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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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02-25-2009, 05:07 AM | #1 | |||
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Please use this thread, to post success story's of your or people you know, or have heard about, that have recovered from TBI PCS to give hope and encouragement, to suffers and there family's
Thank You
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the light connects the many stars, and through the web they think as one, like god the universe we learn about our self's, the light and warmth connect us, the distance & darkness keep us apart . vini . Last edited by vini; 02-25-2009 at 06:49 AM. |
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02-25-2009, 05:18 AM | #2 | ||
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One of my husband's work mates was knocked out when he was playing soccer a few months back. He actually clashed heads with another guy. He suffered PCS for about two/three months afterward. He isn't one to get too in depth with personal stuff, but he told my husband it was one of most horrible things he has experienced.
He has fully recovered. |
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"Thanks for this!" says: | DianeB (10-11-2015), JuliaBertha (07-30-2014), KimberlyDorsett (05-20-2017), Lebber (10-23-2017), LisaLucille (04-16-2014), pono (02-25-2009), thorx89 (08-24-2014), vini (02-25-2009), wishuloveb (07-14-2013) |
02-25-2009, 06:52 AM | #3 | |||
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Quote:
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the light connects the many stars, and through the web they think as one, like god the universe we learn about our self's, the light and warmth connect us, the distance & darkness keep us apart . vini . |
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02-25-2009, 07:16 AM | #4 | |||
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the hamster is now doing more shows than ever my daughter loves his kids shows, and even top gear I think she thinks he,s cute really
http://www.timesonline.co.uk/tol/news/article646322.ece https://www.express.co.uk/posts/view...-Hamster-back- http://www.manchestereveningnews.co....interview.html
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the light connects the many stars, and through the web they think as one, like god the universe we learn about our self's, the light and warmth connect us, the distance & darkness keep us apart . vini . |
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03-01-2009, 03:32 PM | #5 | ||
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Great idea, Vini. I'm so grateful to now be in the position of giving hope and encouragement. You can check my previous posts, but the upshot is that my 17 year old daughter is now fully recovered after severe PCS. It took over 2 1/2 years and all kinds of treatments (Effexor, acupuncture, homeopathy, osteopathy) and she is now a fully functional high school junior looking forward to college and living a full, healthy life. This forum was a lifesaver for me during times of deepest despair. Hang in there.
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"Thanks for this!" says: | blather44 (09-11-2018), DianeB (10-11-2015), Dmom3005 (08-19-2009), Jbshan5 (11-03-2023), JC1875 (10-10-2015), JuliaBertha (07-30-2014), Lara (03-21-2009), Laura Larson (01-25-2013), LisaLucille (04-16-2014), Lolo82 (06-26-2014), Mrs-B (08-26-2012), MsRriO (02-25-2013), Mystical (07-01-2015), Smayotte (02-19-2015), tbi_survivor (09-15-2015), Tralee (06-02-2011), vini (03-02-2009) |
04-05-2009, 09:09 AM | #6 | ||
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Hi everyone,
I ran across this thread and thought I should throw in my two cents. If you, or anyone you know, has incurred a head injury and you/he/she is not recovering, I would encourage you to look into neurofeedback. You can just google it and find all kinds of information about it. If you live in a big city, you will probably have dozens of therapists in your town who specialize in this. If not, you can also do it remotely with specialists such as Dr. Victoria Ibric or Dr. Diane Roberts Stoler. My quick story is that I incurred 6 concussions while playing rugby in college. I have been doing neurofeedback for a couple of years to relieve symptoms and I have made great gains thus far. If you have any specific questions, just let me know. Cheers, Mike |
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"Thanks for this!" says: | vini (04-07-2009) |
04-11-2009, 07:20 PM | #7 | ||
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Since having an all clear with the MRI and starting on Zoloft, I am starting to feel a bit more like myself again. I think that now that I have my stress and anxiety under control, I am allowing my mind and body to rest and recover. I have never been one to take prescription drugs easily, but I really do think that without the Zoloft I would have just spiraled into a very deep depression that I would not be able to get myself out of. At least now I have a bit of relief and a chance to recover.
Its been 3 & 1/2 months since my very minor head injury. I wish I started on this path 3 months ago!! Cheers, Nikki |
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"Thanks for this!" says: | adougall70 (12-13-2013), JuliaBertha (07-30-2014), lilyNYC (09-24-2015), LisaLucille (04-16-2014), Rahruwin (07-18-2017) |
05-21-2009, 06:02 PM | #8 | ||
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i very much appreciate all this hope and encouragement from all you guys. as a 17 year old and a sufferer of post concussion syndrome for almost two years it is giving me hope to just hang in there until it is all gone and better much thanks to you all!
