Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 11-21-2007, 12:46 PM #1
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Default Concussion - 7 months after

7 months ago i was assaulted and suffered a concussion and was unconcious for around 4/5minutes. I visited a&e and was let home after being examined by a doctor. I suffered all the common syptoms such as sleepiness, headache, dizziness, vomiting etc and was told that these will clear up in most cases within a few days.
After, 3 weeks had passed, some of my symptoms remained the same and the headaches were worse than they had been at first so i visited my G.P who prescribed me painkillers and amitripylene that would help with sleep in meantime until they started helping with the pain aswell.
Now, 7 months on my headaches are so severe its debilitating me! I'm off work at the moment and have been for almost 2 months. Im never away from the doctors and they keep giving me stronger and stronger doses of all these things and not much is helping. I'm due for a CT scan next week.
The headaches are always there but when the get really bad i'm crying with them, it feels like my head is going to explode as its that tight..its mostly the top of my head that gets the worst.
Has anybody else been in this situation or know anybody who has. What could be wrong with me? Maybe it isn't related to th concussion i don't know.
I'm desperate for help, i'm very frightened now!

Thanks for reading, any comments at all are welcome.
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Old 11-21-2007, 01:21 PM #2
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Hi, I'm so sorry about your assault. I was hit by a car while riding my bike six month ago and am still suffering from headaches every day. Sounds very much like you have post-concussion syndrome. Besides the headaches, I still feel somewhat dizzy or more spacy - really hard to describe. I also had the extreme head pressure and tension. Like others on this forum I have not really found anything that helps much. I take Fioricet for headaches, but it should not be taken long-term. Please remember that the head pain is not life-threatening, but I know it is debilitating. My life has been on hold since mid-May.

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Old 11-21-2007, 01:27 PM #3
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Default to sissy

I get severe pressure and tension aswell.
Ive also noticed my eyes feeling weak at times as if their struggling to focus almost.
Im on cocodamol, tramadol although it doent agree with me, migraine treatment and amitriptylene. Im concerned about taking all these daily although i need them to take at least the edge of the pain but the dr doesnt seem to be interested in finding the true root cause hes quite happy to cover my symptoms up instead. Its been so long now and the longer its being left the worse im getting.
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Old 11-21-2007, 01:42 PM #4
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I know what you mean, my neurologist told me to look on the internet when I ask him some questions. I was given Neurontin, which only made things worse and Topamax, which I am afraid to take now. What kind of migraine meds are you on? I read where some cause eye problems.
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Old 11-21-2007, 01:55 PM #5
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Their called Tolfenamic acid 200mg rapid tabs, take one every 12hours. its not preventative you take them as the headaches starting, have you heard of them?
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Old 11-21-2007, 03:28 PM #6
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Default First Sissy,

Okay, I'm going to say something first. Sissy if you haven't tried
the topamax. You might want to give it a try. Because its one of
the best medicines for getting migraines undercontrol. I've had
migraines since I was very young. And I'm now 49.

I've been on topamax, at my request for about 4 years now I believe.

Its controlled my migraines pretty good. I took a pretty good dose, till
this year. When I started having high blood pressure and needed to go
down on the topamax because it makes me foggy. But the veraplamin
also is migraine prevention. So they are doubled.

Very well controlled migraines most of time.

Donna
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Old 01-15-2008, 01:15 PM #7
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My 23 year old daughter has post concussion syndrome. She has extreme head pain. After two years of suffering with it and getting no lasting help from meds. I started searching on the net for solutions. We seem to have hit on some. Look up " balance exercises on the net ", these are usually for people who have suffered strokes. For some reason when she does these exercises it diminishes her head pain ! Also, people who have suffered a concussion seem to be developing strange environmental allergies. Even though allergy tests all come back negative. It is some kind of an intolerance. We have discovered that if my daughter has any kind of milk products her face swells up as well as the back of her head. It feels like she has extreme pressure. The only thing that takes it away is decongestants and avoiding milk products. So keep a watch to see if your head pain is associated with anything you are consuming.
Good luck I hope you are well soon.
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Old 01-20-2008, 09:52 PM #8
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Thanks to everyone for your replys.

Im awaiting an appointment with a neurologist at the moment. Still seeing my GP reguarly who has been really good bt unfortunately not found any meds that seem to be making life any more comfortable. Trying to remain positive.

Good to know there are genuine people out there who DO understand.

Will keep yous posted.
Best wishes to you all!!
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Old 05-21-2009, 05:39 PM #9
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honey. i know very much how you feel. but i definitely feel that what you are going through is called post concussion syndrome. it is a really scary thing and i know exactly what your going through. it's almost as if you feel like your going crazy and feel helpless. but don't feel that way. because there is always an answer. if you haven't gotten to it already make sure you get to a doctor and have them check you for PCS. if in fact you do have it, it is a hard process to get through and the emotional changes are unbelievable. but i would recommend trying different types of therapy such as chiropractic care and accupuncture for your pressure points. i know it may feel as if everything's going wrong and nothing will ever get better but trust me in time, everything gets better. time heals all wounds. at 17 years old. i have dealt with post concussion syndrome since the beginning of my sophomore year. now going into the summer before my senior year i am still going through this terrible thing and hanging in there. it gets better. and make sure to keep your head up. remember what doesn't kill you, only makes you stronger. hang in there kiddo your definitely not alone and you have a ton of people rooting for you to get better.
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