[FP02]

My name is Mar and I have Atypical TN, and Trigeminal Neuropatic Pain, right side, had vague symptoms affecting my ear, eye, temple, and scalp, before hitting me full time after dental work (root-canal, and extraction of upper right molar). Just had another molar removed in the same area and my pain escalated, now just getting under control by taking Elavil and Lyrica, plus Tramadol for break-through pain.

I began having vague symptoms off and on (deep ear pain, stabbing eye pain, and creepy crawly, itchy feeling on my scalp) all prior to the dental work in 2002.

Was told by the dentist that I probably had a sinus infection, after three rounds of antibiotics and a cat scan of my sinuses, he said "Oh, you probably have Trigeminal Neuralgia." I had done a little research on line after my root-canal because my face and head just didn't feel right after it. I ended up having the tooth pulled in 2003 because it felt as if it was pulled the pressure would let up. Wrong...Did the anti-seizure route, (many side effects) so gave up them after 5 years. Took only Tramadol for the last year, had the second molar pulled after a year of it being cracked, repaired and then cracked again. Thought it may be the crack that was increasing my pain level. Boy, was I wrong, had the tooth pulled and started over with the intense pain. Went back to my dentist and an oral surgeon, both say TN.

I had a piece of bone removed after this last extraction, about a week later.
This was back in late July and early August. I am now on the above mentioned meds and am due to see my Dr. next week to see how I am doing.

I also have noticed I have a new piece of bone working it's way out from the last extraction site, more towards the roof of my mouth. I don't know if I should leave it or have it removed, it is quite bothersome, but I don't want any more work on my teeth and mouth.

I have the book, Striking Back and refer to it very often.

I almost went to see Dr. Shankland in OH when this first started because I thought I may have NICO, but chose not to go through with it from things I had read online.

Has anyone here explored the NICO theory?

Sorry, so long of a post, but this is my story...

[semcsquared]

Hi, Mar. I'm Sarah. Welcome to the forums. I'm sorry that you are among our ranks, but glad that you've found us, at least!

I hope that your current meds are working well for you, and that you get a favorable report from your doctor next week. Keep us updated about that bit of bone in your mouth. Is there a chance it would work its own way out?

I have never heard of NICO, but maybe someone else here has.

I'd tell you my story, but my poem pretty much sums it up, and I know you've read that! I hope you're feeling well, today! Again, welcome.

[Hockey]

Hi Mar,

Welcome to NT!

This is a friendly place so feel free to jump in anywhere. The link for TN is:
http://neurotalk.psychcentral.com/forum26.html

Cheers