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Old 06-17-2010, 08:31 PM   #31
Rrae
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Heart Cheryl..... :)



Sending you big ((((HUGS)))), prayers, and anything else I can dig out of the bottom of my soul !!!

BTW, your poem is NOT 'goofy'!! it brougt a tear to my eye!!


We're all here with/for you girl!!
Rae
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Old 06-17-2010, 11:00 PM   #32
calewark
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Confused Thank you

You are so sweet. Thank you for liking it. I have never,ever tried to write a poem or anything like it. I thought everything had to rhyme. I could not find the right words...so just wrote it thru all the pain. I am going to try another one tomorrow. Have to do something while I wait. Take care of yourself

Cheryl and ( stimulator.. Name to be announced soon)
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Old 06-17-2010, 11:14 PM   #33
calewark
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Default Mother hen of ad

Thanks Mother Hen for setting me straight. I guess I was going through the back door.maybe we should call your stimulator Mother Hen of all AD'ers. But group leader sounds a lot better. Hope you have a cooler day tomorrow. I am going to dentist. I would rather put a sharp stick in my good eye then go to dentist. Watch for my daily poem.

Cheryl and (stimulator , to be announced soon)
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Old 06-18-2010, 06:20 AM   #34
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GEE I am not a mother hen or a group leader I am just helping ...we are all in this together !!

T-REX it is.
WE hope you get your date next week !!!!!!!!!!!!
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Old 06-18-2010, 09:16 AM   #35
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Quote:
Originally Posted by Burntmarshmallow View Post
GEE I am not a mother hen or a group leader I am just helping ...we are all in this together !!

T-REX it is.
WE hope you get your date next week !!!!!!!!!!!!

But, you have so much more information and knowledge since you birthed the very first stimulator for facial pain. That gives you the Mother role of all times. There are so many people just plain lost when all this stuff is thrown at us. We need a leader to help us. Thus, you are the leader of the pack. Just not too sure about the T-Rex pack!! Just a little scarey!! That is what I meant dear Tina. Hope you did not take that wrong????
There have been so many times that I did not know where to turn and you continually get me back on track. Got to run to dentist....actually would rather walk.

Last edited by calewark; 06-18-2010 at 09:18 AM. Reason: mis spelled word
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Old 06-18-2010, 05:17 PM   #36
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without all the yous there would not be a need for someone to organize info and have it in a place easy to find.
(Thank You NeuroTalk !! )
There would be no contacts and info to share if it were not for all the yous. its a team effort. when other share like you have ... we help each other. That how it is , But I wish there were no yous in this situation and in such pain

I dont like the I
I like the we of things .
PEACE
BMW

now take me to your leader
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Old 06-18-2010, 09:53 PM   #37
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Default Moved by a Poem

Dear Calewark-
Your poem was truly moving. Your new friend stim unit, as yet unnamed, IS there and awaiting permission and timing to shake your hand and touch your tender face. When you look in a mirror, you ultimately know your new found friend is helping to relieve your pain in a new way. Time will bond your friendship into a lasting walk managed better than ever before.

Being moved to poetry, you may want to have a name for your new friend which reflects the friendship bond you will form. In the Greek, you may know of the word Fileo, meaning love as between deeply bonded friends or family members. Maybe your new friend would be well to be named Fileo. Not as stylin as T-Rex nor as evocative of Jurassic impressions, BUT everybit as strong, since it will be born out of friendship. Your reference to your friend on the shelf awaiting that first meeting with you brought this to mind.

ASAP,
Mark56
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Old 06-18-2010, 11:16 PM   #38
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Default Fileo

Mark
I love it as it stands for what the relationship will be
Between (it ) and I..
Thnak you so very much for your time and prayers

ASAP
CHERYL
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Old 06-21-2010, 11:20 AM   #39
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Default Peppermint

Good Morning to all. Monday mornings are always special to me. Wondering what the week will bring me. Of course, I am waiting for the phone to ring to get my stimulator final date.
I came across something really interesting. Yesterday I was reading my magazine " Real Simple " Some of you may get it each month. It is my favorite magazine.

Anyway, there is an article that gives 25 ways to boost your energy.

# 8 reads this way: Smelling peppermint " stimulates the trigeminal nerve, which stimulates the area of the brain responsible for arousal and can make you more alert.

so......do not know if that would make my nerve act up more or what?? Interesting to find out.

I am going to think about my second poem for my stimulator search soon. Other than that.....just a usual day, dealing with all the burning pain and working on things to do to take mind off of pain.

ASAP
Cheryl
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Old 06-21-2010, 06:28 PM   #40
calewark
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Default How Long ???

Hello Everyone,
I am usually the one reading all the posts of others and sending my good will wishes to them that their pain lessens and letting them know that I continue to pray for them. Today, I feel that I am on the other side right now. The pain is just about the worst it has been. Why? Don't know. The weather if fine so it can't be that. All I know is maybe as each day goes by, as I wait for the permanent surgery date for my stimulator ,is getting to me.
I find myself remembering the days that I had the stimulator. For those of you that are reading this because you are interested in learning more about the stimulator....read on. Yes, I complained on and on about the inconvenience of all the cable phone cords hanging my neck, the tiny wires pulling on my face, the generator was heavy.....on and on. I regret those days of complaining. They were 10 days of very little pain. How many times did I say " I have to wash my hair" " If I drop this generator one more time, all the wires will be on the floor" " If If If". The minor, and I mean minor inconveniences of the trail is nothing. It was actually very easy to deal with as my pain level went down at least 60%. I learned a lot about the AD pain. One day v1 would be having a hay day. Then another day V3 would act up more than one of the others. What is very interesting is we take being pain free kind of for granted. We are given an inch and we want more. I so remember ( and believe me, will never ever forget ) when my Doc took the wires out I was so happy to be rid of all the cords. 1/2 of a minute I was crying asking for the stimulator back.
I am crying today for the stimulator. So, that brings me to my poem for the week.

Oh Stimulator, Oh Stimulator
Where are you today?
I cry for you and look for you
Do you hear me, Can you see me
Every day and every night
Do you know my name?
Are you as excited as I am?
I was born in Denver, Colorado
Where were you born?
Maybe China?
Maybe USA?
Maybe you will find me if I give you a name
What would you like to be called?
Think about it and I will write to you soon.

Love
Cheryl
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