Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-16-2014, 11:39 PM #1
Mark in Idaho Mark in Idaho is offline
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LisaLucille,

Welcome to NeuroTalk. The stickies are not followed nor intended for discussions. If you have questions, you will get better responses by starting a new thread in the main forum.

It sounds like you need help with understanding your daughter's injury, treatment and condition. Please post some details of her injury and such in the main forum so we can offer you support. Use the New Thread button at the top left to start a thread about your daughter.

My best to you and your daughter.
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"Be still and know that I am God" Psalm 46:10
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Old 06-11-2014, 12:08 PM #2
Tom from Queens Tom from Queens is offline
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Default Maybe not 100% recovered, but definitely healed...

I sent the following email to my friends; I thought I'd share it with the board:

"I resumed reading Shakespeare (Henry IV, Part 1), after being unable to do so because of reading comprehension difficulties (especially fiction and other metaphor-laden material) for the past 16 months.

Reading Shakespeare again had been one of recovery goals.

And here it is.

So very very happy!!!"
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What happened: in February of this past year, I suffered a fall. Though I did not hit my head, I came within three or four inches of hitting the ground, and the whiplash/ coup countercoup has caused lingering concussion symptoms.

I have had five or six prior head injuries, most of which completely healed within a few weeks, though one took about three months.

When I get my most depressed, I remember that I could have killed myself, which would have been far worse than anything I have gone through. June and July of 2013 were the absolute worst.

I have managed to keep my job in a field that demands a lot from my brain, though I do get cognitively tired very easily, and have some problems with reading comprehension and short-term memory, though some days I feel close to my pre-injury self.

The headaches of the Summer are gone (mainly) and I drink a lot of water and rest more than before.

I am on a supplement regimen, and that has helped; probably the medical intervention that helped the most were seven chiropractic manipulations of my neck in June and July.

I am fearful that I will be slightly brain damaged the rest of my life, but I am determined to enjoy the same things I enjoyed before, and I, even on days that I despair, know that the odds are with me.
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Old 06-29-2014, 08:39 AM #3
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I still have a long way to go in my recovery, but things are getting better. I want to share something that happened today that made me really happy, plus a little background info:

Before the concussion, I was a full-time writer with a heavy workload. Writing was very easy for me, and I made decent money doing it.

After the concussion, my client list got smaller and smaller. I went from making $350+ a day to struggling to finish $20 of work. I would cry because my head would throb as I attempted to read the detailed project instructions from my clients. I could no longer comprehend most of the project descriptions, and I'd spend hours doing tasks that used to take me 15 minutes.

I'm working on a big project now for a well-known retailer. This retailer is known for being extremely picky, and I was terrified to begin the project. I know a few other writers who had work rejected by this client.

I finished up most of the project yesterday, and I found it easy. And fun! That's a big deal for me these days.

I woke up this morning to a message stating that I did a good job. Wow! I couldn't believe it.

I will say that my neck is now killing me and I am typing with one eye closed lol, but knowing that I am able to do my job well again makes me incredibly happy. I feel like I will be able to have a full-time writing career again in the future.
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Old 08-27-2015, 01:01 PM #4
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Default pcs

Quote:
Originally Posted by PCSMom View Post
Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
A Mom going thru the same horrible ordeal. What helped the most?
Karen
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Old 11-03-2023, 06:48 PM #5
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Quote:
Originally Posted by PCSMom View Post
Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
Thanks for sharing your story. I am in the same boat with post concussive symptoms for 7 months. May I ask what helped her heal? How did she deal with setbacks?
Thanks!
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Old 08-18-2009, 09:17 PM #6
Dr. Diane Dr. Diane is offline
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Default Results from 1st mTBI & PCS conference-Vancouver

I attended and was a speaker at the 1st International conference on mTBI and PCS in Vancouver this past week. There was some exciting news for hope of recovery. Key factors are getting restorative sleep, exercise, nutrition and diet, attitude and use of proper diagnosis using some excellent imaging techniques, such as SWI MRI and PET Scans, of course funds for treatment ( healthcare-which has affected all of us) and the use of neurofeedback and biofeedback for recovery along with grieving the loss of your prior self.

