Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-07-2020, 11:40 PM #141
Acrobat Acrobat is offline
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Default Hope

Recently came across this thread. Thought I might be able to offer some encouragement as well. Thanks for this!
Below is my story....
There is hope. I believe you can heal and that post concussion syndrome can be overcome! The beginning rest period 3 days to 3 weeks+ along w neuro evaluation and vestibular PT are important as well as holistic treatments. The holistic approaches I recently began are actually at core of my recovery. With traditional medicine some recover within a few weeks to months. But others can suffer for years with debilitating headaches, mental fatigue, difficulty processing (listening/reading/writing) and sensory overload. I know the pain and awful dispair. For about 3 years I was around 10-20% functionality, with everything. I was unable to work, exercise, be around people, and even just thinking was painful. Significant emotional swings. The personal and family challenges were at critical levels. But I'm now functioning mostly between 70-90% and continue to progress. I feel you can recover as well. The nightmare black hole for patients of an invisible affliction I believe can be managed and overcome.

Yes everyone has a different experience and recovery can take time. But I would like to share my recovery experience and hope it makes a positive impact for you or someone you love. Please take a breath and know that in time I believe there is hope. For me and for many others I believe this awful PCS journey is actually a powerful way or sign that our intelligent bodies are calling out to us. To listen, to slow down and see that there might be something beautiful within this darkness that is being missed.
Now I'm not a very good writter but my intention is to begin sharing with you things that helped me. This first note is my chronological road with recovery catalysts (which I plan on adding to) and some personal background. This can be an up and down process for sure but I will share with you some experiences that can hopefully be helpful along your journey.

Like me many with PCS symptoms have had the run around from all types of doctors, medications, supplements, therapies and eye rolls. So let's begin by thinking outside the box of traditional medicine. Pause for a moment (regardless of religion and beliefs). What makes our organs function and bodies move? What energy souce keeps the earth spinning and the stars shinning? The there is an energy source that is all around us. This energy spark is within us all. Always remember patience, loving yourself, trust that your body has the ability to heal itself, become comfortable looking within and slowly letting go of fear and negative past experiences/emotional blockages and quieting your mind so you can listen to your true consciousness.

First Catalysts for recovery

1) Meditation. 30 -60min daily and several times a day if possible. I was new to this but introduced to the "headspace" app. This app is perfect for teaching concepts, encouraging and gently guiding beginners. Overtime you begin to quiet the mind chatter and observe that you are more than your thoughts. Over the course of a few weeks I found this to be extremely helpful in a number of areas such as bringing down powerful headaches, reducing anxiety and recovering from mental fatigue. Gradually I began expanding my consciousness above the mind and tapping into my true essence. The core energy that gives life to our mind and body.
More to be added...


2) Watch the documentary "Heal" 2017 available on many platforms like Netflix. Natural and alternative healing was foreign to me. It took me and my wife hitting rock bottom before exploring options other than conventional medicine. But being open to the unknown is so important. This documentary can begin to open your perspective and the doorway to a greater understanding of the self and healing. More to be added....

3) Physical therapy
Functional neurological chiropractor/ Suboccipital muscle message/trapezius muscle trigger point massage and stretches/neck stretches/Craniosacral therapy (certified)
These areas were helpful in managing symptoms.
A lacrosse ball. Brand I use is velocity. Great for rolling around neck. Laying on your back placing behind upper shoulders and traps. Can improve circulation and very helpful w headaches
More to be added...

4) Nutrition / hydration / exercise
Maintaining a healthy and balanced daily nutrition schedule. I was tested several times and never diagnosed for blood sugar conditions. But I found that symptoms can spike if there were gaps between meals, lack of sugar and dehydration. I found healthy snacks every couple hours as well as hydrating (50+ oz water daily). I found apples, dried mango slices, nuts and raisins to be very helpful as well as complete meals every 4-5 hours.
Exercise
Daily exercise and stretching. Doesn't have to be extreme. I started w light walking. Then biking and swimming. Now I've been alternating days w cardio, light strength training and a fun flexibility/stretch routine.
More to be added...


Background
I am in wealth management in the northeast US w my wife and two kids. I enjoy coaching and playing basketball and am an extrovert. I've had my share of ups and downs in life but my world completely stopped from November 2016 to end of 2019. I was in the PCS storm and basically was in a walking comma after falling off a porch and hitting my head on a driveway. Coaching kids basketball teams, working, volunteering, going to stores and restaurants, family and friend's functions were no more. Just to painful to experience and to mentally process.
I was seen by the best doctors and attended highly regarded PCS programs and clinics. I was seen by 7 neurologists including Penn medicine in Philadelphia, Columbia NYC, a John's Hopkins neuro ophthalmologist, a Harvard neurologist and an excellent neuromuscular and cardiovascular doctor in Canada. I had about 10 different types of medications, cognitive behavioral therapy, neuro feedback and a number of MRIs.
The game changer in my recovery began at the start of 2020. My wife (a senior scientist in the pharmaceutical industry) began exploring holistic energy healing since we had tried everything else. It was a gradual process but the unique combination of her strong scientific background and my faith we found a sound healing methodology.
More to be added...
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Old 12-15-2020, 01:27 AM #142
Acrobat Acrobat is offline
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Default Tbi pcs... Hope

Continue...
CBT is very helpful. Also you can look into concussion
Cognitive therapy. Therapy can be so helpful in recovery and coping. New York-Presbyterian Hospital/Weill Cornell Medical Center site describes this type of treatment philosophy.

I explored just about everything I could. I found treatment s that helped coping and managing but I kept looking for answers and ultimately found that the answers were not out "there" but actually within. Searching inside. Finding that beautiful place of love within that makes you who you are. Gradually shining your love throughout and filling the pain w love. Gradually Turning the darkness into light.
It took me some time to get it but meditation brings the awareness that will help in this healing process.

The book "Hands of light" by a NASA physicist Barbara Brennan is a tremendous guide for healing. A definite game changer for me.

I began viewing the terrible PCS symptoms as a natural part of the healing process. I feel that it's Similar to the aches and pain after a surgery or the recovery of a broken bone except w a TBI the sophisticated systems of the body are recalibrating. All the senses are going through a type of rebooting process. This delicate process requires patience, energetic balance and love.
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Old 11-03-2023, 06:48 PM #143
Jbshan5 Jbshan5 is offline
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Quote:
Originally Posted by PCSMom View Post
Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
Thanks for sharing your story. I am in the same boat with post concussive symptoms for 7 months. May I ask what helped her heal? How did she deal with setbacks?
Thanks!
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