Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-09-2007, 06:55 PM #11
Dmom3005 Dmom3005 is offline
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To all, about the looking down.

I've been being trained in Physical therapy to look up and not look down.
It does cause more accidents. I'm having better luck because I'm being
very consciencious about this.

I still fall, I fell just this week too. But my fall was because I'd just mopped
my dining room floor. And I couldn't stand on it.

But I've got new worries tonight. My 16 year old has fallen twice today.
I have to keep a close eye on him now for seizures. He is not accident
prone. And this is a concern.

Donna
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Old 12-11-2007, 01:07 AM #12
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Jeffn it really sounds like you are making progress - well done!!! Are you now managing to stay awake all day - I am so so jealous!! You have certainly put the work in!! I hope you continue to make progress. How did you manage to fall?? Somewhere on here I think I read about you having bifocals?? I have just got rid of my glassess and contact lenses. I found that when I wore my glasses going down steps was not good, then when I wore my contacts I had to use reading glasses. So I made a decision - I had laser eye surgery about 5 weeks (I think) ago - courtesy of my mother. (My mum died in April of this year and I think she would have been really pleased) I now have 20/20 vision with both eyes, however one was slightly under corrected so that I don't need reading glasses. - though I may well later as I get older. I am hoping that I will be less accident prone.

Donna and Sissy- I agree we try to be more careful and look down - I know that I do especially on stairs - and I have those at work and go up and down them at least a dozen times during my 3 hours at work.

Donna - Gosh I hope your son is going to be ok - you will be so worried and worry is not the best for any of us.

Lynlee
There is a lot more I want to say but I am still feeling totally lousy/yuck/horrid.
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Old 12-11-2007, 04:04 AM #13
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To Lynlee, Yes the thyroid medicine is working good for me. Able to stay awake all day no nap at 3:00 pm and my mental clarity is starting to return.

This is the second week starting at 200 mcg and I'm starting to have 2-3 hours a day of feeling like my old self, he's starting to come back and the bruising pain on the left side of the brain is starting to feel like it is healing.

The healing process is starting. I still have alot of work to do but I feel the next 90 days will produce some promising results.

I am being very careful about the balance problem and looking down at the ground with bifocals as this is part of the problem. I'm also looking for a pink bike helmet, sissy say a 90-95 rating is good.

I fell over a gas line while I was filling my Blazer. I must say the concert is very hard and when your 50+ and you don't bounce very well. The good thing is that I did not hit my head, a little over protective about this part of my body these days.

The thyroid medication takes 30 day to get into your system but I'm starting to see some good results. The Flex Seed Oil and Brewers Yeast [ brain food ] are also helping with the mental clarity and my mental awareness is starting to return little by little.

Some good news I talked to my friend Mary yesterday she just got back from Costa Rica and one of her friends is a Dr. from India who specializes in natural healing and the brain. She invited me down for a few months and thinks this Dr. maybe able to help me in the rebuilding process of the brain.

I talk to her briefly about the neurofeedback therapy and she thinks this Dr maybe able to help me set up the protoco's for this treatment.

So it looks like I have 3 members for the master mind group for this treatment
program, but I feel that there are 2 more people that need to be involved in this group that I haven't meet yet. There on there way.

Taking it slow and easy and trying to stay balanced. Baby steps will get you to the bus and I'm realily trying not to set myself up for failure by pushing it to hard.

Sorry to hear about your mom that's a hard one and I haven't had to deal with that one yet. This would not be a good time to have to process that type of emotional grieving for me or anyone dealing with TBI/PCS.

Hope you are doing well and that the herbs are helping you. How's that going by the way?

Take Care Jeffn
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Old 12-11-2007, 02:46 PM #14
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Lucy

My son is doing pretty good. He is having some small seizures but that is part of him anyway. So that is something that isn't new. And we just have to watch.

I am doing okay too. Had a rough morning in physical therapy with my vestibular/balance therapist. But it was odd, I was doing so well, really
looking forward to a good day. Then I was asked to make my head go side to side. And it just wasn't good. So it through my therapy off. Then
I had more trouble. But I survived. I know have a good and bad days list.

Which I'm really glad to have. Its just part of me.

So life goes on.

