Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-17-2010, 02:23 PM #1
Mark in Idaho Mark in Idaho is offline
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newt,

What value did you find in the ImPACT test? Did the doctor use it to determine a treatment regimen?

Has your son has any imaging done?

Has he returned to play?
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Old 01-21-2010, 07:37 PM #2
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Default Donny Winn website

Donny himself is interesting, atleast to me because I see some correlation in my experience. There are also a lot of good links to helpful info. Thought it might help someone. There are also people who post there with PCS.

www.donnywinn.com/
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Old 11-14-2013, 12:52 PM #3
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Was he out of school the whole time? If not, how did he manage school homework etc while recovering?
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Old 06-22-2011, 12:47 PM #4
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Default There IS Hope!!!

I would just like to share with you that a dear friend of mine suffered a severe tbi 10 years ago. She was affected so badly by this that she forgot how to drive and completely forgot everything about the life she had before. Now she is driving, typing, and has made a great life for herself. Just know that there is hope in any situation. It just takes action a prayer, faith anf patience. My thoughts and prayers go out to everyone out there.

~Jenna
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Old 03-04-2012, 11:44 PM #5
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Default Research, rest, research, rest.......... answers will come.....

It does get better!!! My symptoms are all related to my eyes.

I did extensive research all over the internet to find a answer. I figured if I could solve the problems with my eyes the rest would take care of itself.

I found a site on photophobia and PCS. I contacted the individual that posted the information. He e-mailed me back and referred me to individuals that did similar work. After 5 months of questions, a few conversations, a little persistence, and some humility by not demanding help, just asking for help, I was able to get a binocular eye exam.

They placed prisms in my glasses and 10 days later I actually have periods in a day without headaches. I have to rest when they act up and be smart about what I do, but it is getting better - Finally Relief!!!!

Don't give up, the answers are there on forums like this and all over the internet, just have to be persistent and patient - it does work itself out once you find the answer that works for you. The key is what works for the person because no one is the same. Figure that out and you start to make progress.
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Old 03-05-2012, 12:03 PM #6
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Quote:
Originally Posted by GA2012 View Post
I found a site on photophobia and PCS. I contacted the individual that posted the information. He e-mailed me back and referred me to individuals that did similar work. After 5 months of questions, a few conversations, a little persistence, and some humility by not demanding help, just asking for help, I was able to get a binocular eye exam.
Can you share this Web site?
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Old 05-29-2012, 10:07 AM #7
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Default 18 months and personal growth

My accident was 18 months ago, and I have so many reasons to be grateful.

I have been back at work and driving for nearly a year. My previously diagnosed cognative deficits have now faded, to where I can contribute at work, and outside of work.

I have discovered a new sense of gratitude; thanks to all who who helped my recovery, from the surgeons who saved my life and enabled me to walk again, to the rehab doctors and therapists who helped me regain my cognative functions, to the familly and friends who prayed, gave encouragment, support, and were patient with me as I was recovering.

My accident/TBI will always be a defining event in my life. My prayer and hope for all with TBI is that your recovery also has a positive outcome.

Prayers and hugs to you all.

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What Happened: On November 29, 2010, I was walking across the street and was hit by a light rail commuter train. Result was a severe traumatic brain injury and multiple fractures (skull, pelvis, ribs). Total hospital stay was two months, one in ICU followed by an additional month in neuro-rehab. Upon hospital discharge, neurological testing revealed deficits in short term memory, executive functioning, and spatial recognition.

Today: Neuropsychological examination five months post-accident indicated a return to normal cognitive functioning, and I returned to work approximately 6 months after the accident. I am grateful to be alive and am looking forward to enjoying the rest of my life.
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Old 06-19-2012, 07:45 AM #8
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Default My Husband Miracle Recovery.

On July 11, 2011 my Husband (22 yrs old) of only 7 months suffered a Severe traumatic Brain Injury as a result of a motorcycle accident that was not his fault. Along with multiple severe fractures he was diagnosed with Severe Diffuse Axonal Injury, which is shearing, tearing, swelling, to the entire brain. The Severe label means his mid brain has been damaged. 90% of people with this injury never wake up and the 10% that do cannot communicate, understanding, or perform any independent life activities. Less than 5% of people regain any type of independence. We were told to remove him from life support after 9 days in ICU. I didn't and it took him 3 months in a coma to start emerging! Now, 11 months since his accident, and only 8 months out of a 3 month coma Matthew will be walking independently any day now! He can talk, eat, pee, laugh, joke, REMEMBER THE ACCIDENT, remember all his long term memories, and his short term memories have been coming back everyday, he tells time, watches movies, plays games, is a romantic, writes in his journal, and texts on his phone. His personality has not changed at all!!! For something that started with so much despair I cannot help but feel eternally grateful. Matthew is a true miracle, science said it is impossible, that he should not be doing any of this. THERE IS HOPE! MIRACLES DO HAPPEN! DO NOT GIVE UP! It has been and will continue to be a long road but it is worth taking. *edit*

Last edited by Koala77; 06-19-2012 at 07:56 AM. Reason: NT guidelines
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Old 04-01-2018, 04:27 PM #9
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Quote:
Originally Posted by djoseydavis View Post
On July 11, 2011 my Husband (22 yrs old) of only 7 months suffered a Severe traumatic Brain Injury as a result of a motorcycle accident that was not his fault. Along with multiple severe fractures he was diagnosed with Severe Diffuse Axonal Injury, which is shearing, tearing, swelling, to the entire brain. The Severe label means his mid brain has been damaged. 90% of people with this injury never wake up and the 10% that do cannot communicate, understanding, or perform any independent life activities. Less than 5% of people regain any type of independence. We were told to remove him from life support after 9 days in ICU. I didn't and it took him 3 months in a coma to start emerging! Now, 11 months since his accident, and only 8 months out of a 3 month coma Matthew will be walking independently any day now! He can talk, eat, pee, laugh, joke, REMEMBER THE ACCIDENT, remember all his long term memories, and his short term memories have been coming back everyday, he tells time, watches movies, plays games, is a romantic, writes in his journal, and texts on his phone. His personality has not changed at all!!! For something that started with so much despair I cannot help but feel eternally grateful. Matthew is a true miracle, science said it is impossible, that he should not be doing any of this. THERE IS HOPE! MIRACLES DO HAPPEN! DO NOT GIVE UP! It has been and will continue to be a long road but it is worth taking. *edit*

My dad has a Diffuse Axonal Injury too. He is 6 months out from his accident and he is going though pretty intense agitation and aggression. Did your husband go through this? We are going on 2 months of waiting for him to get through this phase. It’s incredibly difficult! I am so happy that your husband has made such great progress and recovery!
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Old 04-01-2018, 10:46 PM #10
Mark in Idaho Mark in Idaho is offline
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Shea,

Welcome to NeuroTalk.

Please start a thread in the main forum below where you can ask your questions. The stickies are not for discussions. djoseydavis has not posted in over 5 years.
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