That all will be well in all ways with your surgery, LastNerve.
Mark56 PJ

as some may know Lastnerve had her fianl implant of PNS for her Atypical
this past Wednesday.
She has been in a whole bunch of pain since. I know she could really use some positive thoughts and prayers . So if Everyone / anyone would be so kind as to keep Lastnerve in their thoughts I would be so appreciative. Thank You.


@ LastNerve just keep resting ,take the slow lane relax. it takes a bit of time for you and your body to adjust and get used to this new addition. plus it also take time for scar tissue to build up. Praying God gives you comfort,patience and protection during your recovery bringing you to a successful happy ending and a new chapter of living with less pain.
Thank You God.
peace
BMW

Prayerfully lifting LastNerve up even now.
z
Mark56

Thank you for your kind prayers, dear friends, and that includes you too Cheryl.
It has been really rough pain-wise - they under-medicated my pain becuase I start to breathe too shallowly, so I had to just get through the days any way that I could. I had thought that this would just be a little surgery, but it was NOT. Not for me anyway.
I have rounded a bend though, and now am up and around a bit. But as soon as I post this, it's back to the sofa and rest.
I turn on the machine for a half hour or so, then off again, becuase it stilll is making the wound site sting too much. I will increase it as the days go on.
Thank you again for all the kind prayers, and I am open to any and all advice from anyone that has been down this road before me.
Oh, I thought that they would have put the device under my collarbone, but it is a bit lower, kinda hidden in my right girlie-lump. That was news to me!
Love to all,
Lily

Tiny steps at a time.
Thank you for writing Lily,
Prayerfully,
Mark56

[QUOTE=Mark56;692824]
Tiny steps at a time.
Thank you for writing Lily,
Prayerfully,
Mark56[/thoughts

sending you good thoughts and wishes last nerve

I had my trial implant yesterday for ON pain. it is going well so far. When I told hubby this last night, it made me just sob. he thought something was wrong. I told him no, I was fine. I am just so scared to say it is better because it has been a roller coaster ride for kore than 2 hrs. it is just so very emotional to think that it may be getting better.
I have had my stim on since I woke up and it actually feels good. I have played with programs a little bit. I am too frightened to try to turn it off for fear all the pain will come back. it does not take away all my pain, but is really helping. it has probably cut at least 60% so I am very hopeful I can get more pain relief as I learn the system.
the stim is for my occipital pain. I am still having pain from my trigeminal v2. I had 2 mvd to correct a compression of trigeminal, last one in Feb. then in May, I got a tooth abcess where my tn was. they fixed the abcess, but my tn pain has reemerged from the dental work. it is so depressing. the dr are hoping it will calm down within a few months and don't seem to want to try anything for it yet. I did talk to them about adding a lead for the v2 also. it can be done, but they seemed more concerned with fixing my on pain right now. I am hoping they are right that it will calm down. they said it was to soon to try anything for it yet. wish they could because I hate the thought of having to do this again in a few months.
I am so very happy at the moment that the stim seems so very positive for my occipital.
I am surprised that my I caisson stings as much as it does. I thought I really wouldn't feel it, especially after the other 3 surgeries I have had that were so much more serious. I am thinking that maybe the lead sticking out of incision is making it feel raw and sore. I am assuming that it does move and rub the vision site when I move. it makes me not want to be too active. I guess this is a good thing.
easygoing

Easygoing I am so so sooooo Happy to read your post and find the first days with the trial stim are going good. I am sorry you have been threw so much
Yes the leads . I dont know where yours are placed or how many you have?? but be careful not to tug pull or jerk the lead wire /wires ... or scratch at them sometimes you can just forget like when waking up and think it is your hair and go to swipe it back or something ..so BMW and T-Rex (my stim )says be careful . once you have the final it is all under the skin and MUCH easier .
I know I have said this here on this thread before as have others but ... that is correct PNS / Neuro stim / Spine Cord Stim ... ANY type of stimulator implant DOSE NOT take away all the pain, you arent pain free. the Stimulator helps manage the pain . We still have pain , we still get break threw pain and most of us still take medication along with the stim for the best pain management.
I have other stuff to chat at you with so going to switch to email....
but before i do that one last thing
I always feel warmth in my heart when I hear others say my med is helping, my mvd has worked for the pain , or I have tried this med and that surgery and well like some of us on this thread and others I know the Stimulator is really working and helps. There IS Hope we all need to help each other find the best way to lower the pains... thanks for sharing because that is the best way to help someone else. what works for one may not help the next one at all. each thing shared about a med or the different surgeries gamma, mvd ,motor cortex etc.... give hope to someone else. Thanks for sharing and caring.
May God and the Angels continue to be with you leading you safely threwthe trail ,final surgery and towards a new life with lower more managed pain.
Thank You God.
PEACE
BMW

During my trial my wife asked about how the pain was. I broke down crying..... sobbing might be the better word, the word you used. The expression I wanted to give her was that the pain was GONE and I could not get the words out. SO..... when you let yourself cry it out, then you can share very well and with a smile how it is going.
Almost miraculous wouldn't you say?
ASAP,
Mark56

[QUOTE=easygoing;693847]

Right on, Tina, stim blunts the pain signal. If you ever lose signal, shut it off, run out of battery, or have break through pain as a user, you DEFINITELY know the life of pain is not gone, just stymied and managed with electricity and electronics rather than mind dulling life robbing meds.
Thank you,
Mark56

@Lastnerve
how is" Frakin - B " ? It take a while to get comfy where the batter is you might not think so now but before ya know it it will just be there not noticed so much.
I hope you are having a good low pain time this weekend and that it stays that way all next week. one day at a time baby steps. slow smooth and steady .your doing good. sending healing energy and positive thoughts your way.
I will be in touch again soon.
PEACE
BMW
p.s. I LOVE your laugh !!!!!!!!!

@easygoing I posted to you below but want ya to know I am sending healing hugs and positive energy to you for things to keep going well and keep growing beter with each day. I have you in my thoughts.


PEACE
BMW