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Hi there... I was diagnosed with TN/ATN by my dentist, who then referred me to my GP.
I too had tooth problems, and then after numerous tests and exams, they determined it wasn't a tooth problem.
I've been on Tegretol. However, I couldn't handle the side effects while having to work 40hrs/week. It wasn't working well wiht my body.
Now, i'm on Topomax and Vicodin for pain. Not working either. I'm due to see my neurologist on Jan 7, so we'll probably end up changing my medications then.
I know it's really hard to tell if u have TN or not because they're not the "electric shock" "zapps" like from regular TN. My symptoms are intermittent (on and off) pressure like pain, goes from my upper left teeth and bottom left teeth. sometimes all the way to my jaw and cheekbones.
But i've asked numerous times as well, if my symptoms are in fact TN/ATN. Everyone has different types of pain, symptoms and TN or ATN. I think yours and mine are the same. So please, feel free to send me a message or keep posting if you have questions.
Tegretol is the primary medication which could gradually increase. It's good to have pain meds too. My only problem is, my attacks come so quickly, there's no time for the medications to react. So sometimes, i'd rather take the pain than take the meds, because by the time it starts to take effect, the pain is gone...I wish there were something that instantly relieves pain.
By the way, my pain lasts from approximately 15minutes - 30 minutes. Typically, it's been happening every night, 4 times a day sometimes, in the past 2 years, it has come and go - with gaps of 2 months, or as little as 2 days...
Jenna
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Thank you for responding Jenna. My name is Kenton.
Yes, it seems we may have similar symptoms. Something odd about mine is "it's always there."
I can wiggle the one tooth that I get typical pain from at any time of the day and get a shock or two. If I'm drinking a cold drink sometimes I get pain from this tooth. What scares me is when I randomly get sensations from other teeth because it reminds me of my flare up weekend.
I've had this tooth area X-ray'd 3 times so I absolutely know without a shadow of a doubt this is not dental.
What do you think about this? Thank you as always for a response