NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Trigeminal Neuralgia (https://www.neurotalk.org/trigeminal-neuralgia/)

- - Me again. (https://www.neurotalk.org/trigeminal-neuralgia/117881-me-again.html)

Quote:

Originally Posted by Donna1980 (Post 648907)

ME!! i'm not bad you know, :rolleyes:

I'm off to see the neurosurgeons down at the QMC in Nottingham for a chat about having the lumbar peritoneal shunt installed to sort out my Intracranial Hypertension tomorrow afternoon, so a little stressed about that, but what will be will be you know if it make it all better then it's the way to go!!:o

You take care and get better yourself Supermoo xx
:hug:

Good luck hun hope all goes the very best it can for you. xxxxxxxx:grouphug::hug::grouphug::hug:

The appointment went well Supermoo,

He's got to look at my MRI's first becuase he was unable to get them up on the screen :rolleyes: but I may be able have 2 options now rather than 1

my neuro advised the lumbar shunt but the neurosurgeon who does them week in week out said i could (if my ventricle is thick enough after looking at my MRI) be able to have the ventricular shunt which he seemed to "big up" to me, he told me the risks of them both and has left me to think about it and he's going to look at the scans and write to me then i'll go back and we'll reach some decision which we are going for and then it will be done.

I am not nervous about it as it will make life better, has when you've lived 2 years with something that is going to be made better you want it over with xx

xxx

Thanks for thinking of me MOO XXXX:hug::grouphug::hug:

I'm glad things are looking good hun :) If ya need a chat pm me will give you e.mail addy ok. Big ((((((((((huggs))))))))))))))) xxxxxxxxx

had VP shunt placed

Quote:

Originally Posted by Donna1980 (Post 650335)

Hi Donna,
*edit* I saw your post and wanted to let you know that my NS and I went down this same path, as they discovered IH in me after my MVD. I eventually had a VP shunt put in. Unfortunately, relieving the the pressure in my head had no effect on my trigeminal pain. I am so grateful that he gave it a try. Be careful in making your decision on getting a shunt, they are tricky and fallible.
The last thing that I want to do is rain on anyone's parade, though,*edit*
I am not implying in any way that you will have the same experience as me though! God forbid. Just...well...buyer beware...

*edit*

Best wishes,
Lily :)

Hiya Lily

Yeah thanks for your input on that, it's nice to know what people are thinking xx

No decision has been reached yet so i will think long and hard about which one i have, did you have the shunt removed then?!

Quote:

Originally Posted by Donna1980 (Post 651970)

Good question...no - it's permanent, since the IH was consistently there. I have had very few problems with mine. You might try a hydrocephalus forum, to get the input of others with shunts. There are folks that have gotten them as children, but also who have gotten them as adults. I received much good advice before I got mine.

Best of luck,

Lily