I've been nauseated and have had horrible headaches all week, and couldn't really put my finger on the 'why'. Yesterday and today feels better, but I'm wondering if the nausea could have anything to do with the PCS? I remember when I first hit my head, I was vomiting and nauseated for several days and this past week felt just like that.

At first, I thought it might be the provigil, but now am wondering if it's PCS related. Like did I do something to bring the concussion stuff to the surface again?

Does this happen to any of you?

HI Lori, yes I often feel nauseated with horrible headaches - but then that is how my system seems to react to pain i.e achilles tendon - didn't know where the pain was but I vomitted and when I was badly concussed years ago I vomitted for 3 days. Not to mention child birth - but I won't go there it would be a case of too much information for the males! So I guess it could be caused by the paid of the headaches. It is also hard to judge how bad your headaches are - I keep thinking that maybe it isn't so bad and next minute literally fall over - groannnnnnnnnn.

I am still feeling grotty so will save the questions about the provigal till later.

Do you find that when you force yourself to continue with something like say computer work your face and head feel like they burn?

And if you have any more comments on the provigal please feel free to tell all

Lynlee

Hello sweet friend,
I'm starting to get over the idea that life is better through chemicals! I was always the one with the tylenol in her purse, or to offer someone a cold pill.

This combination of meds is messing me up in various ways.

Lessee..... the Provigil- now that I'm only taking it on Tuesdays and Thursdays (the days I'm in the office) I've determined that this is the cause of my headaches and nausea. I think the headaches are from the jaw clenching which is being made worse by the Provigil. I already have had an issue with it since bonking my head.

On the plus side- I'm willing to deal with that because even through the nausea, I am able to think clearly and be alert when I'm in the office. I've decided to allow myself to take my time to think when I'm working from home.

The neurologist told me to take the klonipin every night along with the seroquel. It makes it SO hard to wake up in the morning, as you can imagine. If I don't take the klonipin, then I have the myoclonic jerking once I start to relax for the evening. I have learned something though. My husband has been out of town on business for the past couple of days and I've kept the TV off and have read books and decorated the tree while he's been gone. No noise or flashing lights from the TV= no jerking.

So, I've not been taking the klonipin at night since I'm able to have quiet. It's made a tremendous difference in the morning 'hangover'.

I guess it'll take some time to figure out which meds I should take when- but I'm NOT going to take all of them every day. Only the seroquel at night.

Oh- I had a wonderful weekend. I decided to just stare at the walls. Do nothing but read, nap, computer, nap, etc. By Monday I felt so much better.

Hope all is well with you Lynlee.

Hi Lori Good to see that your OK and it sounds like your making some progress in regards to the med's

Take Care Jeffn

HI, interesting what you have discovered about the television Lori. I know that flashing lights can make me dizzy. About 6 years ago - so that would be about 2-5 months post accident I was found standing in the middle of a shopping mall in tears - I didn't know why and the nuerologist told me it was all - like the lights and noise - too much stimulation of my brain and it simply couldn't cope with it. Maybe that is what is happening with you.

Lynlee

I have trouble with any kind of situation where I get over stimulated such as...family gatherings, lots of loud music or scenes on TV flicking by so fast, all the aisles in the store, stress from hubby...poor guy does not understand and we go round and round. Even trying to handle the finances or follow a recipe will throw me. Can not drive the car, due to not being able to think what to do or concentrate enough to keep my eyes on the road. Since it is 9 months after the wreck I guess this is what I get for the rest of my life.
Still have trouble handling my PCS and it is mostly due to other people not being able to understand what has happened to me. I hate it when people tell me "oh I know, I forget things all the time". NO, they don't understand, MY FORGETTING IS NOTHING LIKE THEIRS, IT IS NOT NORMAL! It isn't from my age of 68 either. Senior moments happen and that is true, not being able to reach for things that have always been there, or not being able to carry on a conversation and remember what was said, is NOT normal nor is it a senior moment. Oh goodness...so sorry I am venting again. Gaye

The things you describe are all things I'm working dilegently on in Physical therapy to get better at. I'm having a rough time handling anything that
takes movement of the head. But it honestly feels so much better to be somewhere that instead of when they ask if the aisle's at the stores are
hard to walk through, they then are very helpful. I am not treated as
if I"m a idiot.