I presented my recovery story and how hope and grieving are essential factors of recovery.

Once I get over my jet lag, I will be writing more on my blog on **

As a survivor of a stroke and 3 Traumatic brain injuries, I can attest there is hope. My focus was we might have a disability is some areas, we just need not be handicapped by them. There is a Way.




Quote:
Originally Posted by vini View Post
Please use this thread, to post success story's of your or people you know, or have heard about, that have recovered from TBI PCS to give hope and encouragement, to suffers and there family's

Thank You
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Old 08-19-2009, 01:43 AM #7
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Many of the oldies know me. And I am still around to try and answer questions. But my story hasn't ended to the degree we would hope.

But lots of my TBI and PCS has gone away, but I'm not sure how many
I've had. I really had no clue as a yound adult that I was suffering from
these at sometimes. I can count at least 7 times that I've suffered these
in my years.

Each time the recovery has been longer, and less is back to the same. But
to know that it will get better, is a saving grace. I know that headaches
and whiplash are always connected. But the rest is what ever choses to
come.

Having gone through some vision retraining has helped to lower the amount
I have to look forward too. Thankfully I located this doctor and he not only
took away the migraines but also helped with a reaccuring problem.

There is always hope.

Donna
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Lara (09-02-2014)
Old 03-06-2010, 02:22 PM #8
Concussed Scientist Concussed Scientist is offline
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Default 1st mTBI & PCS conference

I'm just glad that there was a 1st mTBI & PCS conference.
But then I thought, "The First! There has never been a conference on this subject before!"
Seems incredible, seeing so many people are affected.
About time.
CS

Quote:
Originally Posted by Dr. Diane View Post
I attended and was a speaker at the 1st International conference on mTBI and PCS in Vancouver this past week. There was some exciting news for hope of recovery. Key factors are getting restorative sleep, exercise, nutrition and diet, attitude and use of proper diagnosis using some excellent imaging techniques, such as SWI MRI and PET Scans, of course funds for treatment ( healthcare-which has affected all of us) and the use of neurofeedback and biofeedback for recovery along with grieving the loss of your prior self.

I presented my recovery story and how hope and grieving are essential factors of recovery.

Once I get over my jet lag, I will be writing more on my blog on **

As a survivor of a stroke and 3 Traumatic brain injuries, I can attest there is hope. My focus was we might have a disability is some areas, we just need not be handicapped by them. There is a Way.

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Old 06-29-2010, 03:17 AM #9
lennynsherry lennynsherry is offline
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I'm currently in Vancouver visiting. Tomorrow I head back to southern Oregon... tonight I sat up seeking ways to help myself regain/find what has been lost thes past 8 months since a wind gust pulled a tree off the side of a cliff and onto my head. Before PCS devasted my day to day life. Do I press on, forcing myself to try and do as much as I use to? Do I slow down or stop and let my brain regroup? Take meds? Take nothing? I'd just like somebody who's been here to give me counsel...
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Old 01-13-2010, 01:59 AM #10
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Thumbs up 13 yr OLD BOY MUCH BETTER AFTER 11 WEEKS

I wanted to post this to offer support to all those who are going through what my son dealt with this Fall. After accidentally hitting his head on the ground during football practice, my 13 yr old did n;t tell anyone for 24 hours until his headache was so bad he couldnt read or tolerate light. He was diagnosed with a concussion and told it would clear up in 1 -2 weeks. Well after two he was still home from school and still unable to read or tolerate light or noise. It was terrifying and isolating. We lived like ferrets underground with the lights off and I would read to him by flashlight.
Slowly the headaches diminshed, they would re appear if he read or watched too much tv. No computers. Car sickness. No school work. After six weeks he still had lingering symptoms, though improved. It took a total of 11 weeks for his symptoms to disappear. We still have anxiety they will pop up, but he can finally run and jump and seems to be clear.

Find a good doctor, one who can administer the IMPACT test, an orthopedist, not necessarily a neurologist, who may not ahve experience with athletes.

Make sure to be evaluated for vestibular damage as well.

My son didn't like the elavil, it worked on the headaches, but it made him feel sad and out of it, so we dropped it. But it works for many.

Be patient.
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