NeuroTalk Support Groups - posts on hope and healing

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- Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)

- - posts on hope and healing (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/78902-posts-hope-healing.html)

Quote:

Originally Posted by GA2012 (Post 858073)

I found a site on photophobia and PCS. I contacted the individual that posted the information. He e-mailed me back and referred me to individuals that did similar work. After 5 months of questions, a few conversations, a little persistence, and some humility by not demanding help, just asking for help, I was able to get a binocular eye exam.

Can you share this Web site?

Quote:

Originally Posted by Matt in Texas (Post 856885)

Hey friends, I am new to this board. I have been going through PCS for almost a year now (March 3 will be the anniversary of the day I hit my head). I am a preacher so this has really shaken me and has utterly brought me to the depths of despair. It started a week after I hit my head. I would describe it as hell on Earth. I had extreme anxiety, depression, migrane headaches, OCD, confusion, no good feelings, and horrible thoughts. I had the words of Jeremiah the prophet,"Cursed is the day that I was born" in my heart. It got so bad that this past month I almost died. The doctor told me on February 1, 2012 that my body entered flight or fight mode, 24/7, even when I slept. He said that I had to literally reverse the chemicals in my brain, regenerate dead brain cells and neurotransmitters. However, he did say that I was going to live and talk about this one day. They wanted to put me on prozac, but, I did research on it and decided not to. I was at my wits end and last hope. I decided to do my healing the natural way. I stopped eating fast food, processed food and red meat. I started eating everything organic and researched brain super foods that brought healing to the brain. Within three days, I saw a significant difference. Then I added all natural raw milk to my diet. I read that raw milk is actually nature's perfect food and regenerates brain cells. You just have to find a farm that has a license to sell it. Just a few days after that I had everything get better. I also added working out to my regime. The brain needs blood flow to heal so working out helps alot. I also only drink Alkaline water. I am taking Beyond Omega-3 Better brain Vitamins from Garden of Life, B-complex and St. John's wort. I also take RAW Meal Supplement by Garden of Life. I am now on day 28 of actually doing something to get better and now everything is getting better. I am dealing with the OCD part of this still, although it has slowed down tremendously. I know that I am going to get fully healed in the next month. God is faithful. I thank Him for showing me the way to get healed.

Your diet has a huge role in your healing. Many of the processed foods have chemicals in them that alter and damage brain function. Stay away from things with MSG and high-fructose corn syrup. Really, anything artificial well not do well for your brain. Anyone who has an ear let them hear.

I am not a doctor. Just one who seeks the truth in everything and a fellow sufferer of the horrible post-concussion syndrome. May Christ be with you in the time of sufferings.

I went to the Natural Health Improvement Center today. The doctor said that my scans and everything came out confirming my symptoms. He gave me 6 natural whole food supplements to help my healing out. Enzycore, Inositol, Mintran, Neuroplex, Parotoid, Wheat Germ Oil. He said I had to detoxify my bad chemicals in my body that I have stored up over the years and store in new ones. He put me on a 12 week program, but since I have already doing the food side of it for a month it might not take that long. Also, he told me to make sure that I get all my whole food supplements and to stay away from "over the counter vitamins" because since they are not made from whole foods, they lack the essential synergistic elements normally present in whole foods. Last year today was the day I hit my head, I can say that today has been the best day ever since and I am continuing to prove. Honestly, It feels like I am being reborn and nit back together day by day. I actually feel like I have to get use to reality because I was so depersonalized for along time, it felt like I wasn't ever going to be better. But the enemy is the father of all lies. God is faithful and showing His grace to me by healing me with His creation. I hope this helps all those who are hurting from this horrible pain.

