Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


advertisement
Reply
 
Thread Tools Display Modes
Old 04-16-2014, 11:39 PM #1
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Mark in Idaho Mark in Idaho is offline
Legendary
 
Join Date: Feb 2009
Location: Somewhere near here
Posts: 11,418
15 yr Member
Default

LisaLucille,

Welcome to NeuroTalk. The stickies are not followed nor intended for discussions. If you have questions, you will get better responses by starting a new thread in the main forum.

It sounds like you need help with understanding your daughter's injury, treatment and condition. Please post some details of her injury and such in the main forum so we can offer you support. Use the New Thread button at the top left to start a thread about your daughter.

My best to you and your daughter.
__________________
Mark in Idaho

"Be still and know that I am God" Psalm 46:10
Mark in Idaho is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
vini (04-17-2014)
Old 06-11-2014, 12:08 PM #2
Tom from Queens Tom from Queens is offline
Junior Member
 
Join Date: Jun 2013
Posts: 20
10 yr Member
Tom from Queens Tom from Queens is offline
Junior Member
 
Join Date: Jun 2013
Posts: 20
10 yr Member
Default Maybe not 100% recovered, but definitely healed...

I sent the following email to my friends; I thought I'd share it with the board:

"I resumed reading Shakespeare (Henry IV, Part 1), after being unable to do so because of reading comprehension difficulties (especially fiction and other metaphor-laden material) for the past 16 months.

Reading Shakespeare again had been one of recovery goals.

And here it is.

So very very happy!!!"
__________________
What happened: in February of this past year, I suffered a fall. Though I did not hit my head, I came within three or four inches of hitting the ground, and the whiplash/ coup countercoup has caused lingering concussion symptoms.

I have had five or six prior head injuries, most of which completely healed within a few weeks, though one took about three months.

When I get my most depressed, I remember that I could have killed myself, which would have been far worse than anything I have gone through. June and July of 2013 were the absolute worst.

I have managed to keep my job in a field that demands a lot from my brain, though I do get cognitively tired very easily, and have some problems with reading comprehension and short-term memory, though some days I feel close to my pre-injury self.

The headaches of the Summer are gone (mainly) and I drink a lot of water and rest more than before.

I am on a supplement regimen, and that has helped; probably the medical intervention that helped the most were seven chiropractic manipulations of my neck in June and July.

I am fearful that I will be slightly brain damaged the rest of my life, but I am determined to enjoy the same things I enjoyed before, and I, even on days that I despair, know that the odds are with me.
Tom from Queens is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bh_pcs (11-12-2014), Eowyn (06-11-2014), Lara (08-26-2014), Laura G (08-26-2014), Mokey (06-18-2014), MomWriterStudent (06-17-2014), music-in-me (06-12-2014), Theta Z (06-12-2014)
Old 06-29-2014, 08:39 AM #3
MomWriterStudent MomWriterStudent is offline
Member
 
Join Date: Dec 2013
Posts: 159
10 yr Member
MomWriterStudent MomWriterStudent is offline
Member
 
Join Date: Dec 2013
Posts: 159
10 yr Member
Default

I still have a long way to go in my recovery, but things are getting better. I want to share something that happened today that made me really happy, plus a little background info:

Before the concussion, I was a full-time writer with a heavy workload. Writing was very easy for me, and I made decent money doing it.

After the concussion, my client list got smaller and smaller. I went from making $350+ a day to struggling to finish $20 of work. I would cry because my head would throb as I attempted to read the detailed project instructions from my clients. I could no longer comprehend most of the project descriptions, and I'd spend hours doing tasks that used to take me 15 minutes.

I'm working on a big project now for a well-known retailer. This retailer is known for being extremely picky, and I was terrified to begin the project. I know a few other writers who had work rejected by this client.

I finished up most of the project yesterday, and I found it easy. And fun! That's a big deal for me these days.

I woke up this morning to a message stating that I did a good job. Wow! I couldn't believe it.

