Hi everyone,

I'm glad I found this forum. Here's my history. Perfectly healthy 39 year old. In 2005, I was at a meeting out of state and fainted while sitting on the toilet (actually fainted while standing up). My head (above right eye) smacked the tile floor hard and I was out for about 1-2 minutes or so. I woke up, head hurt like never before, but collected myself and went back to bed (midnight). I woke up at 5am, rolled over in bed and got extremely dizzy. Called 911, went to ER, they thought I had a heart attack but that was negative. Head CT didn't reveal much. Sent me home.

My dizzy feeling lasted about 6 months when it finally slowly went away.

However, 10 days after the ER visit, I am sitting on the couch watching TV and the entire world starts to spin. Freaks me out. Heart races. Dr's think I might have an electrical problem with my heart. More tests - come back negative. Electro Cardio Dr. states he thinks I just hit my head hard and gave myself a slight concussion - just go live my life.

So I do but it seems every 7-9 months since my 2005 fall, I will be sitting on the couch watching TV (have been feeling great for months) and all of a sudden something snaps. It's like a strange quiet comes on and then I get dizzy, it scares the heck out of me, heart starts racing, I want to get near someone. However, after each one of these episodes, I remain dizzy for 2-3 months. It feels like I am floating when I walk. Sometimes sitting in meetings, I feel a little nauseous.

The last episode happened about 3 weeks ago. This time was a little different than the last several times. I think this episode may have given me several panic attacks. I got dizzy on the couch, my heart started racing, then settled down, then came back, again and again. I decided to go to the ER not sure if I was having a heart attack. ER Dr. basically scoffed at me and sent me home with a normal EKG. This time, instead of feeling dizzy in the weeks afterwards, it's like I am anxious. I'm not sure how to describe it other than just being anxious. Not always but maybe every 2-3 days, I'll get to the point where I feel like I'm on the edge of losing it.

So now that I have bored you with my symptoms, is this somewhat normal? Can I expect this to go away some day? Is there anything I could be doing to help this go away? I'm open to just about anything!

Thanks for your help!

Welcome, Camman to NeuroTalk!

Sorry for your strange symptoms. I hope you get some good input from other posters who understand what you are experiencing.

[QUOTE=Camman;501766]Hi everyone,


You're not the only one that deals with such things - I too, recently went into a relapse - partly due to being exhausted and overtired - I had just got back from a trip - wasn't feeling good at all - woke in the middle of the night extremely nauseated - went to the washroom - passed out and conked my head, again, falling off the toilet. Woke up about 10-15 minutes later, collected myself, cleaned the blood from the floor, washed the blood from my forehead, and went back to bed - didn't tell the wife until the next morning when she noticed the forehead, (opps!) got supreme for that one, but I didn't want to wake her or worry her in the night. Since then, I'm right back to the same symptoms as I had when I first got PCS in 2004, at which time I went through hell with the doctors and WCB. Unfortunately, with this ailment, you are primarily on your own - NUCCA Chiros, are of benefit, as are Pain killers - actually, I don't take them often, but I've gotten to know when I need to - and them as well as muscle relaxants need to be "Carefully" monitored with PCS, but are an essential part of surviving PCS. I don't talk to others about my condition, not even my wife. Living in constant pain, dizzy, ears ringing, nausea, are all part of it - as is your eyesight going to crap. I have also found that I have developed dyslexia of the keyboard. I am constantly jumbling words, then going back and correcting them - frustrating, but I've developed a kind of Zen about the whole thing.

I don't know if I helped or hindered but you need to know there are others out there dealing with it every day, and your positive attitude will help you more than anything else.