Hi Lynlee, please don't give up hope and don't believe that nothing can be done for you. I don't see why you could not benefit from some kind of exercise program to regain some energy, maybe something very gently like water exercises or some mild strength training. I am certainly going to look into this and see if I can find someone in my city to work with me. Do you have any access to a health club? I hope this week will be better for you.

HI - in the first year I walked and walked and walked - every day at 7 p.m. I walked miles - some days I walked for 2hours. It was the only thing that kept me sane. Then 2 years ago ACC sent me to their gym. I had a personal trainer and went for 3 months. The problem was with that was that because of where the gym was I had to go straight after work at 1.30pm, literally gallop around the gym and get myself home on the motorway before sleep took over. I couldn't go home and sleep and then go back because of the traffice - I simply can't cope with rush hour traffic any more. I did ask if they would let me go to a gym closer to home - but no. I am not keen to go to just any old gym because of balance problems and can't put my head down either. The funny thing about the personal trainer was - she kept saying to me " you shouldn't be able to do this" and I would have to tell her it is my brain - the rest of my body is ok - like the muscles still work - I used to be a bit of a sports freek gosh how do you spell freek? They (ACC insurers) would only fund the short time - I felt fitter but it did not really help the PCS - guess it didn't have time to. I have decided that I am going to make more of an effort and get out walking again - after my visit to the psychologist last week I went out walking again - more like stomping around the neighbourhood - neighbours must have thought that I had really lost the plot! And - after my going on about the lovely spring weather we are back down to 11c. Lynlee

Jeff-n I have looked up the Kaizen method - and shown it to my employer - he was most interested I am working for a sole practioner - he was knocked off his bike about 14 years ago - was basically scalped but not ko. Was in hospital for about a month I believe. I didn't know him then. At times he behaves like a head injured person - at other times ok. We have strange conversations - like we will be discussing a file and next minute talking about the lack of rain in Ethiopia - anybody listening would probably think it is a comedy act!!!!! Lynlee I still can't control these jolly icons - I wanted to put the grin at the end!!

Lynlee,
I really cannot stress enough, that health care professionals opinions whether neurologists or not cannot be taken as the ultimate truth. The really good ones will simply say they do not know. There is so little known in this area. It is very lightly touched on in medical school. If you are motivated you can improve. How about increasing the mental stamina problem, in a similar way that a person increases physical stamina, very gradually. Has anyone tried just working 5 to 10 minutes longer each day etc and seeing if this helps. The impression I get is most patients seem to be their same old intelligent self at times but it may be just for 5 minutes. They tire out quicker with too much cognitive thought. The simple idea of trying to condition mental stamina gradually, takes alot of patience but I wonder if it would help. Just keep firing those neuron pathways but everything in moderation so you do not have it backfire. There is always new pathways to create in the brain if old ones are broken. You guys are in control, not the health professionals, their experience can be helpful but never let it affect your precious motivation. Hope all you healers are well. We are doing well, my son is finishing up cross country season and keeping grades up, no emotional breckdowns and he is avoiding drugs and alcohol for now. I enjoy all your threads and am learning from them.

Thanks Nancy! I guess my neuro was right when he told me to look on the internet as I have learned so much from all of you on this forum and nothing from him.

After several days of bad headaches, and tense neck and shoulder muscles, I went to my local fitness & rehab center to see if they could help me and I was given a flyer for Myofascial Release Therapy. So I went to my PCP and he gave me a referral. I'm hoping they will be able to work with me to set up a graduated exercise program like Barry Willer talks about. My first appointment is next Tuesday, so I will report back how it went.

P.S. I tried the Topamax for two days, but had a feeling that it wasn't the way to go.