Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-19-2007, 01:21 PM #1
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Default Back from the neurologist

First things first- she assured me that I do NOT have Parkinson's. So, we'll just get that off the table. I told her that I felt like a hypochondriac because that's what my mind kept telling me I had. She said that what is going on does have many of the same symptoms as Parkinson's, but she is positive that this is not my problem.

She said the sleep study came back fairly normal. She said I have Parasomnia (because I talked a lot and looked like I was acting out some of my dreams), and of course the teeth grinding thing. All of this is stuff I've done all my life-just not as frequently- so no worries there.

She confirmed that this is Post Concussion Syndrome, and that everything I'm experiencing is very much expected with this syndrome. She said that most people's symptoms go away within 3 months, but there are some that she's seen go on for over a year. She said that I need to set my expectations a little lower than I have been. She said that while the severity of these symptoms WILL (she promised!) go away eventually, it might be something I'll always have to live with- just not to such a degree.

She said that she wanted to do a brain MRI just to rule out anything else that might be going on. I thought I had a brain MRI back in July- but apparently it was only a neck MRI. This has been scheduled for this Wednesday.

She upped some of my meds and told me she wants me to take the Klonopin every day to support me through this. I told her that I was worried about the addictive nature and she said that she'd work with me to taper it once the time comes.

So, there we have it. As soon as I get the free and clear brain MRI, I'll feel better. I'm just glad to know that I've seen the worst of it (unlike Parkinson's).
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Old 11-19-2007, 01:59 PM #2
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I'm glad your visit to the neuro helped. Gaye
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Old 11-19-2007, 11:32 PM #3
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If your symptoms persist for longer than a year, maybe look into Neurofeedback. After living with PCS for a long time, I decided to try a different approach. Here's my story and links to how I got started.

I am still in the very early stages, I still have not completed my assessment, but it looks promising. I will certainly post my results on this forum, a couple months from now, to let everyone know if this treatment worked for me.

-Dave
33 Arizona

http://www.strandland.com/neurofeedback
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Old 11-20-2007, 10:29 PM #4
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I'm so glad that you had such a good talk with her. It always helps

It also sounds so much like other doctor's saying most have the symtoms
go away in three months. Its so interesting to me. I know its hard
to see this for me.

Donna
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