Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-29-2016, 08:46 PM #121
Mark in Idaho Mark in Idaho is offline
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It is great to hear your son found relief for his specific condition. Carrick Chiro does not help every one as many have discovered.

I hope you have taken him out of sports where he risks another impact to his head. At his age, his brain is very susceptible to injury that can have long term or permanent consequences.
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Old 01-30-2016, 07:10 PM #122
NeverGiveUp4MySon NeverGiveUp4MySon is offline
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Quote:
Originally Posted by Mark in Idaho View Post
It is great to hear your son found relief for his specific condition. Carrick Chiro does not help every one as many have discovered.

I hope you have taken him out of sports where he risks another impact to his head. At his age, his brain is very susceptible to injury that can have long term or permanent consequences.
Thank you for reading my ridiculously long post! Yes, we have. I actually feel like that is a whole grieving process is in itself. A big part of his identity was his sport and his team. He is an athlete--that will not change. We just need to find how to channel that energy and his competitiveness in a different way. Makes me very sad that he has to deal with this at such a young age. Just appreciating where he is at right now and how far he has come.

He has been going to a strength/conditioning group training for a month now that he loves and sets small goals for himself there. He has built his core strength back up doing this and feels great. Our biggest challenge now is getting him to make good choices in everyday situations. Doing that with a 12 year old is very difficult!

I did have to share what worked for us. While I have read that it doesn't work for everyone, I know that it worked for my son (whose worst issues were vestibular) The difference in therapy and seeing how fast he responded to Dr. Carlson was fascinating to see. I can't pretend to understand it, but I know that she is the reason I have my son back--happy, healthy and thriving again. And it was local enough for us to give it a shot. Don't know where we would be right now if it weren't for her.
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Old 01-31-2016, 01:07 AM #123
Mark in Idaho Mark in Idaho is offline
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Never Give up,

It would be great if you would start a thread in the main forum so we can discus some issues. I wish I and my mother had the information that is available to you regarding concussions. My first bad concussion was in 1965 at 10 years old when I lived in New Hampshire.
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Old 01-31-2016, 07:38 PM #124
NeverGiveUp4MySon NeverGiveUp4MySon is offline
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Originally Posted by Mark in Idaho View Post
Never Give up,

It would be great if you would start a thread in the main forum so we can discus some issues. I wish I and my mother had the information that is available to you regarding concussions. My first bad concussion was in 1965 at 10 years old when I lived in New Hampshire.
I'm so sorry to hear that. I have read posts by you and understand that you have had several head injuries. I had no idea your first was at such a young age. And in NH to boot... My son was actually 11--his concussion was exactly one week before his 12th birthday. I will post my original post in a new thread on the main forum.
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Old 02-01-2016, 03:55 PM #125
seth8a seth8a is offline
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Seth8a,

Its really interesting what you mention about a small glass of wine or a beer. Alcohol for me has been one of my most anxiety inducing things since injury. I felt a lot better 3 months post injury and then went clubbing, drinking heavily with my friends, and going out on weekends. After about a week or two of that my symptoms came back and have been here to stay ever since.

I wonder now if my anxiety over not having a drink is almost counter productive and if I were just to relax and allow myself to have a little bit after work like a small glass of wine or like half a beer if that would get rid of that anxiety association and would let me just chill out about the whole thing. If you think about the amount of alcohol I am actually intaking with half a beer I can't imagine that the brain is going to be THAT sensitive to such a small amount of alcohol. Especially if I'm not drinking on an empty stomach or really quickly or something like that.

Have any thoughts on that?
Sorry to miss this--I am seldom on NT anymore. Yes, I think you are over-thinking this, actually. Definitely one drink would not hurt you--unless you have a problem with alcohol. The odd thing for me is that I always had trouble with alcohol in moderation--that is until I started having a drink once a night about 7 months after my injury. I cannot drink more than one. However, this must be said that I did not drink for the first 7 months of my recovery, and was a non-drinker for several years even before my accident. But my brain chemistry seems to have changed, a lot more sensitive in some ways.

Hang in there! You'll get better. By the way, I found a lot of good healing went on after I stopped being on NT so much and once you've gleaned all you can from this site--I really suggest anyone to look to other places for succor and advice. I was helped hugely here--but it can become an obsession after awhile.

Take care.
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Nick21 (02-05-2016)
Old 11-03-2016, 07:28 PM #126
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I just wanted to post to help new people. I am nine months out. After the drs said it was ok, I did a lot of running and walking and was in the gym , am in the gym a lot. I also took fish oil.

I am not at the same level I was but I am not sad anymore. I was so depressed I almost ended my life, but now I do find that I can take advantatge of those shifting emotions to be happy......

There is recovery. the headaches are way down, too.
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thorx89 (11-06-2016)
Old 11-08-2016, 10:05 AM #127
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Default 15 months later...

After 4 months off of work, (3 months after the initial accident, I didn't know what was going on until I saw the 3rd neurologist who explained PCS to me), months of vestibular rehabilitation therapy, and hours of my life wasted crying and being frustrated, I can say that I feel a lot better. I'd say at this point in time I'm about 90% better.

You just need to let it run it's course and make your health a priority. That's it.

The light sensitivity and noise sensitivity persists, however I am not ridden with fear every time that I need to leave the house. Would more time off from work and an immediate leave of absence been helpful? Absolutely, but do what you can. Rest as much as possible and you'll get better.

One of the most helpful things to do: when the dizziness was severe and I had a hard time watching Netflix - play it in the background but focus on something like knitting, it has a very therapeutic effect.

