Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-06-2007, 11:20 PM #1
Lucy Lucy is offline
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Default Jeffn

Where are you - you are very quiet - hope you are ok. Lynlee
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Old 12-07-2007, 09:43 PM #2
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Default Hi Lucy

Been very very busy this week. Just got back in town. Needed to go visit a friend of mine from Seattle and get lined out on some moving issues. Yes I'm OK but I did take a nasty fall today and this concerns me.

Went to see my PCP and have a little information on the fatigue issue to tried to type anything up right now, but I am making some progress.

Hay I saw a sprint commerical on TV out of NY with 25 bike messagers with pink bike helmets, but no racing stripes I'm thinking about buying one if I continue to fall. Looks like the falls are on a 3 week cycle as this has been the 3rd one in the last 6 weeks.

Take Care Jeffn.

Thank you for your concern are you making any progresss with the herbs??
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Old 12-07-2007, 11:34 PM #3
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HI will comment on the Nitrate sulph later , feeling really awful today, Lynlee
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Old 12-07-2007, 11:59 PM #4
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Default sorry Jeffn

I forgot to say sorry about your fall - isn't it nuts talking about falls at the age most of us are on here - you are meant to have falls when you are in your 80s+ .It is hard for others to understand the effect of a simple fall.

Lynlee
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Old 12-08-2007, 01:13 AM #5
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Default lucy

To Lynlee, I think I'm going to buy a pink bike helmet or my a pink football helmet, not sure. I have some infor to send your way but don't have the mental energy to write it up.

There is hope and I believe that these issue can be resolved in a positive way but it's going to have to come from within. THIS IS ONE OF THE PROBLEMS with tbi/pcs.

Thinking outside of the box.

Take care Jeffn and Thankyou for your reply.
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Old 12-08-2007, 02:12 PM #6
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Default Jeff

Wow- sorry to hear about your fall. I'm petrified of falling now, because after being on this site I now understand that hitting your head again is NOT a good thing.

I have to go up and down three flights of cement stairs to get to and from the train station when I'm downtown and when I'm feeling a little wobbly, I can just see myself falling all the way down.

I probably look like an old lady going down those stairs because I hold on to the railing very tight and take it very slow.

Pink helmet, huh? Hmmmmm...........

I hope you don't suffer too many repercussions from this fall. Take good care!
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Old 12-08-2007, 03:08 PM #7
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Default Hi Risible GIRL

To Lori, Ya I like the pink bike helmet idea. As it's time to make a statement to people who don't understand the TBI/PCS issue, I prefer wearing my Scottish BERET as it makes the statement that I am here to take care of the business at hand. I think I'll buy a pink bike helmet and wear it to my next Dr. visit. YA THINK?
He's a cool person and a real Dr. he took my 3 page summery report home to read and study as it wasn't in my file on my last visit. This guy is smart as he's been a Dr for 40 plus years and he listen to you. He has an open mind so if you make a suggestion he says let try that and see if it works. I like that.

I'm a little concerned about falling down as this has happen 3 times in the last 6 weeks or so. I'm going to change out my glasses as I don't like bifocals and I think this maybe part of the problem, so I'm going back to driving glasses and reading glasses.

How are you doing Lori, are you making progress?

I spent some time with a buddy of mine from Seattle last week we had a good visit. Very thankful I have real friends.

Take Care Jeffn
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Old 12-08-2007, 04:15 PM #8
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Default Falls & Bike Helmets

Hi guys, I watched a show on PBS few days ago about brain fitness and they said that when people are afraid of falling they train themselves to look down at their feet while walking, instead of looking ahead, and that throws off the balancing system and they tend to fall more often. Therefore, they need to retrain themself to look ahead. Don't know if there is anything to this, but might be worth paying attention to. Lori - I feel the same way about stairs, still get kind of dizzy going up and hang on for dear life going down. Five years ago I climbed 94 floors at the Hancock Center in Chicago - even beat my sister who has always been better in cycling, ha.

Jeff, you have a great sense of humor! Sorry about your fall. The best bike helmets are the ones with a rating of 90 or 95.
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Old 12-08-2007, 04:15 PM #9
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Default Hi Lucy

To Lynlee

Had a good visit with my new PCP and gave him a copy of my 3 page summery report. Listing out the symptoms and my Goals. I think this is the person I need to work with as he has an open mind, he's smart and he listens to what you have to say and he's a real Dr. as he is more concerned with my health and well being then my ability to pay. His attitude is what can I do to help you get back on your feet.

Chronic Fatigue: My Dr put me on a thyreoid medication to increase my metabolism. This seems to be helping as I can stay awake all day and not have to take a nap at 3:00 pm. The medication is also helping with my mental alertness and there doesn't seem to be any negative side effects.

It take 30 days for the medication to get into your system and you start with 100 mcg for a week and then to 200 mcg, but after 6 days I'm already seeing some positive results.

I'm also using Flex Seed Oil and Brewers Yeast supplement. Both of these supplements are brain food and are helping with the mental clarity. I'm starting to feel like my old self for 2-3 hours at a time. I plan to start using my energy drink 2 times per day for the next month and then increase to 3 times per day to see if this will help with my physical endurance. I am so out of shape right now, but that another subject.

I talked to one of my mentors last week. He was impressed with the progress report. Jack and I have been having coffee once a week for the last 4 years
since the accident happened, so he know what a mess I was in and has seen me at my lowest of lowes. Jack is also one of the members of my master mind group, so his opinion and feed back hold a great deal of weight with me.

Still in the process of setting up a master mind group for the neurofeedback. I'm very excited about this type of therapy, but right now I have to pick myself up off the sidewalk. Baby steps will get you to the bus.

How are you doing Lynlee are you making progress ?

Take Care Jeffn
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Old 12-09-2007, 01:02 PM #10
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Default Sissy

To Sissy, Thank you for the feed back on the bike helmets. I'm going down next week to see what I can find 90-95 rating ok.

There's alot of people who post here that continue to re injure themselfs Lynlee and PCS Mc Gee and end up going backwards in there recovery, being at the 4+ year mark I can't afford this kind of set back.

Prevention is the key right now.

Take Care Sissy Hope your headaches are getting better and you find a solution. Jeffn
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