I had been diagnosed with atypical T.N. to the right side of my face in March of this year after suffering through a few weeks of what appeared to be a sinus infection that got worse as the days went by. I was in severe pain for about a week ( in the hospital on continuous pain medication ) until my husband contacted Allegheny General Hospital in Pittsburgh, PA. I was transported there on Monday the 23rd at 9pm and had MVD Surgery on the 24th at 10am. (WOW!) What a difference, for the first month or so, post surgery. Then the pain started again, along with other side effects (chemical smells, metallic taste, hearing loss to my right ear, dizziness, confusion, and still get pain and swelling to the surgical site.) Finally after a few months of dealing with it, the doctors came to the conclusion that I had an allergy to the titanium plate that was put in my head to cover the hole in my skull from the MVD Surgery. On August 12th, they removed the plate and the pain had stopped temporarily. Now the pain is back at different times, it seems to mostly come back when I am stressed or when I am out in the cold air. It causes my blood pressure to soar to anywhere from 180/95 to as much as 215/130. The only thing that seems to help when it gets this bad is I.V. Dilaudid to knock me out. This seems to happen and get out of control about once a month. In between time, I get a couple of small pains, lasting 2 - 5 seconds each day, but I can deal with this. I occassionally still (about 3- 5 times a week) get an extreme stabbing pain at the surgical site and some small stabbing pains to my right eye. Is there anyone out there that has any similiar experiences or any suggestions for me?
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