Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-13-2010, 09:34 AM #1
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Quote:
Originally Posted by erica21 View Post
Mike,

I to am interested in your thoughts about neurofeedback. I'm six months PCS, and am now just scratching the surface on information out there. Before I was feeling way to overwhelmed with symptoms and was told the only way I am to get better is to have complete cognitive rest. I am SO GLAD I found this place. I've only been a member for less than a week, but I cannot tell you how theraputic it is to hear that people are going through the same thing.

How did you get a concussion? What were you symptoms? What exactly is neurofeedback? I plan to do some research on it, but I'd like to hear first hand from someone whose done it.

Thanks for your post.

Erica
I don't think Mike posts here anymore. If you look back through his posts I'm pretty sure you'll see some posts regarding neurofeedback. I think it helped him a lot.
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Old 01-13-2011, 07:21 PM #2
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Quote:
Originally Posted by mhr4 View Post
Hi everyone,

I ran across this thread and thought I should throw in my two cents. If you, or anyone you know, has incurred a head injury and you/he/she is not recovering, I would encourage you to look into neurofeedback. You can just google it and find all kinds of information about it. If you live in a big city, you will probably have dozens of therapists in your town who specialize in this. If not, you can also do it remotely with specialists such as Dr. Victoria Ibric or Dr. Diane Roberts Stoler. My quick story is that I incurred 6 concussions while playing rugby in college. I have been doing neurofeedback for a couple of years to relieve symptoms and I have made great gains thus far. If you have any specific questions, just let me know.
Cheers,

Mike
Mike, I don't know if you are still on this forum, but wanted to find out more about this. Was it neurofeedback specifically that you had, and if so do you know which type? I am in the UK so this is less available here, but there is one guy who offers LENS neurofeedback, is this the kind you had? Did it make you feel better from the beginning or did you experience fatigue in response to the treatment? Thanks,
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Old 04-03-2011, 12:30 PM #3
Nitro157 Nitro157 is offline
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Default What does it feel like to recover?

Does it happen symptom by symptom? All at once? Very slowly? I'm 8 weeks and still feel like the whiplash/concussion happened last week.
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Old 08-27-2015, 01:03 PM #4
ekhfs ekhfs is offline
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Quote:
Originally Posted by mhr4 View Post
Hi everyone,

I ran across this thread and thought I should throw in my two cents. If you, or anyone you know, has incurred a head injury and you/he/she is not recovering, I would encourage you to look into neurofeedback. You can just google it and find all kinds of information about it. If you live in a big city, you will probably have dozens of therapists in your town who specialize in this. If not, you can also do it remotely with specialists such as Dr. Victoria Ibric or Dr. Diane Roberts Stoler. My quick story is that I incurred 6 concussions while playing rugby in college. I have been doing neurofeedback for a couple of years to relieve symptoms and I have made great gains thus far. If you have any specific questions, just let me know.
Cheers,

Mike
Hi Mike
saw post on neurofeedback. What do they do and can it help dizziness? Thanks ekhfs
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Old 02-22-2012, 05:33 PM #5
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Originally Posted by PCSMom View Post
Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
Can you tell me more about the "alternative" treatments (accupunture, etc.) and how they were used and if they were sucessful? My doctors keep talking about them in encouraging ways, but when I press them for details or referrals, they seem to run for the hills.
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MOMMYMBD (02-12-2013)
Old 07-17-2012, 11:08 PM #6
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Quote:
Originally Posted by PCSMom View Post
Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
I am in a similar situation to your daughter right now, being 17 with a tbi. Was there ever a time where it was not getting any better or any worse? Did it eventually continue to progress even after a year (or in her case 2.5). Thanks so much for your post, I really need to know others had made it out the other end even after a long time!
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Old 01-26-2014, 10:15 PM #7
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Quote:
Originally Posted by PCSMom View Post
Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
Which treatment worked best for you as in suffering pcs And it's been 3 years for me
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vini (04-17-2014)
Old 02-13-2014, 04:27 PM #8
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I recently read 11 Seconds by Travis Roy (first book I've read thus far!) and found it to be very helpful to me.

The book is written by Roy, a young promising D1 hockey player who flew in to the boards and became a quadriplegic for life 11 seconds in to his college career.

The book, which was well written and very interesting helped me to put my injury into perspective and realize how lucky I really am.

One of my favorite quotes is as follows:

"A victim is a person to feel sorry for. A survivor is a person who makes the best of the cards they are dealt."
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vini (04-17-2014)
Old 03-21-2014, 04:00 PM #9
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Hi all. I posted here about a week ago while in the midst of my worst symptoms. I was diagnosed with PCS a week after my original concussion, which I realize now is very early and may have been premature on the part of my doctor (though some of the research I read indicates that it can be diagnosed within the first week).

I just wanted to let you all know that I woke up this morning feeling like myself for the first time in three weeks since the incident occurred. My symptoms did not grow severe until 7-10 post injury, but immediately became devastating. After another week, I am finally sleeping again and my anxiety is under control without medication. I performed the imPACT test for the second time today and showed huge improvements across all domains.

I don't think I'm 100% yet but I feel really optimistic — it feels fantastic to have my personality back. Thanks for your advice.
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vini (04-17-2014)
Old 04-16-2014, 11:17 PM #10
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PCS Mom, thank you. I can almost not breathe since getting on this site, but so glad to hear your daughter is recovering. I am confused at how she can be a 17 year old Junior if she was out for 2.5 years? Can you share more? I have a 16 year old who is hoping to go back as a Sophomore next year after missing a whole year, but we don't even know that that can happen. Can you please share more about what happened with school? Thanks so much for giving me hope - I am exhausted and feel I could lose my own health and then who would be here for her? It's incredibly scary. I am so happy for you that you are feeling you are on the other side. Can't wait to join you!
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