovery. I think in time whether months for some, years for others, you are less vulnerable to set backs and you recover quicker if there is a set back. My son who is 7 months out has been virtually without symptoms. School is going well, he can study long hours, run on a cross country team etc. Over the past weekend he did too much, stayed up late with friends, did a walk for a fundraiser, studied and was tired at the start of the week. He stiil seemed to be O.K until we added the stress of his drivers ed. test midweek and then I noticed"the look". This is the look of fogginess and he gets complaints of being very tired and nausous. The stress of driving in an urban enviroment fliped him over the edge. He took a day off from school, slept alot and then woke up, passed his driving test and has continued for a week now to be without "the look". He is bright eyed and has alot of energy. I keep trying to slow him down in fear of it all coming back. I notice that with rest he bounces back and functions great again. You really have to pace your recovery. I think you do recover and it all fades away with time. Stay positive and do not let depression or other emotions confound your recovery. I think my son is doing well with not thinking about it and enjoying life as much as he can.
Nancy
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