Had stim for face pain since 1986
 

This is my blog address where I have talked a little about it, and my struggles with tn, atn etc. Seems I have to post 2 more times to give you the full address. apainedlife.blogspot.com/2011/10/fear-and-hope.htm is my latest post.
I am having trouble with the stim so have fears about my appt tomorrow. That being said I also have had good success with them.
My book, a pained life, a chronic pain journey, ends with the first stimulator and my experience with it.
I lost 2 to infections, unrelated it appears to the stim itself, and am currently with one that is 100% experimental. I am finding, due to the problem, that it was helping me more than I had thght.
I also believe in these although everyone of course has to decide for themselves/in conjunctiion with your docs.

Doctor in colorado?
 

I am new to this forum and am trying to find a doctor in colorado who will do a stimulator for me. Can anyone help me? What kind of metal are the wires made of? I might be sensitive to that. :)

I am sorry I cant help you in Colorado, I live in Indiana but am traveling to Chicago Ill to possibly get mine, waiting for insurance approval I just got an email from a lady that had one done that is having it removed due to sensitivity to metal, and that the mfg said she should have been tested for allergies first, she couldn't wear anytype of earrings before surgery said she should have thought or someone should have considered her sensitivity, so good infomation to have with you good luck finding someone close to you.
Sorry Im no help but thinking of you in your search...

Hi littlemiss and welcome to neurotalk. I posted to you on your profile page but want to make sure you see my post . Cheryl aka cale on here had her stim surgery done in Colorado and also lives in Denver I will try to get in contact with her today think she may have doc apt but I will get in touch with her as soon as I can and hopeful you both can connect.

Littlemiss. I have info for you but have not been able to catch you , so if you see this please post so we connect and I can pass info your way. Thanks I hope you are having a good day today.
PEACE
BMW

high ammonia levels cause tn

How can you find out if your ammonia levels are high if I might ask? I do not have the classic trigeminal neuralgia, I have trigeminal neuropathy-

got the thread..... gotcha thank you! still waiting on insurance approval for PNS surgery any suggestions? I think I have researched enough if the Neuro Surgeon thinks Im a good candidate MRI showed no compression, and my pain is isolated to lower jaw he also said 2 to 4 leads should work for me, but I guess the trial will answer that, I am so ready to get some relief, he will do trial I will test he said for 1 week if works then he will input also said he going to put transmitter behind my ear so I just want to get this done

well YES I do have to say waiting and patience if your not best friends with those two ..you will be by the time your threw your trial . stay healthy eat good maybe consider getting flu and pneumonia shot the latter last for 10 years b.t.w. and is usually what a bad flu or cold turns into if one cant fight the germ off. infection is a big enemy so if ya wait to close to trail surgery the flu shot might not be good to do. other then that stay busy and enjoy ever good day you can get. even after must keep area clean . but we will help you and remind you :grouphug:.I really hope you are allowed the chance to have a trail. it isnt evasive and can be "undone",aka taken out with out damaging the nerve any more. you will know with the trail if it will help you so I pray and hope you are allowed at least that. fingers crossed for you. keep us posted . PEACE
BMW

I dont want to lose this very long and so far very helpful thread on simulator and PNS implant ... so please lets keep to the topic of stimultor, PNS implants on this thread please . thank you
:Thanx::Thanx::Thanx::Thanx:
PEACE
BMW
p.s. the poster who inquired about ammonia levels was given a direct link to the forum area below where the member with info already has a thread going about that topic... so please if possible keep any posts on this thread about Stim /PNS surgery and not stray off to other issues and theories that dont really have to do with the subject line in the thread title. once again I thank you and I along with the others who have shared in this thread do honestly appreciate everyone's respect in sticking to the subject matter of stimulator /PNS and conversing of other ideas be done in another thread . an overload of appreciation given to keeping to the stim/pns topic when posting on the Stim/PNS thread here. :Thanx::Thanx::Thanx::Thanx::Thanx:God Bless.
PEACE
BMW