[interior designer]

Hi all! I'm new to this forum however I am a native to TN..... a professional sufferer because it's been so long!!! I have had it since 1995! I'm so very tired of it all. This, conincidentally (I am told) all started 45 minutes after my spinal wore off from the birth of my twins. Since then, I feel like so many of my days are a struggle. I've been through all the meds, and it feels like every doc in the tri-state area (OH, WV, PA). I live on Neurontin. I'm lucky that mine goes into remission occassionally but always returns to rear it's ugly head! I'm here to support you all and be supported. You're all in my prayers and I have a tear in my eye reading all your posts! Glad I've found you!

[supermoo]

Originally Posted by interior designer

Hi all! I'm new to this forum however I am a native to TN..... a professional sufferer because it's been so long!!! I have had it since 1995! I'm so very tired of it all. This, conincidentally (I am told) all started 45 minutes after my spinal wore off from the birth of my twins. Since then, I feel like so many of my days are a struggle. I've been through all the meds, and it feels like every doc in the tri-state area (OH, WV, PA). I live on Neurontin. I'm lucky that mine goes into remission occassionally but always returns to rear it's ugly head! I'm here to support you all and be supported. You're all in my prayers and I have a tear in my eye reading all your posts! Glad I've found you!

Thanks Its nice to find a place to be able to talk to people. Hope your well and not suffering. xxxxxxx

[lovetosing]

Hi Interior Designer, I feel your pain so to speak. I am also a professional Sufferer, ( Do we get any conventions in Vegas or anything) Seriously though I know the feeling of being sick and tired of it all. It is tiring just being in pain all the time, and when you're not in pain you have the fear of when it comes back. It is a never ending cycle. Thanks for your support and I hope you are having a pain free day.

[sabimax]

Not sure I am trigeminal Neuralgia, never read on it.. but I suffer too, with pins needles tingling so badly you want to scream. I have been on neurontin for that for few years!! lived without any meds for about 8 years and finally said I need something for the tingling. Mine is primarily in the face.. especially on humid/rainy/snowy days!!

anyhow I have other sxs of balance issues, weakness in right side and other stuff... no dx though fun fun... just wanted to say welcome and take care all, it is tough but smile each day somehow... and hugsssssss,sarah

[bozena115]

Hi to all,

I am here more than a professional sufferer.

All has started in the Secondary School (driving to the school by train) and doctors gave me diagnosis:
Sinusitis maxillaries chr. From then on nothing did help me and I was always tired and very sleepy. I have hardly finished the School.

After I went to abroad and I went first time to one Neurologist. He was talking with me about 10-15 minutes and after that gave me injection into right neck muscle. My pains have disappeared in some minutes, like a wonder. No more pressure in my eyes, no more swollen face and no more sleepiness. I was new person. In fact with those pains my face and my look change to the worse. This doctor made my face pretty again, what I was before my 16,5 years. Diagnosis was: Trigeminal Neuralgia.
I was painless more than five years. When I came back to my country, after one year those pains came back. It happened on one isle with lots of warm wind. I was very disappointed as my pains are all around: eyes, face, cheek bones, sinus holes, jaw bones, ear and occipital. All is on the right side.
From then on it was (and still is) night mare for me. I have visited many doctors, specialists as also chiropractors as also people doing alternative medicine. What is the cause for that, I still don't know. I only know that there is Trigeminal Neuralgia with 1st and 2nd branch, sometimes with 3rd branch (swollen bellow chin). My nose if full of dry mucus: it is pressing into eyes and jaw bones. I have no idea, where mucus comes from?
I know a lot about typical Trigeminal Neuralgia. There is very few staff about atypical TN.

I will write later more, when I can post some pictures, how TN looks like: dividing face and head on three parts.

Bozena

[Doodle bug7]

I am not a professional sufferer. Back in the 1960's when very little or no information was known about MVD's, Gamma knife, balloon compressions etc. there was a way out of the jolting, electrifying pain of T.N. and it was suicide. Can you imagine not having access to some of our meds we have today or the brilliant neuro's as well? When the attempt was made at surgery, the patient came out with a sagging face involving the eye, cheek and mouth.
I am not a professional sufferer.
Bless, Doodle bug7