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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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07-10-2009, 11:52 PM | #11 | ||
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Hi Mike,
I was in Beijing 2 wks ago visiting the Beijing Tiantan PuHua Hospital regarding the use of stem cell for TBI, MS and Parkinson. We you in the hospital at that time? Dr. Diane Roberts Stoler Quote:
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07-12-2009, 07:14 PM | #12 | ||
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You missed me by a week. I left on June 20th. Out of curiosity, what did you think if the place?
Mike |
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08-18-2009, 09:17 PM | #13 | ||
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I attended and was a speaker at the 1st International conference on mTBI and PCS in Vancouver this past week. There was some exciting news for hope of recovery. Key factors are getting restorative sleep, exercise, nutrition and diet, attitude and use of proper diagnosis using some excellent imaging techniques, such as SWI MRI and PET Scans, of course funds for treatment ( healthcare-which has affected all of us) and the use of neurofeedback and biofeedback for recovery along with grieving the loss of your prior self.
I presented my recovery story and how hope and grieving are essential factors of recovery. Once I get over my jet lag, I will be writing more on my blog on ** As a survivor of a stroke and 3 Traumatic brain injuries, I can attest there is hope. My focus was we might have a disability is some areas, we just need not be handicapped by them. There is a Way. |
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"Thanks for this!" says: | Bellbird (12-27-2019), Concussed Scientist (03-06-2010), JuliaBertha (07-30-2014), Lolo82 (06-26-2014), MommaBear (07-18-2012), Mrs-B (08-18-2012), vini (12-31-2009) |
08-19-2009, 01:43 AM | #14 | ||
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Legendary
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Many of the oldies know me. And I am still around to try and answer questions. But my story hasn't ended to the degree we would hope.
But lots of my TBI and PCS has gone away, but I'm not sure how many I've had. I really had no clue as a yound adult that I was suffering from these at sometimes. I can count at least 7 times that I've suffered these in my years. Each time the recovery has been longer, and less is back to the same. But to know that it will get better, is a saving grace. I know that headaches and whiplash are always connected. But the rest is what ever choses to come. Having gone through some vision retraining has helped to lower the amount I have to look forward too. Thankfully I located this doctor and he not only took away the migraines but also helped with a reaccuring problem. There is always hope. Donna |
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"Thanks for this!" says: | Lara (09-02-2014) |
11-08-2009, 12:07 PM | #15 | ||
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Member
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Hi Mike,
I am just about to start a course of neurofeedback for Post concussion symptoms resulting from a car accident that I had two years ago. Questions: 1. How can you tell if it is really helping? I was told by the therapist that sometime you feel worse in order to get better and other times you feel better. This sounds like covering your bases. 2. How long did it take for you to start feeling better? In other words: How long can I expect to wait before seeing results? 3. What sort of neurotherapy did you have? I am going to start with LENS but there are other typse available. What are the pros and cons? What worked for you? That's about it. I'm sure there are other people out there considering neurotherapy, so I think that your answers might be of general interest. Thanks. Quote:
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"Thanks for this!" says: | vini (12-31-2009) |
01-13-2010, 01:59 AM | #16 | ||
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I wanted to post this to offer support to all those who are going through what my son dealt with this Fall. After accidentally hitting his head on the ground during football practice, my 13 yr old did n;t tell anyone for 24 hours until his headache was so bad he couldnt read or tolerate light. He was diagnosed with a concussion and told it would clear up in 1 -2 weeks. Well after two he was still home from school and still unable to read or tolerate light or noise. It was terrifying and isolating. We lived like ferrets underground with the lights off and I would read to him by flashlight.
Slowly the headaches diminshed, they would re appear if he read or watched too much tv. No computers. Car sickness. No school work. After six weeks he still had lingering symptoms, though improved. It took a total of 11 weeks for his symptoms to disappear. We still have anxiety they will pop up, but he can finally run and jump and seems to be clear. Find a good doctor, one who can administer the IMPACT test, an orthopedist, not necessarily a neurologist, who may not ahve experience with athletes. Make sure to be evaluated for vestibular damage as well. My son didn't like the elavil, it worked on the headaches, but it made him feel sad and out of it, so we dropped it. But it works for many. Be patient. |
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"Thanks for this!" says: | Concussed Scientist (03-06-2010), concussionkate (01-14-2010), Mrs-B (08-18-2012), MsRriO (02-25-2013) |
01-17-2010, 02:23 PM | #17 | ||
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Legendary
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newt,
What value did you find in the ImPACT test? Did the doctor use it to determine a treatment regimen? Has your son has any imaging done? Has he returned to play?
__________________
Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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01-21-2010, 07:37 PM | #18 | |||
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Junior Member
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Donny himself is interesting, atleast to me because I see some correlation in my experience. There are also a lot of good links to helpful info. Thought it might help someone. There are also people who post there with PCS.
www.donnywinn.com/ |
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03-06-2010, 02:22 PM | #19 | ||
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I'm just glad that there was a 1st mTBI & PCS conference.
But then I thought, "The First! There has never been a conference on this subject before!" Seems incredible, seeing so many people are affected. About time. CS Quote:
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03-07-2010, 01:43 AM | #20 | ||
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Quote:
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"Thanks for this!" says: | Concussed Scientist (03-11-2010), kayley (07-17-2012) |
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