NeuroTalk Support Groups - Atypical Trigeminal Nerve Pain

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Trigeminal Neuralgia (https://www.neurotalk.org/trigeminal-neuralgia/)

- - Atypical Trigeminal Nerve Pain (https://www.neurotalk.org/trigeminal-neuralgia/121460-atypical-trigeminal-nerve-pain.html)

Deyereth

03-26-2013 02:50 PM

Quote:

Originally Posted by mlittlem (Post 651717)

This is my first post on this message board so I'll do my best.

Has anyone been diagnosed with atypical neuralgia / tigeminal nerve pain? My symptoms don't fit the classical ones. I have constant and unrelenting pain mainly in my eyes and forehead area. The pain is not the sharp and shooting type that I have read about with TN. Rather it is a dull, aching, throbbing, burning sensation. The other thing is that it is not on one side of my face but both.

I have not been formally diagnosed. I seem to have the doctors stumped. This is what my neurologist thinks but it is not a formal diagnosis.

mlittlem, I have exactly the symptoms as you described. I have not seen a neurologist yet but I have an appointment. My pain has completely destroyed my sleep routine and since I have them, i feel constantly exhausted. If you have any news on treatment, please send me a PM, I would greatly apreciate it.

Snailz

04-23-2013 01:16 PM

I've been to my doctor today and she thinks that I have atypical TN Mine is also in my Eye, The left eye at the top, It has been there for about a month now and has been constant, Iv never had a break, sometimes it spreads out to my eye brow, cheek and bridge of nose but always behind the left eye :(

heyjude19

05-14-2013 04:05 PM

Quote:

Originally Posted by Bassetcase (Post 652023)

Hi there, sorry to have to meet like this, but yes I too have been diagnosed with the Atypical TN. My pain is like you say constant, throbbing, burning, boring sensation - but centered in my right ear and the immediate area surrounding it.

Good Luck,
Rhonda

Greetings,

I know that this quote above is a bit dated but the situation described is similar to what my wife is experiencing.

In reading the suggestions in other places, we have started a pain and med chart in order to record the episodes.

Thanks for all of the posts and for this forum.

Heyjude

NoYellow88

05-17-2013 11:10 AM

I am wondering how other ATN has progressed. I was just having the pain in my upper jaw but have started having shorter episodes in the lower jaw on the same side. My pain has increased as well during this time and I had to increase my Tegretol.

Have other had it progress to more than one branch over time?

TN-GK What Now?

05-19-2013 04:25 PM

Facial pain!

:(I don't know if laughing hurts...I hope not but I thought this might cheer you up! Had I been DXd with TN when I was married to my ex husband and said my face hurt, he would have said, "It's been killing me for years".

Snailz

07-22-2013 05:46 PM

what medication do you take and at what dose? im on tegretol 100mg, i take 3 in the morning, 2 at lunch and 2 in the evening, 700mgs and its not helping :(

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