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07-27-2010, 03:00 PM
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#121 | ||
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Thank you so much for this post - you are right - they came out today, and I didn't even feel it. So strange! But the nerves are definitely responding now that I am home, and I am keeping really quiet. My husband finally called in to work and took the morning off to take me. I feel bad about that - people depend on him at his job. I think that my NS is going to bat for me for getting it approved. It will work to his advantage too if I go through with it. I am hoping that you are feeling better, I gave Tina a little tip to give you that may be helpful. It frustrates me to hear that you will be two days short. But keep your chin up, dear Cheryl, and you will be there sooner than you think. Mine will happen sometime late September / early October. So long! Oh well - he's in demand so often becuase he is great at what he does. Hugs to you, and lay low, ok? Be gentle to yourself and ask for all the help you can (be demanding if you have to  )Lily |
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| "Thanks for this!" says: | Burntmarshmallow (07-27-2010), Mark56 (07-29-2010) |
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07-27-2010, 05:12 PM
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#122 | ||
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New Member
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Cheryl,
I am still hurting and BURNING. Got my meds changed up yesterday and will be back at the doctor on Monday to see if I've gotten any relief at all from that. Also, my neurosurgeon is supposed to be e-mailing me any time now as a follow up asking if I feel any better. Then I can ask about the stim. They brought it up after my surgery so I hope they will still be open to talking to me about it. Praying for all of you that are waiting, hurting,or have been there. Thanks for the support and friendship. xxx, Cindi |
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| "Thanks for this!" says: | Burntmarshmallow (07-27-2010), Mark56 (07-29-2010) |
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07-27-2010, 07:19 PM
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#123 | |||
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Grand Magnate
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Lastnerve It is good to have the trial all done with yet at same time it is like ... crap I wish I had a bit more longer or as I hope you might find ...dang that thing helped I want the sucker back .
Dont not feel to bad about Hub missing part of work day... it is life showing you there are people who care and love you. You deserve all that and more sister!!! Late Sept or early Oct humm I am Oct born would be a kick if it ends up the 5th . But for right now going to send out big heavy vibs for this PNS option to smoothly proceed into approval mode and the wait be short with final implant and pain manged a total success !! FYI You fit in here just fine!!! Cindi your in our thoughts I hope both doctors are open to the idea of PNS trail. if they need to they could read this thread.on one of the pages I have how to find a doctor who dose this Neuro Stim / PNS . at least it is something to have in mind before doing motor cortex .  It is great getting to know you. You bring it up if the Doctors dont. . . Sometime it is like your on your own to find another option . Cheryl it is getting close we need to start a count down for B.B. give yourself time to adjust to the med change your having right now. your doing pretty great . Way awesome you will have some others there before and after. .. I hear P.J might be around . this neurotalk place is filled with the most spectacular people! Thank You everyone . PEACE BMW...Tina |
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| "Thanks for this!" says: | Mark56 (07-29-2010) |
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07-29-2010, 12:54 PM
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#124 | |||
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Junior Member
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Good Morning Everyone,
Stopping by to say hi and hope that all who are in pain that you have a better day today. I had a great day yesterday. I met with Mark and Cleo for lunch. It was wonderful. What a lovely couple. We are hear from Mark and know what a great guy he is just by reading his posts. And of course, just meeting him, he is the same in person. To put the face ( and his back ) to his posts was not a surprise. It was like I have known him forever. Cleo, on the other hand, we all have not met her. She is a lovely lady. Just so classy, kind, tender person. I can see being a friend of hers forever. Mark is so lucky to have such a wonderful person in his life. First meeting her was like we knew eachother for a long time. The hug see gave me brough tears to my eyes. I am so fortunate to have this couple in my life. They both are going to come to see me in the pre op room prior to surgery. They will pray with me which I appreciate so very much. Also, they will meet with Brent ( my ans rep ) to go over the remote so Mark can help if I need him. Mark was doing well. When we were walking to the restaurant in the mall, he was walking faster than me. He is in some pain due to coming off of the medication so that is a challenge. So............I wish all of you had the opportunity that I have to be close to them and able to meet with from time to time. I wish be posting my countdown to my surgery day ( a week from today ). Also, I cam coming off of my fentanyl patch and put on morphine. The fentanyl is much stronger than morphine, so this is going to be a challenge. So, look for my post in the next couple of days. Love to all of you Don't forget to pray each day for each other. Pray does work. Love again, Cheryl |
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| "Thanks for this!" says: | Burntmarshmallow (07-31-2010), Mark56 (07-29-2010) |
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07-30-2010, 03:06 PM
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#125 | |||
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Grand Magnate
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 Well Today is T-Rex's 8th Birhtday  7-30-2002 Thank You God for hearing me and guiding me to a much better place away from the bad horrible pain. Threw you use me in positive way to help another one any way I can be of help. Thank You. And T-Rex ...I am sorry I called you my 3 ed boob for the last 7 1/2 or so years ..I am sorry it took so long to name you . You are the BOMB! I have never had any piece of equipment or any device as dependable and perfect as you T-Rex. Happy 8th Birthday T-Rex Girl !!!!   every day with you has been a day I would of been dead if it were not for God, some great doctors and you T-Rex.PEACE BMW |
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| "Thanks for this!" says: | Mark56 (07-30-2010) |
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07-30-2010, 08:47 PM
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#126 | |||
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Grand Magnate
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Quote:
Mark56 PJ 
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| "Thanks for this!" says: | Burntmarshmallow (07-31-2010) |
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07-31-2010, 12:37 PM
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#127 | ||
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Member
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Yay BMW!!! Yay T-Rex! I'm so please for you both! Happy B-day to your pain free life!!!
I just got my surgery date - September 1! there was a cancellation that they were able to schedule me in, so the wait won't be near as long! Hooray! I have definitely been hurting more since the stuff came out, so it may have been working better than I assumed, although I may just be flared from the removal and from the weather. But if it was the unit, then I am in for some great improvement. I am CAUTIOUSLY optimistic - I will not give it credit before it is due, though. That is just my way of coping after 2 failed surgeries. Well, the first one half-worked, but the neuropathic part of the TN is still there so much of the time! So please bear with me and I will surely let you all know how it goes! There is a shred of hope there - it will be really funny if I am wrong to be this way  Hugs to you all, and my most heartfelt gratitude for all of the warmth and support. I will be counting down with the rest of you for Cheryl's surgery - I can't wait - I am so thrilled for you, sweetheart - you are almost there! Hugs, Lily |
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| "Thanks for this!" says: | Burntmarshmallow (07-31-2010) |
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07-31-2010, 08:54 PM
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#128 | |||
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Junior Member
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Happy birthday t-rex. For 8 years old you are doing a great job. You keep tina in great shape to help all of us here in this wonderful place to be. Keep up the good work. Just keep on buzzing. You cousin will soon be born this coming up week. A lot younger than you, so you can boss her around.
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| "Thanks for this!" says: | Burntmarshmallow (08-02-2010) |
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08-05-2010, 12:55 AM
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#129 | |||
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Junior Member
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Tomorrow is the big day. It is midnight and I better go to bed. I will finally meet Busy Bee, my new room mate. Will send posts as I can
Cheryl |
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08-05-2010, 07:32 AM
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#130 | |||
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Grand Magnate
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Cheryl we just talked on phone I want you to know I am praying and will be right there with you under your gurney today . May God be with you and the whole team as the surgery is done and May God see that everything is successful . I will call you tonight. have strength and faith.... and feel our prayers. PEACE BMW |
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A Very Merry Birthday to TRex
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