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Old 03-11-2010, 12:25 PM   #21
Concussed Scientist
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Default Someone who has recovered

Well done, Oakland, on being one of those who has recovered and come back to tell us. I believe that most people do recover from postconcussion syndrome. Of course, recovery is likely to depend on the extent of injury and on age. It is nice to know that some people do make it though!

Last edited by Concussed Scientist; 03-11-2010 at 12:29 PM. Reason: Replied to wrong person
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Old 04-02-2010, 05:41 PM   #22
BeccaP
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Hope is a good thing! I am ~six months into PCS. I am finally starting to feel a little better, my brain seems to be working better (still not normal, but better), I have a bit more energy, headaches are less frequent and severe. I am starting to believe that I actually might feel moderately functional again someday. I've tried to rest as much as I can (I'm a stay at home mom with 3 kids who I home school), take recommended supplements and avoid situations and places that make me feel worse (I still don't do well at all in crowded, loud situations or when I have to stand around and talk to people). I'm still having problems with dizziness, nausea, ear and eye stuff but I am feeling enough better to feel so HOPEFUL that I wanted to post this.
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Old 04-12-2010, 03:42 PM   #23
erica21
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Quote:
Originally Posted by mhr4 View Post
Hi everyone,

I ran across this thread and thought I should throw in my two cents. If you, or anyone you know, has incurred a head injury and you/he/she is not recovering, I would encourage you to look into neurofeedback. You can just google it and find all kinds of information about it. If you live in a big city, you will probably have dozens of therapists in your town who specialize in this. If not, you can also do it remotely with specialists such as Dr. Victoria Ibric or Dr. Diane Roberts Stoler. My quick story is that I incurred 6 concussions while playing rugby in college. I have been doing neurofeedback for a couple of years to relieve symptoms and I have made great gains thus far. If you have any specific questions, just let me know.
Cheers,

Mike
Mike,

I to am interested in your thoughts about neurofeedback. I'm six months PCS, and am now just scratching the surface on information out there. Before I was feeling way to overwhelmed with symptoms and was told the only way I am to get better is to have complete cognitive rest. I am SO GLAD I found this place. I've only been a member for less than a week, but I cannot tell you how theraputic it is to hear that people are going through the same thing.

How did you get a concussion? What were you symptoms? What exactly is neurofeedback? I plan to do some research on it, but I'd like to hear first hand from someone whose done it.

Thanks for your post.

Erica
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Old 04-13-2010, 09:34 AM   #24
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Quote:
Originally Posted by erica21 View Post
Mike,

I to am interested in your thoughts about neurofeedback. I'm six months PCS, and am now just scratching the surface on information out there. Before I was feeling way to overwhelmed with symptoms and was told the only way I am to get better is to have complete cognitive rest. I am SO GLAD I found this place. I've only been a member for less than a week, but I cannot tell you how theraputic it is to hear that people are going through the same thing.

How did you get a concussion? What were you symptoms? What exactly is neurofeedback? I plan to do some research on it, but I'd like to hear first hand from someone whose done it.

Thanks for your post.

Erica
I don't think Mike posts here anymore. If you look back through his posts I'm pretty sure you'll see some posts regarding neurofeedback. I think it helped him a lot.
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Old 06-29-2010, 03:17 AM   #25
lennynsherry
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I'm currently in Vancouver visiting. Tomorrow I head back to southern Oregon... tonight I sat up seeking ways to help myself regain/find what has been lost thes past 8 months since a wind gust pulled a tree off the side of a cliff and onto my head. Before PCS devasted my day to day life. Do I press on, forcing myself to try and do as much as I use to? Do I slow down or stop and let my brain regroup? Take meds? Take nothing? I'd just like somebody who's been here to give me counsel...
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Old 09-08-2010, 03:40 AM   #26
mbrook
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Default my real life hero who gives me hope

