Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 02-12-2009, 11:22 PM #1
Alessea Alessea is offline
Junior Member
 
Join Date: Feb 2009
Posts: 11
15 yr Member
Alessea Alessea is offline
Junior Member
 
Join Date: Feb 2009
Posts: 11
15 yr Member
Default Newbie says hi :)

Hi there!
I came across this forum because I was looking for rsd stuff but I also suffer from pcs from a fall in May 06 (I spent 2 weeks in hospital after that), I've subsequently had at least 6 more concussions since then mainly from falling down stairs. They discovered that my vestibular system wasn't working properly so I didnt register I was falling till I came too after being knocked out.

My problem is that since nothing showed up on my CT scan, the neurologist says there is nothing wrong with me. All I wanted was justification that its ok to feel the way I do. My physio says she believes me and has seen how it affects me as she is also one of my tutors. Have any of you been told that its not true since nothing shows up on scans?

Its the physical and mental exhaustion that gets me the most, you walk around in a fog with a horrible headache trying to get things done when you are just too tired to do anything. I find that around 2-3pm I actually need to lie down and sleep most days and its just not possible. And the concentration issues, if you cant concentrate, you dont have the memory in the first place. My Mum and my friends are always saying 'you know how I told you/said..." and I have no idea what they are talking about! The call me goldfish now lol.

I'm a physio student about to start my 3rd year, its sad as my grades have dropped dramatically since my first head injury but luckily still enough to pass respectibly although I have to put a lot more effort into getting what I do.

Its hard, because of the rsd I am on meds that have side effects that are similar to pcs (and also rsd has some of the same symptoms too) so sometimes I wonder if they are compounding the situation but I need the meds or I would kill myself from the pain.

I have to say though, my Uni is pretty good about it all, they help me by letting me record my lectures and I get extra time for my exams.

Anyways I just wanted to say hi and see if anyone else had had trouble with specialists.
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