Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 06-12-2009, 11:37 PM #11
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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benjamin,

It will be hard to get a definitive diagnosis of Alzheimer's with a history of brain injury with any cognitive decline. There is far too much overlap of symptoms.

Besides, the research is advancing so fast that we all have plenty of time for the AD treatments to get approved.


RisibleGirl,

Has your doctor tried neurontin (gabapentin) for the myoclonus? I was on Klonopin for a while but switched to neurontin. It is much better. It has helped with my jaw clenching and body jerks. After 6 years at 600 mgs, I had to up my dosage from 600 mg to 750 mg recently as the jerks and bruxism were returning. At first, I tried two 600mg pills. After my doctors comments, I started breaking one in half and taking 750mg. It works great.

The side effects of Klonopin, Seroquel, and anti-depressants combined can be brutal. Some of the movement issues can be caused by anti-depressants. The Klonopin made me into a zombie. The Neurontin does not make me sleepy.

After I upped my dose of Neurontin to 750, my stress dreams have become less frequent. I call them stress dreams because they are not quite nightmares. My wife says I sometimes thrash about with a mean look on my face.

I believe my problem is caused by a problem with my brain stem. The physiology fits. Hope to get some good imaging when the doctor gets around to it.
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Old 06-15-2009, 11:01 AM #12
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vini vini is offline
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Originally Posted by Sharlynn View Post
I have a very serious TBI from a bad wreck we were in. It is very frustrating. It also leaves you feeling very alone at times. I woke up in a trauma center and had to learn much over again. I have lost years of my memories and my short term memory is impared for life. I will never smell or taste again. I had to learn to even brush my hair and simple things like that again. I am still learning. I have spelling problems and writing problems. I also had several injuries to my body that are still being fixed as allowed. It is very difficult to be going along and then one day like for me you wake up and your not you anymore. Except my heart is the same but what I did is not the same. I was an interpreter for the deaf and lost 25 yrs of sign language. I had cooked all my life and was a ranchers wife and could not remember how to cook. I have speech problems and all sort of things. I understand your frustration as it is very difficult to fight to get your life back or some sort of life back. I will never be the person that was and am constantly having to adapt and make changes. Brain injury headaches are terrible and often not much will take one of mine away. I live on pain meds 24/7 now and other meds. I was told by one of my brain injury doctors that a person has to grieve the loss of the person that was. I know I did that and still do at times. I was out for 8 months when I came alert to the world and all was changed for me. It has been a long process and I was told it would be a long process. Some things will come back and some never will. It is a battle to accept when you knew you worked once,functioned highly in society once and now your ability to function is very low. It is helpful to meet others that understand what your going through and can relate. I am new here as of today but this I am not new too and can relate. I think anger at the loss is ok and needed to help move on. I still have days I get angry and our wreck was in 2007. I am sorry your going through this and hope for you it does get better. My husband suffered a severe concusion and deals with far less than me with the TBI and he has come a long way with that. I still hope for the best for me no matter what the doctors say. I have walking difficulties as well that confine me but my will to overcome is strong and that is on my side. I even had to learn the computer all over again and am still learning. Hang in there as things will get better.
Sharlynn
thanks sharlynn

there is always hope and the will to recover is there, apart from physical injury there,s the lost of self , the social stigma, and the frustration, I have had to learn things again, its a slow process , the computer has been my friend, well done for coming here, apart from the medical stuff its good to go of topic some times, the other boards at NT, can be fun like creative corner, our pets, and social chat, to name but a few , and the folks here are so understanding

so welcome look forward to sharing our successes and set backs, were theres life theres hope
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