My friend Suzette Allen (google her) suffered a tramatic brain injury 21 years ago, as a result of an auto accident with a bull moose while driving in Alaska. Her head was crushed and the bones in her face were shattered and had to be wired back together...many surgeries to reconstruct her nose...but the worst part was brain damage. It took her 8 years total to completely retrain her brain to be able to do all her previouse activities and relearn emotional and cognitive functions. "It was a very long, dark road with much depression and confusion! But there is hope, no matter how bad things look, no matter how far you've slipped and how much damage you have done or has been done to you! Today I am completely whole and successful person and actually teach Photoshop for my living along with photography."
Suzette travels the world teaching and unless she tells you her story you would never know that she had to relearn almost everything or that she had huge issues that forever changed her life because of PCS. I am lucky to have her in my life and to be able to call her any time. Its nice to have some one who understands and tells you it will get better because they are living proof even when you cant believe it for youself.
And you really should Google her and look at her work its amazing - life after TBI!
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Old 01-13-2011, 12:10 PM   #27
carmell
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Thanks for this post! I am also recovered from a major concussion (it took 6 months). I suffered everything from throbbing migraines to vetigo to depression. It is great to hear another positive story. I find it is easy to get lost in some of the negative posts on this board. There is hope and you will recover!

Carmell


Quote:
Originally Posted by Oakland View Post
After "lurking" on the board - and seeing all the negative information - I felt compelled to post. After a slip and fall at the airport 3 years ago, I struggled with horrible post-concussion syndrome for 13 months. After which - I made a FULL recovery. Six months ago, I banged my head on a radiator (freak accident) which again caused post-concussion syndrome. During both episodes, I visited the best doctors NYC has to offer to no avail. Time was the great healer - and I am again fully recovered. Folks who "get better" go off this board- but most do get better! I am happy, healthy, extremely high functioning married 36 year old woman with an MBA - and I got better - twice! There are obviously circumstances contrary to this, but to all newbies - you will recover.
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Old 01-13-2011, 06:21 PM   #28
UKgirl
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Default

Quote:
Originally Posted by mhr4 View Post
Hi everyone,

I ran across this thread and thought I should throw in my two cents. If you, or anyone you know, has incurred a head injury and you/he/she is not recovering, I would encourage you to look into neurofeedback. You can just google it and find all kinds of information about it. If you live in a big city, you will probably have dozens of therapists in your town who specialize in this. If not, you can also do it remotely with specialists such as Dr. Victoria Ibric or Dr. Diane Roberts Stoler. My quick story is that I incurred 6 concussions while playing rugby in college. I have been doing neurofeedback for a couple of years to relieve symptoms and I have made great gains thus far. If you have any specific questions, just let me know.
Cheers,

Mike
Mike, I don't know if you are still on this forum, but wanted to find out more about this. Was it neurofeedback specifically that you had, and if so do you know which type? I am in the UK so this is less available here, but there is one guy who offers LENS neurofeedback, is this the kind you had? Did it make you feel better from the beginning or did you experience fatigue in response to the treatment? Thanks,
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Old 04-03-2011, 12:30 PM   #29
Nitro157
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Default What does it feel like to recover?

Does it happen symptom by symptom? All at once? Very slowly? I'm 8 weeks and still feel like the whiplash/concussion happened last week.
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Old 05-16-2011, 11:05 AM   #30
Sturgeon
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Confused Feeling like yourself again

Thanks for your post Nikki. I am really confused about the concept of "feeling like myself again" since my concussion in a ski accident on March 10th. I work full time and found that I can be fired for medical reasons after 120 days of job protection by law. I have been more than motivated to recouperate and have hired a team of Dr.'s and clinicians that specialize in brain injury and am taking a host of meds due to my fear of losing my job. I have been feeling better, but was shocked at the meeting of my experts that the neuropsycologist said that "we" will have to see what kind of person you become. When I began to cry he said that he hoped I didn't think that I would be the same person I was after going through an experience like this. I agree with him now as the trauma is more than I have had to deal with. I am learning new coping skills and ways to live my life without sports or physical excercise for now

What I do want to feel is healthy and energetic again that would be like I used to be. I don't care what kind of a person I become (not mean I hope) as long as I am rid of the sickening headaches, nasea, fatigue, confusion and lonliness.
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