"Let us hold fast to our confession, for He who promised is faithful." Hebrews 10:24

"The one sitting on the horse is called Faithful and True!" Revelation 19:11:)

Here's a look back at where I am now, fourteen months after my initial injury. Improvement is there, slow but certain, even if there is still a long way to go!

http://eowynridesagain.wordpress.com...ot-all-better/

Christ's peace be with you, too, Matt, and all of God's children. If it weren't for my faith, I don't know how I could function at all. I think the worse thing with any brain or body "injury" is when you can only think of yourself all the time, which makes me feel separated from God, although I know He is still there, but I cannot get through this private hell on earth to feel connected in the same way I used to. I am glad you are feeling better. This is my first post. My accident was in August 2010, and my PCS symptoms have been ongoing since then (however I didn't know for sure that is what it was--I found out over a year later that I was evaluated and told so at hospital, but of course I had no memory of that, nor did my regular doctors receive anything from trauma center I was in). This thread seems to be positive which is great, so I will say no more than the one thing that has helped me is energy therapy (similar to acupuncture).

18 months and personal growth

My accident was 18 months ago, and I have so many reasons to be grateful.

I have been back at work and driving for nearly a year. My previously diagnosed cognative deficits have now faded, to where I can contribute at work, and outside of work.

I have discovered a new sense of gratitude; thanks to all who who helped my recovery, from the surgeons who saved my life and enabled me to walk again, to the rehab doctors and therapists who helped me regain my cognative functions, to the familly and friends who prayed, gave encouragment, support, and were patient with me as I was recovering.

My accident/TBI will always be a defining event in my life. My prayer and hope for all with TBI is that your recovery also has a positive outcome.

Prayers and hugs to you all.

:grouphug:

My Husband Miracle Recovery.

On July 11, 2011 my Husband (22 yrs old) of only 7 months suffered a Severe traumatic Brain Injury as a result of a motorcycle accident that was not his fault. Along with multiple severe fractures he was diagnosed with Severe Diffuse Axonal Injury, which is shearing, tearing, swelling, to the entire brain. The Severe label means his mid brain has been damaged. 90% of people with this injury never wake up and the 10% that do cannot communicate, understanding, or perform any independent life activities. Less than 5% of people regain any type of independence. We were told to remove him from life support after 9 days in ICU. I didn't and it took him 3 months in a coma to start emerging! Now, 11 months since his accident, and only 8 months out of a 3 month coma Matthew will be walking independently any day now! He can talk, eat, pee, laugh, joke, REMEMBER THE ACCIDENT, remember all his long term memories, and his short term memories have been coming back everyday, he tells time, watches movies, plays games, is a romantic, writes in his journal, and texts on his phone. His personality has not changed at all!!! For something that started with so much despair I cannot help but feel eternally grateful. Matthew is a true miracle, science said it is impossible, that he should not be doing any of this. THERE IS HOPE! MIRACLES DO HAPPEN! DO NOT GIVE UP! It has been and will continue to be a long road but it is worth taking. *edit*

Quote:

Originally Posted by PCSMom (Post 473144)

Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.

I am in a similar situation to your daughter right now, being 17 with a tbi. Was there ever a time where it was not getting any better or any worse? Did it eventually continue to progress even after a year (or in her case 2.5). Thanks so much for your post, I really need to know others had made it out the other end even after a long time! :)

I hope you've recovered?!

my concussion story

I am 17 years old and in my junior year of high school. I have suffered around 6 minor concussions playing football, the last of them being the worst. In this last one, I believe I got a concussion one day in practice and then continued to play for about a week, receiving hard blows throughout that week. I have had a constant headache and dullness for 5 months now. It has become very depressing and I am worried that it will not go away. I've been to several doctors who tried prescribing medicine but none of it helped. If anyone has a similar story please share!
thanks

Opportunity to share

Last week, out of the blue and coming up on two years after my accident, I received a call from the trauma surgeon whose team put me back together after my accident November 2010.

I’ve been asked to speak at the “Miracle Tour” medical conference at St. Joseph’s hospital in Phoenix next March. The audience will be doctors and other medical professionals, hospital staff, community leaders, and donors. While realizing this is partly a fund raiser, I'm nonetheless grateful to be able to give back a little to the hospital and doctors that saved my life and facilitated my TBI recovery.