They have been helping me cope with the fact that breathing is a issue.
They have worked very hard to remind me to stop and breath at times.
And I can honestly say I'm so thankful I found them. My neurologist,
was very good to send me to such a helpful place. I'm really not going
to like it when they all think I'm done.

I also like the fact that I can learn to balance and to feel the dizziness
in my eyes. And of all things my husband has no say on this part.

Oh, and of all things, it feels 100% perfect when they look at me and
say:
Oh its time for a break isn't it. YOur eyes are really off. You just have
that look. I have always known I had a look. But no one has ever
seen it.

So it feels so nice to be able to just depend on them not to let me overdue it.

Donna

Lori... nausea was a big problem for me for a long time & was very much PCS related. I tried various meds, herbs (ginger helped some) . Marinol was recommended and it did help more than anything else I'd tried. I still get episodes of nausea but not as badly or long lasting, unless part of a migraine.


so you think Provigal is culprit for you ? I've also had meds cause nausea, headaches & more. How are you doing now? I was going to talk to my DR about Provigal . It was prescribed few years ago --for my "excessive daytime sleepiness". It did help But it also exaccerbated my sleep problems (insomnia, jerking, kicking, etc.) which are again a BIG issue for me. I've tried various meds, herbs but haven't helped. So I 'm in a vicious cycle of not sleeping, dragging thru day in a fog , like I'm carrying weights, everything I try to do is a major effort as well as doing dumb things. Also more emotional volitility--I feel so irritable & depressed as well as tired and having more headaches. I've been taking B12 & some other supplements in hope would help this awful fatigue but things are still out of whack.

anyway good luck to you (and all ) w/ your process of healing...

Pono - Hi can you remind me about what happened to you. I totally understand about the effort everything takes to do - trying to explain it to specialists sometimes is about the equivalent of hitting your head against a brick wall (that is a horrible saying) -

I feel like I am having constantly to force myself to do most things - finding my way through mush in my brain - all the old ability is still there in your brain - it is just finding the energy to access it and use it. My 3 hours at work each day totally exhaust me and if there is any pressure I end up being wiped out for the week ....but still drag myself back to the office the next day and put a smile on my face

Do you still have to sleep during the day? and how long have you had the PCS?

Gaye
It is so annoying isn't it when people say oh that happens when you are over 50 or I forget things too - my sister in law says I get tired too and I just want to scream at her " not like this". I have given up trying to explain at times I feel like I am having to justify myself and I have decided I am not going to do that anymore - this is me like me or leave me!

Donna
My new man actuallys says he can see "that look" of exhaustion - so does my son - they recognize it before my brain even registers. I have lost a lot of the self awareness - I don't know that I am getting tired until I am exhausted, same with getting hot or cold there is no inbetweens any more. I realise that I am cold when my hands and feet have gone blue - same with stress - I am either not stressed or suddenly hit the max. Weird!!! And as I am at work now I should do something useful.

Lynlee

Donna, my eyes were what caused my primary doc to send me to a neuro. I flunked the finger to nose test and then she said she did not like the way my eyes looked.
Yes the people thinking they know is awful. I finally decided today that I would just stop talking about it with anyone but here on the forum, or my friend. If I need any explanation I will, as of today, just say "I have a bit of brain damadge". Let them guess what it is. LOL
The PT sounds great. My primary mentioned it to me if the dizziness keeps up so it could be something to try. I am titrating down on Lyrica and already I feel better. I am certain it has made my brain much worse. Tuesday I will go off competely. As of now I am on 1 pill a day.

Pono, I too am having lots of irratible (spell?) days and poor hubby gets the blunt of it! I tried to cook some beef stew today and forgot I was cooking it so tomorrow I will have to finish. Just can't remember what I am doing unless I am looking at it! Gaye