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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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01-04-2008, 09:22 AM | #11 | ||
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Jinxy,
You have gotten some great advice from many experienced veterans of PCS! It is all good advice. Personally I would keep your money in your pocket in regard to MRI and even PCP visit. I am a critical care nurse and parent of a 17 year old who suffered from PCS for a good 6 months and my advice after this journey is rest, and keep stress level down and give yourself time to heal. You will heal but your brain is going to become symtomatic if you push too hard!! I am sorry if this means a temporary lifstyle change because that will then cause stress just thinking about it. It is not an easy recovery and it has alot of ups and downs. Take care of yourself and do not be too hard on yourself. Learn all you can because the knowledge enpowers you in the recovery process. Keep your sense of humor and give yourself several months. Nancy |
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"Thanks for this!" says: | JiNXy (01-09-2008) |
01-04-2008, 09:41 AM | #12 | ||
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hi there jinxy im ali from the uk,reading whats happened to you ,you have the exact same symptoms that my husband has and he has been diagnosed with post concussion syndrome ov er her.He was knocked unconscious in a pub 8mnths ago.He also has trouble with left and right with his keyboard,headaches,loss of appetite,he doesnt sleep either.Do you have trouble taking in information if there are several people talking at once and that sort of thing ? look forward to your reply ali
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01-04-2008, 03:34 PM | #13 | ||
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Hello Jinxy:
If you go to the Center of Disease Control and Prevention, and type in closed head injury or just google that you will find a list of symptoms of what PCS, MTBI covers. If you have over three symptoms and according to you post I counted six or more, you should make an appointment with the Rehabilitation Institute of Chicago. They are the number one medical clinic that know how to treat brain injury. I went to four local doctor of which the neuro surgen told me that the CAT Scans and MIR did not show anything for him to cut on and when I showed him the symptoms list of MTBI he told me I did not have that injury, that I would just have to learn to live with the headache pains and mood swings. At the RIC, after an hour and half exam and looking over the same information that four other doctors did, I was told I had post concussion syndrome, MTBI and deep depression. I started treatment with DR. Kraus at the University of Illinois at Chicago and started EEG-Bio feed Back at Midwest Neurofistness in Champaign, IL. Both of these are listed with a google search and you can get information that will help you understand what is going on. You local doctor will only admit that he can't find what is wrong, so it must be depression and give you drugs that will only make it worse. It took me over three years to get somebody to believe me, and even when that happens your family member will not believe that just a simple knock on the head can cause this much damage, but only tell you that you just have to shake it off and just get back to work and you will be fine. Please check out the RIC AND Dr. M. Kraus at the UI-C on PCS. Hope this helps you.. By the way I have a list of PCS, AND MTBI web sites that would be of help if you care to know about them. |
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01-08-2008, 05:03 AM | #14 | ||
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Not heard anything from you for a while, are you feeling any better? Lynlee
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01-08-2008, 05:05 AM | #15 | ||
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Not heard anything from you for a while, are you feeling any better? Lynlee
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01-09-2008, 12:22 AM | #16 | ||
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Ali: I do have problems keeping up with conversations between multiple people...which sucks b/c that's pretty much all I was doing all weekend before and after the shows! My head hurt soooooo bad after the second night I just wanted to cry...and I couldn't even begin to remember who had said what about what. Very frustrating. I don't seem to have L/R troubles, but I've been noticing a lot lately when typing and such that sometimes my fingers just refuse to move the way my brain is telling them to. My embarrassing moment of the weekend was when I said something about 4 of my friends sleeping in a car and held up 2 fingers instead. HAHA
Mark: Please share the links for all of us here! I'm sure they'd be much appreciated by everyone. Lynlee: Thanks for checking in. The weekend was pretty intense...like a moron I got back in a crowd the second night and was kicked in the nose by a crowd surfer. Saw stars and immediately felt dizzy, and for the first time in my life I had the tour manager pull me out. I was sidestage the rest of the night. Kind of a bummer, but better safe than sorry. I had the headache from hell for two days after that, but nothing else seems to have changed much so far. I had to email like four people because I forgot to tell them nearly EVERYTHING I meant to tell them when I was with them this weekend. lol *sigh* One day it will end and I'll be back to normal...I just keep telling myself that..! |
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01-15-2008, 01:37 AM | #17 | ||
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If you have not visited the BRAIN INJURY ASSOCIATION, please do so and ask for the free packet from them. Next google BRAIN INJURY RECOVERY KIT, and you will go to DAYTIMERS and it is a complete kit by a person with a MTBI, PCS that includes three DVD to explain the injury to you and family members that just can't believe that a small knock in the head is causing these problems, it just because you are lazy and not motivated to get along with your life.
Please look up eeg spectrum for a clinic in your state that could offer treatment with EEG-BIO FEED BACK. It may work on you and it may not but it has given me back a life that I though I would never see. Quote:
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