-Kaylee |
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"Thanks for this!" says: | DianeB (10-11-2015), Dmom3005 (08-19-2009), KimberlyDorsett (05-20-2017), Laura Larson (01-25-2013), LisaLucille (04-16-2014), Lucy (05-21-2009), Mrs-B (08-18-2012), vini (05-25-2009) |
06-16-2009, 07:10 AM | #9 | ||
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Hi All,
I normally wouldn't divulge something like this on a public thread, but since we visit this to find solutions/success stories, I thought this would be appropriate. My story is the same as all of yours...multiple concussions, pcs, vertigo, sensitive head to bumps, etc., etc. I have tried a lot of different theraputic techinques and all of them have been beneficial in one area or the other with the exception of making my brain more resilient to light bumps on the head or slight whiplashes, etc. So, after a lot of extensive research and a lot of consideration, I decided to travel to China to receive stem cell therapy, which is where I currently am. And, by the way, you'll have to excuse me if this post doesn't read well, they have me on prednisone to suppress my immune system. Prednisone, if you aren't aware, is notirious for turning "normal brains" into "fuzzy brains." Anyway, it is too early to tell if anything substantial has happened yet. The docs say it can take between 3-9 months to get the full benefit of the therapy because that is how long it usually takes for the implanted cells to take root and divide. The cells also contain growth factors that naturally induce your own stem cells to begin repairing brain tissue, which also takes about 3-9 months to happen. There have been some improvements, but I want to wait until the 3-9 month mark before I make a final verdict (plus I'm also on other medication the docs here prescribed for me). So, I just thought that I would let you all know that this is another, albeit extremely expensive and very experimental, option for us in our roads to recovery. Also, I have learned about a couple of drugs on the market that are used in Europe and Asia very consistently to treat head injuries. Loads of research has been done on them and the results look very promising. The drugs are: Oxiracetum and Cerebrolysin. Just run a simple google search and you'll find tons of info on them. The docs here put me on Oxiracetum for the first 3 weeks and I am currently on Cerebrolysin. The Oxiracetum made a huge improvement, and I'm still waiting to see what the Cerebrolysin does. However, take this with a grain of salt since it's hard to tell what is going on since I'm on the prednisone. Well, thought I would just let you know about the three new treatments I discovered. If anyone has any questions, let me know and I'll somehow get you my email backchannel. Thanks, Mike |
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06-17-2009, 07:30 PM | #10 | ||
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After "lurking" on the board - and seeing all the negative information - I felt compelled to post. After a slip and fall at the airport 3 years ago, I struggled with horrible post-concussion syndrome for 13 months. After which - I made a FULL recovery. Six months ago, I banged my head on a radiator (freak accident) which again caused post-concussion syndrome. During both episodes, I visited the best doctors NYC has to offer to no avail. Time was the great healer - and I am again fully recovered. Folks who "get better" go off this board- but most do get better! I am happy, healthy, extremely high functioning married 36 year old woman with an MBA - and I got better - twice! There are obviously circumstances contrary to this, but to all newbies - you will recover.
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"Thanks for this!" says: | adougall70 (12-13-2013), AeroDan (07-12-2018), aireyden (01-06-2011), anon72814 (10-20-2013), Bellbird (12-27-2019), beta2011 (05-02-2011), bh_pcs (12-09-2011), BrainBoost7 (08-05-2017), budeb (03-18-2014), Concussed Scientist (03-11-2010), concussionkate (09-13-2009), Delaine (11-30-2012), DianeB (10-11-2015), Dmom3005 (08-19-2009), doreoh (11-29-2016), Dumpling15 (05-05-2013), GirlFromNorway (06-09-2013), j.rose (02-28-2015), JC1875 (10-10-2015), jenna'smom (02-26-2014), JuliaBertha (07-30-2014), Katharsis (02-19-2015), kayley (07-17-2012), KimberlyDorsett (05-20-2017), Lara (06-25-2009), Laura G (09-04-2012), lilyNYC (09-24-2015), LisaLucille (04-16-2014), Lolo82 (06-26-2014), LouiseN (01-09-2016), MicroMan (07-15-2015), MOMMYMBD (02-12-2013), Mrs-B (08-18-2012), MsRriO (02-25-2013), music-in-me (08-27-2013), Neen (03-07-2010), pcshealer (12-22-2009), poetrymom (04-08-2013), postconcussion (03-31-2011), purple_blutack2108 (02-04-2011), Rahruwin (07-18-2017), rick92 (09-13-2011), Sandy1111 (04-27-2014), Shady (09-06-2014), SheWhoMovesSlowly (02-28-2016), SkiConcussion (04-17-2011), sssvolcano (11-08-2018), thorx89 (09-27-2014), xxxxcrystalxxxx (03-04-2012) |
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