Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-18-2010, 08:29 PM #71
BeccaP BeccaP is offline
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BeccaP BeccaP is offline
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Quote:
Originally Posted by March9 View Post
It is hard to keep a good attitude, but I've pretty much decided that I just end up feeling worse when I give in to the feelings of hopelessness and discouragement (I'm a mom of 3 young'uns, being unable to care for my family properly is simply horrid, luckily I've got an understanding hubby to pick up my slop). So I keep trying to stay positive and focus on the things that have improved, however small they may be. It is hard to be patient with the rate of recovery, but if I think back in months, rather than days, I can see improvement. I'm a little over 6 months of PCS and have to be extremely careful with exertion, physical or mental. Trying to do too much makes the symptoms worsen for days. I'm going to an upper cervical chiropracter this week, also will follow up with an inner ear doc to rule out inner ear damage (VNG testing). I tried physical therapy (for neck pain and dizziness/balance) it helped a little. Nutritional therapy (similar to what Mark and Vini have posted) seems to be helping. My neurologist recommended acupuncture but I haven't done it yet, one thing at a time. I don't think there is one thing that will work for everyone though...best wishes in recovery!
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Old 06-05-2015, 12:52 PM #72
SonWithPCS SonWithPCS is offline
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Default 10 year old son with PCS

My son had a pretty substantial concussion in 2013 and has suffered from PCS ever since. He has had 8 relapses since the initial injury and each one is worse than the last. One time it was so severe that we raced him the the ER with complete right side paralysis and the Dr thought he has having a severe stroke.

Last night we were grocery shopping. On the way there he said he had a headache but other than that he was fine. At the store he collapsed and was drooling and could barely talk. He was numb all over had a severe headache and ringing in his ears. All of the same symptoms he has when this happens. Usually it takes weeks to recover when this happens and its devastating for him. He gets very depressed and says he wants to dye which breaks my heart.

Last night when this happened there was a DR in line behind us and she said she could help us. Her office was right next door to the hospital so if it didn't work we could be right there and go through the same nightmare we always go through with no results. My son has been through every test and treatment conventional medicine has to offer so I figured it was worth a try.

We went to her office and she brought out something called a Cosmodic machine and said the Russians developed this for their cosmonauts and that it can really help. She used it on my son and in less than 4 minutes he was 100% healed which blew our minds. How could I not know about this after everything we have been through? Most doctors say it's all in his head but when you are carrying a drooling mumbling boy who can't feel his legs or arms and has popped and peed all over himself because he's lost control I don't care what anyone says this is NOT in his head. He is a normal boy most of the time. This started with his concussion and ruined his life (in his words not mine). I cannot believe this treatment exists and he is 100% better today.

It will be my mission to spread this knowledge to help others who suffer like my son. Look into it. It's an expensive machine (prices range from $1800-$10,000) but I am buying one today and thank god I found this. The dr said it helps with a lot of things; PTSD, neurological problems, depression, PCS, nerve pain, etc. I cannot praise this technology enough as it was a lifesaver for us!!
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