Good luck to everybody and I'm sorry that you're experiencing symptoms of PCS.
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Old 11-12-2016, 07:33 AM #128
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Default No need to worry...You can do this!

I first posted on this site sometime around July-August 2015

Short story - I've been involved in martial Arts for 18 years, relocated to a new city, eventually joined a local Muay Thai Gym and the evening of July 2nd 2015 was a brutal sparring session / all-out war July. My pride and fighting spirit kept me in the ring and out of work/life for 3-4 months aftewards.

The situation was worsened because the doctors wanted to pin the whole thing on a previous diagnosis of severe depression which I had recovered from. They did a good job of convincing themselves (but not me) that this literal overnight, significant drop in my high mental functioning and energy levels had zero to do with being hit hard in the head 15-20 times by guys as much as 40kg heavier than me. I was around 82kg and very dehydrated - which increases the % risk of brain trauma.

Funny how I got to the 3 months stage and suddenly I had my brain back in some semblance of working order. I know how depression affected me in this past and this recovery did not fit with me, however I was over the moon regardless!

Concussion is still not fully accepted by many medical professionals, largely due to ignorance, its an emerging area of medical science, so go with your gut and know there is hope and a better life waiting for you on the other side.



"As long as you're breathing, you still have a chance"



At my lowest point, hope was all but gone, I thought I was finished, ruined by my own personal choices in deciding to pursue martial arts etc etc, a mental vegetable with all his hopes and dreams shattered... yet, deep down inside, although severley diminished to a mere tiny flicker. the flame had not yet gone out... and thats what YOU need to hang on to. Most concusssions, like storms, are time-limited events, horrible at their most instense, however, every storm eventually blows itself out and gives way to a brighter day. So give yourself that chance, be patient and be kind to yourself - you've made it this far though the tough game of life, now is not the time for quitting.


I returned to work in Nov 2015 and I am performing better than at any point in my life - same as my workouts, fitness, energy levels and gym goals, all increased beyond previous expectations!!

I will never return to full contact sparring, which is a shame as I really enjoyed it, however, life and fulfilling my wider dreams is more important that donning a pair of gloves and beating the other guy's head in... all my martial arts training is not lost, as long we are prepared to accept our limitations, we can work around it. Intelligent risk management is key here.

So for those who have made it is this far, thats the motivational/mindset stuff done with... and I'll post below for practical tips for anyone who is interested

Last edited by Ady_P; 11-12-2016 at 08:15 AM.
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Old 11-12-2016, 08:21 AM #129
Ady_P Ady_P is offline
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Default Practical tips for concussion management and successful recovery

This what worked for me...

Firstly, hopefully your employer will give you time off or adjust your role significantly in the early recovery phase as your brain will simply lack the horsepower to do your normal job until all the electrical activity has settled. Expecting too much will end in dissappointment and negative self talk which will fuel the already rampant anxiety and feelings of depression typical after concussion

Get rest, minimal screen activity, limit book reading - soothing music is best, get out in to nature, or sit in the garden and breathe!

When you feel ready to exercise again - ease in gently, dont expect to be at your normal exercise levels, it aint gonna happen - reasearch shows the brain uses at least 25% of our entire energy resources when operating efficiently and at this point in time, it requires even more energy to carry out its repair duties - do not disturb, the workmen are busy, let them do their jobs!! As above, expecting too much will end in dissappointment and negative self talk which will fuel the already rampant anxiety and feelings of depression typical after concussion


Supplements:

Branched Chain Amino Acids - energy, alertness & cellular repair
L Glutamine - energy, alertness & cellular repair and immune booster
CoEnyzme Q10 - for energy; mitochondrial effects boosting supplement
Vitamin D
Vitamin B6 and B12, Vitamin E for assisting your brain's natural repair mechanisms
Acetylcholine-based supplement containing Lecithin to improve memory and brain electro-connectivity firing (careful with dosing)


Cranio Sacral Therapy

I stumbled across this after reading a story of this helping a mum's young daugher recover from concussion.

Definitely flls into the woo-woo category, however, I'm fairly sure this further helped because in the early stages of recovery, I was very prone/anxious about secondary impacts and experience a number of short-lived, anxiety provoking relapses after accidentally banging my head (car doors, low ceilings etc) where I believed I had lost my gains.

The theory is that CST relaxes the tense muscle tissue in the neck area that is common after whiplash, which helps optimum energy flow and relaxation of the muscles. Every time the body experiences a physical trauma it goes into shock and stiffens up as part of our ancient instinctive hard wired, protection mechanism.

It is also claimed it helps re-align the skull plates, not sure so on this one tbh but whenever I had a session, I definitely felt a shift in the neck and skull region. I used to have the sessions fairly often after secondary bumps, however, I have not had a session for months and no longer feel I need it.

Mind over matter?, new-agey unproven therapy? or currently unexplained human bio-mechanical energy science??

Whatever, it worked for me! All I would urge is try it at least once



I wish you good luck and may the untold power of the universe be with you during your inevitably successful recovery journey.
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Old 05-08-2017, 01:17 PM #130
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Default son has i prooved

Jason is my son hes 32 he was diognosed with tbi.the drs said he may never walk or talk.and id have ro change his depends all his life.ha he walks talks and its been 11 month.he has impeooved alot.he has ro relearn jt all.i have a hard time with worry thoe.when hes sad it makes me sas.he dont like living in a home.but im not trained hiw to deal with this
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