I will say that my neck is now killing me and I am typing with one eye closed lol, but knowing that I am able to do my job well again makes me incredibly happy. I feel like I will be able to have a full-time writing career again in the future.
__________________
It is what it is.
.
MomWriterStudent is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bh_pcs (11-12-2014), Lara (08-26-2014), music-in-me (06-29-2014), poetrymom (08-27-2014), thorx89 (09-11-2014), Tom from Queens (07-01-2014)
Old 08-27-2015, 01:01 PM #4
ekhfs ekhfs is offline
New Member
 
Join Date: Aug 2015
Posts: 4
8 yr Member
ekhfs ekhfs is offline
New Member
 
Join Date: Aug 2015
Posts: 4
8 yr Member
Default pcs

Quote:
Originally Posted by PCSMom View Post
Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
A Mom going thru the same horrible ordeal. What helped the most?
Karen
ekhfs is offline   Reply With QuoteReply With Quote
Old 11-03-2023, 06:48 PM #5
Jbshan5 Jbshan5 is offline
Newly Joined
 
Join Date: Nov 2023
Location: Kentucky
Posts: 4
Jbshan5 Jbshan5 is offline
Newly Joined
 
Join Date: Nov 2023
Location: Kentucky
Posts: 4
Default

Quote:
Originally Posted by PCSMom View Post
Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
Thanks for sharing your story. I am in the same boat with post concussive symptoms for 7 months. May I ask what helped her heal? How did she deal with setbacks?
Thanks!
Jbshan5 is offline   Reply With QuoteReply With Quote
Old 08-18-2009, 09:17 PM #6
Dr. Diane Dr. Diane is offline
Junior Member
 
Join Date: Jul 2009
Posts: 9
10 yr Member
Dr. Diane Dr. Diane is offline
Junior Member
 
Join Date: Jul 2009
Posts: 9
10 yr Member
Default Results from 1st mTBI & PCS conference-Vancouver

I attended and was a speaker at the 1st International conference on mTBI and PCS in Vancouver this past week. There was some exciting news for hope of recovery. Key factors are getting restorative sleep, exercise, nutrition and diet, attitude and use of proper diagnosis using some excellent imaging techniques, such as SWI MRI and PET Scans, of course funds for treatment ( healthcare-which has affected all of us) and the use of neurofeedback and biofeedback for recovery along with grieving the loss of your prior self.

I presented my recovery story and how hope and grieving are essential factors of recovery.

Once I get over my jet lag, I will be writing more on my blog on **

As a survivor of a stroke and 3 Traumatic brain injuries, I can attest there is hope. My focus was we might have a disability is some areas, we just need not be handicapped by them. There is a Way.




Quote:
Originally Posted by vini View Post
Please use this thread, to post success story's of your or people you know, or have heard about, that have recovered from TBI PCS to give hope and encouragement, to suffers and there family's

Thank You
Dr. Diane is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bellbird (12-27-2019), Concussed Scientist (03-06-2010), JuliaBertha (07-30-2014), Lolo82 (06-26-2014), MommaBear (07-18-2012), Mrs-B (08-18-2012), vini (12-31-2009)
Old 08-19-2009, 01:43 AM #7
Dmom3005 Dmom3005 is offline
Legendary
 
Join Date: Aug 2006
Location: Indiana
Posts: 13,019
15 yr Member
Dmom3005 Dmom3005 is offline
Legendary
 
Join Date: Aug 2006
Location: Indiana
Posts: 13,019
15 yr Member
Default

Many of the oldies know me. And I am still around to try and answer questions. But my story hasn't ended to the degree we would hope.

But lots of my TBI and PCS has gone away, but I'm not sure how many
I've had. I really had no clue as a yound adult that I was suffering from
these at sometimes. I can count at least 7 times that I've suffered these
in my years.

Each time the recovery has been longer, and less is back to the same. But
to know that it will get better, is a saving grace. I know that headaches
and whiplash are always connected. But the rest is what ever choses to
come.

Having gone through some vision retraining has helped to lower the amount
I have to look forward too. Thankfully I located this doctor and he not only
took away the migraines but also helped with a reaccuring problem.