Donna
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Old 12-12-2007, 01:12 AM #15
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Hi Lynlee, havn't heard from you in a few days put some of the post I've seen it does not sound like your feeling to well.

I hope you get to feeling better,and strat enjoying the holidays.

I like Egg nog . Do you have Egg nog in NZ. ?

Drop a line when you have a few minutes.

Peace Jeffn
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Old 12-12-2007, 03:55 AM #16
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Hi Jeffn - I am still around - maybe our posts have crossed. Was quiet for a few days - couldn't really concentrate enough to put together anything worth saying - simply ran out of steam and my brain hurt to think

I had my last session with my psychologist today. She has told me that I should focus on maintaining my current schedule to have better quality time in my current awake time - in other words stop thinking about trying to stay awake all day as all that does is tire me. I just feel so .................dunno......... the words to describe it. She is also anti the "stay awake drug" - provigal - she hadn't heard about it but thought that anything artificial will end up with a crash as the physical self can't maintain the pace. I guess that does make sense but at least it would give me an option.

Work is also not great at the moment as I can't keep up with the new technology - like the registration of the transfer of property ( when land and houses etc is sold) is now computerised and is done by solicitors and no longer goes by paper transactions to the Land Transfer Office - in my short working day I don't have time to keep up with my work load and learn - I am now a very slow learner. I have managed to fob it off to my secretary but should be supervising as I am responsible for the transaction - I keep thinking this is an accidend waiting to happen -

Anyway enough of my moans - I actually don't think that I have had egg nog - some do have it over here - but Christmas is in the summer for us - we tend to have strawberries and barbeques - sparkling wines - though I must admit we (my family - what's left of it! ) tend to stick with the traditional roast turkey, ham and Christmas pudding.

I will be having approx a month off work as our Law firm closes on 21 December and reopens 21 January - kind of compulsery holiday - can't wait, but this year I am going to be smarter and plan my days so that I know what I am doing - or it will be like the weekends with me unable to decide what to do today the entire time!!

I don't think we have heard from Lori for some time

Lori = where are you and are you ok??????

Lynlee

Last edited by Lucy; 12-12-2007 at 03:58 AM. Reason: add
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Old 12-12-2007, 04:09 AM #17
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Forgot to tell you about the effect of this - I don't think it actually did anything aside from a stomach ache!! I have been told to wait and see, well I guess I am good at that - that is about the first thing my neurologist told me - she used to talk about while I am waiting to get better - as I have said before - mighty long wait - haven't I waited long enough - surely there is a limit - funny really when we were all at Primary School used to be waiting for the school holidays, then waiting for Christmas, waiting for your next birthday............ never thought about waiting to get better. I am not very good at waiting any more I no longer like waiting nor do I like surprises. No doubt our PCS McGee could add to that!!!

Lynlee
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Old 12-12-2007, 04:38 PM #18
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LYNLEE, My simple prayer for you this CHRISTMAS is that you find Peace.

Jeffn.
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Old 12-13-2007, 04:11 AM #19
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Good grief do I sound like I need peace???? Thank you for your Christmas prayer - however don't you think that I have enough peace in the hours that I sleep during the day = like my motto is "peace calm relax" Ok ok I am only winding you up! Though I am allowed to stamp my feet and stomp around every now and then!!! An occasional tantrum is good for you - might be a waste of energy but there must be psychological benefits!!

Have a good weekend every body we are off to a wedding 3 hours drive down country - who would want to get married a week before Christmas for goodness sake - so inconsiderate!!!

There you all know that I am grouchy today!!!! By the way the fruit shops are full of fresh strawberries and a client came in with a box of cherries today!

Good night and grumps

Lynlee
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Old 12-14-2007, 08:53 AM #20
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Lynlee,
You do have a right to a good moaning session and you are in a rough place, having to be patient and wait! Especially since most things in your life were improved with a little effort and focus and now you only feel worse with too much effort and focus! This is a very tricky, everything in moderation stradegy with PCS! Those that just let things go and spend less time worrying probably are better off here. It's a rough time of year for all souls who are unhappy with parts of their lifes and hopefully January will bring you some relief. I hope and pray for a healthier 2008 for you!!
Nancy
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