[RisibleGirl]

I fainted back in June and hit the back of my head against the dresser and then against the wall. Ever since then, I've had many neurological problems.

I am seeing my Neurologist tomorrow to go over a sleep study she set up for me and am going to try to get an answer from her on what exactly is going on.

I've been on the Internet trying to match my symptoms to something- and until now have come up with Parkinson's. Talk about scaring myself! I can deal with the idea of PCS much better.

I also have PTSD, which has probably exacerbated the issue.

I'll keep reading!
~Lori

[jeffn]

Lori there's a great deal of information here from people who have been injured and suffer from TBI/ PCS. I've learned a great deal here on this forum and there's new information coming on line daily.

Seattle, That's cool I lived there for 33 years love the city, moved to Southern Ca.last year because of health issue. I do not miss the rain, but I do miss the water the mountains, the Seattle Life style and a good cup of coffee.

Take care Jeffn

[RisibleGirl]

Too funny! I grew up in Southern California and moved to Seattle. I love it here for just the reasons you mentioned. I can't imagine ever leaving.

So what's your story Jeff? How did you end up here?

~Lori

[Lucy]

HI Lori. Have you seen any other specialists?? Seeing what age you are etc kind of makes this hard for me to deal with and comment on. I also had to resort to the internet to find out what was going on with me. ( 6 years ago when I was 45 and in some ways very similar to you) Don't forget that you can't always trust what you are told and often there is no physical evidence to back anything up. Please, please don't hit your head again - that should be your number one priority - just don't put your self in any situation that you could! Keep us posted on progress - my first specialist was a neuropsychologist privately paid and not via insurer and jeff-n is a very good voice of calm rational reasoning!

[jeffn]

TO Lori, nice to talk with someone from Seattle. I still have a lot of family and friends in that part of the world.

I was hit by a Drunk Driver on my bike in 2003, suffered a TBI from the collision and Asthma, so damp cool weather does not agree with me at this time. I'm here doing research and how to recover from the TBI and the other symptoms caused by the trauma.

You may want to check out a link Brain State Technologies and watch the video by Dr. Robert Scaer. Theres a great deal of information on TBI-PCS-PTSD and in my opinion this guy hits the nail on the head.

I'm new to this forum so I don't know how to add a link yet.

Take Care Hope this helps and saves you some time.

Jeffn

[Curious]

hi jeff,

adding a link is easy. just type in www(dot)whaterverthesite(dot)com

or you can copy it from the address bar and paste it to a reply.

or click on this icon and add the addy


sample: www.google.com

[RisibleGirl]

Thank you for your reply. I've not seen any other specialists yet. I've seen this Neurologist three times, tomorrow will be my fourth.

In the beginning, she said that my symptoms might last a while and that lots of people who've had a brain injury have lessoned ability to handle stress. Lots of the symptoms I'm exhibiting could also be stress-related, although I don't have any more stress factors than I did before.

I'm lucky in that my insurance company allows me to see specialists without a (gah- what's the word like recommendation?) (I hate it when I can't think of words... I'm a communicator for a living!

If you don't mind my asking, what brought you to this place? And it was six years ago and you're still having problems? Wow- I'm really sorry to read that.

~Lori

[Curious]

pssst....referral....

[RisibleGirl]

I found the site- thank you. I look forward to reading this.

I feel comfortable here, so I'm going to share something in the back of my mind.

I was diagnosed with PTSD due to physical and sexual abuse as a child and teen. Due to that I've always had a very heightened startle reflex. After hitting my head, the startle reflex has gone through the roof (bright lights, flashing lights, loud noises, seeing things out of the corner of my eye that I wasn't expecting... you get the idea).

I haven't mentioned the PTSD to my Neurologist because I'm fearful of being tagged with an emotional disorder rather than a physical disorder. I've found that doctors tend to want to give an emotional reason for something, rather than dig into what is causing the physical symptoms.

I also have a genetic liver disease and instead of getting to the bottom of why I was exhausted so much, the doctors gave me antidepressants. Thankfully, I didn't roll over and play dead. I knew I wasn't depressed (despite my background), and eventually received the diagnosis.

Do y'all think it's important at this stage that I mention the PTSD? I just don't want her to just give me klonopin and pat me on the head. I want her to look past that.

OK- on to looking at the video. Thanks for the tip!

[pono]

sorry for the reasons but glad you [all] have found this forum and are sharing so much. Unless you've experienced it, seems can't really understand --referring to family, friends, med pros, etc. ( I don't most of the time!!) this group provides needed support, insights, info. and more....

I haven't been online in awhile and trying to catch up w/ posts here.... I've been going thru another "down" phase-- affects of my TBI's & PCS.
I also have lots of "neuro" problems; began w/ my first "big" TBI, 12 yrs ago when I was hit by a car as a pedestrian. tho not as bad still have bouts of PTSD.

Last Dec. had another TBi when I was struck in head by malfunctioning hydrulic lift on wheelchair van. Since that one, additional "smaller" head injuries & concussions, mostly from falls.

I'm still bothered by noise & bright lite, & other things but not as badly.
I lose thoughts & words too.... it's very frustrating....

I have other "cogntive" problems and also emotional--very volitile...

there's more .... sleep problems, constant headaches, & other chronic pain and more....
I'm getting confused now... but will try to write & read more soon....

wishing all the Best...