There is always hope.

Donna
Dmom3005 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Lara (09-02-2014)
Old 03-06-2010, 02:22 PM #8
Concussed Scientist Concussed Scientist is offline
Member
 
Join Date: Jul 2009
Location: England
Posts: 150
10 yr Member
Concussed Scientist Concussed Scientist is offline
Member
 
Join Date: Jul 2009
Location: England
Posts: 150
10 yr Member
Default 1st mTBI & PCS conference

I'm just glad that there was a 1st mTBI & PCS conference.
But then I thought, "The First! There has never been a conference on this subject before!"
Seems incredible, seeing so many people are affected.
About time.
CS

Quote:
Originally Posted by Dr. Diane View Post
I attended and was a speaker at the 1st International conference on mTBI and PCS in Vancouver this past week. There was some exciting news for hope of recovery. Key factors are getting restorative sleep, exercise, nutrition and diet, attitude and use of proper diagnosis using some excellent imaging techniques, such as SWI MRI and PET Scans, of course funds for treatment ( healthcare-which has affected all of us) and the use of neurofeedback and biofeedback for recovery along with grieving the loss of your prior self.

I presented my recovery story and how hope and grieving are essential factors of recovery.

Once I get over my jet lag, I will be writing more on my blog on **

As a survivor of a stroke and 3 Traumatic brain injuries, I can attest there is hope. My focus was we might have a disability is some areas, we just need not be handicapped by them. There is a Way.

Concussed Scientist is offline   Reply With QuoteReply With Quote
Old 06-29-2010, 03:17 AM #9
lennynsherry lennynsherry is offline
New Member
 
Join Date: Jun 2010
Location: oregon
Posts: 5
10 yr Member
lennynsherry lennynsherry is offline
New Member
 
Join Date: Jun 2010
Location: oregon
Posts: 5
10 yr Member
Default

I'm currently in Vancouver visiting. Tomorrow I head back to southern Oregon... tonight I sat up seeking ways to help myself regain/find what has been lost thes past 8 months since a wind gust pulled a tree off the side of a cliff and onto my head. Before PCS devasted my day to day life. Do I press on, forcing myself to try and do as much as I use to? Do I slow down or stop and let my brain regroup? Take meds? Take nothing? I'd just like somebody who's been here to give me counsel...
lennynsherry is offline   Reply With QuoteReply With Quote
Old 01-13-2010, 01:59 AM #10
newt newt is offline
New Member
 
Join Date: Jan 2010
Posts: 1
10 yr Member
newt newt is offline
New Member
 
Join Date: Jan 2010
Posts: 1
10 yr Member
Thumbs up 13 yr OLD BOY MUCH BETTER AFTER 11 WEEKS

I wanted to post this to offer support to all those who are going through what my son dealt with this Fall. After accidentally hitting his head on the ground during football practice, my 13 yr old did n;t tell anyone for 24 hours until his headache was so bad he couldnt read or tolerate light. He was diagnosed with a concussion and told it would clear up in 1 -2 weeks. Well after two he was still home from school and still unable to read or tolerate light or noise. It was terrifying and isolating. We lived like ferrets underground with the lights off and I would read to him by flashlight.
Slowly the headaches diminshed, they would re appear if he read or watched too much tv. No computers. Car sickness. No school work. After six weeks he still had lingering symptoms, though improved. It took a total of 11 weeks for his symptoms to disappear. We still have anxiety they will pop up, but he can finally run and jump and seems to be clear.

Find a good doctor, one who can administer the IMPACT test, an orthopedist, not necessarily a neurologist, who may not ahve experience with athletes.

Make sure to be evaluated for vestibular damage as well.

My son didn't like the elavil, it worked on the headaches, but it made him feel sad and out of it, so we dropped it. But it works for many.

Be patient.
newt is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Concussed Scientist (03-06-2010), concussionkate (01-14-2010), Mrs-B (08-18-2012), MsRriO (02-25-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:38 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.