advertisement
Reply
 
Thread Tools Display Modes
Old 06-21-2010, 09:23 PM #41
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Exclamation Soon

Dear Cheryl my friend,

This pain you endure, wreaks havoc and more.
You find at such times "can I take this, so sore?"
Solutions you sought and found with a test
though bitter and sweet, was this thing just a pest?
Your doctor, assurance that all had gone well
removed leads and wires, consigned now to hell.
The wait for the last step, eternity long
Brings some to a fear "did I do something wrong?"
The process, a challenge, the tiresome wait
enraged or so hopeless, "is paperwork late?"
Your unit of plastic, some wire, chips, and bits
of silicon here and batt'ries to fit
awaits just a signature, showing consent
from doctor, insuror, the pained one and yet
it takes time arranging the lot to a point
of calendar moment implanting "Oh BOY!"
So when will that time come?
You don't want to be glum!
Give special attention now to this great need.
Friend Cheryl should have it now, oh how we plead.
So if it is prayer that moves mountain or plain
apply it a LOT again and again.
Give Cheryl relief soon and lend her a smile
to beam for her fam'ly, her friends, and so while
we wait with the patience of thundering herd
let's shower our Cheryl with prayers, love, and blur
this painful awaiting a call from the doc
to hugs filled with hope from the whole of our lot.

So, how about it? Having now waxed poetic, can we SHOWER Cheryl with prayers and hopes for a date right away???? Go for it!!
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Burntmarshmallow (06-22-2010), calewark (06-28-2010), Rrae (06-21-2010)

advertisement
Old 06-21-2010, 10:09 PM #42
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
10 yr Member
Heart .....ohh myy....

i'm completely speechless......

......guess that says it all.......
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Burntmarshmallow (06-22-2010), Mark56 (06-21-2010)
Old 06-22-2010, 08:20 PM #43
calewark's Avatar
calewark calewark is offline
Junior Member
 
Join Date: Jun 2009
Location: Denver Colorado
Posts: 84
10 yr Member
calewark calewark is offline
Junior Member
calewark's Avatar
 
Join Date: Jun 2009
Location: Denver Colorado
Posts: 84
10 yr Member
Default The poems

MARK AND TINA,
You both are so creative. Just love the poems. I think we should continue this wonderful way to communicate. It gives our brains and souls to express our inter beings in a special way. Our own voice could not say it better.
The joy and laughter it gives me sure lifted up my spirits.
I have never been a "poem" person until now. Now I know why so many enjoy it, as it brings out something special in a special/personal format.
It really touches reality in a different way.
Sometimes it can be dark and other times can by silly. It is like a third person is talking and not myself. It allows me to say whatever is on my mind.

I am going to put each of all our poems in a special folder to go back and read on occasions.

Thank you both for such a uplift that I sure need at this time. My pain seems to increase to almost unbearable. Almost to the frantic stage. That is bad as I could do something really stupid. Stupid being take too much meds. I did that about a month ago and slept for 3 days. Looking forward to tomorrow as it will be much better..........it has to be better. Take care of your selfs and have a good evening and a wonderful tomorrow.
love to all
Cheryl
calewark is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Burntmarshmallow (06-22-2010), Mark56 (06-22-2010), Rrae (06-22-2010)
Old 06-22-2010, 10:16 PM #44
Burntmarshmallow's Avatar
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Default

Okay we really have to keep the side chat down below in the forum Mark, Cheryl cliick this thread it is for Cheryl i started....
http://neurotalk.psychcentral.com/thread125291.html
This one needs to just have the important info and up dates sharing of ... as each goes threw the process. It wont be very helpful to others if this is 15 pages of poems and stuff with info mixed in it.. it is going to be hard to search threw and find the good info and that defeats the purpose . so use the link and keep side chat down below in the forum okay pals??

stories about getting or having a PNS/ NEUROSTIM are fine here in this stickie tho.
Thanks . from mother hen and T-Rex

PEACE
BMW
Burntmarshmallow is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
*Dena (06-11-2012), Mark56 (06-23-2010), Rrae (07-13-2010)
Old 06-24-2010, 04:16 PM #45
Burntmarshmallow's Avatar
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Default

Yippee Cheryl has her approval and a Date for final implant surgery.
Monday Aug 5TH

Praying everything goes well and you are finally at a lower pain level.
PEACE
BMW
Burntmarshmallow is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (06-24-2010), Rrae (06-24-2010)
Old 06-24-2010, 06:54 PM #46
Burntmarshmallow's Avatar
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Default

Ahh and yes another date to keep in mind and please send prayers for this person for their trial surgery... keep them in your prayers for this to be helpful and that all goes well for them . May this be the answer for you to manage the horrible pain
July 26th
You know who you are ...and you better believe the whole bunch of us have you in our prayers and are sending positive thoughts .
I believe so much this is going to help you my friend .
when it is all done maybe you will feel up to sharing . many many prayers ,positive energy and sunshine on you especially for July 26th .

PEACE
BMW
edit to say...
May God guide you and the doctors threw the trial surgery making every bit of it smooth and successful .

Last edited by Burntmarshmallow; 06-24-2010 at 08:01 PM. Reason: add a prayer
Burntmarshmallow is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Mark56 (06-25-2010), Rrae (06-24-2010)
Old 06-25-2010, 04:20 PM #47
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Default Prayers for BMWs friend

Quote:
Originally Posted by Burntmarshmallow View Post
Ahh and yes another date to keep in mind and please send prayers for this person for their trial surgery... keep them in your prayers for this to be helpful and that all goes well for them . May this be the answer for you to manage the horrible pain
July 26th
You know who you are ...and you better believe the whole bunch of us have you in our prayers and are sending positive thoughts .
I believe so much this is going to help you my friend .
when it is all done maybe you will feel up to sharing . many many prayers ,positive energy and sunshine on you especially for July 26th .

PEACE
BMW
edit to say...
May God guide you and the doctors threw the trial surgery making every bit of it smooth and successful .

Well, BMW and T-Rex, it is humbling to be asked to pray for your friend who soon will undergo trial SCS and for their doctors as the process is brought to fruitition. Those prayers are now in place that care, healing, understanding, knowledge, protective auras surround the whole of BMWs friend and the team who treat this friend. God brings help into all of these situations as humankind in our efforts to benefit others reach out to do the best we might to give comfort to those in need.

I, for one, am SO thankful for the inspiration given and acted upon through which the whole of the design, function, process, procedure, medical care, and healing oversight has come into being for so many like us who have suffered pain which is difficult to describe, and for some beyond belief. Hope now springs into the lives of so many affected with neuropathic pain. Isn't this so cool? Oh that we could lift up a shout of joy which could be heard by all who help us better manage pain. Gratitude overwhelms me. Time for a

Praying for you, friend of BMW,
Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Burntmarshmallow (06-25-2010), Rrae (06-25-2010)
Old 06-28-2010, 10:59 AM #48
Mylastnerve Mylastnerve is offline
Member
 
Join Date: Nov 2007
Posts: 126
15 yr Member
Mylastnerve Mylastnerve is offline
Member
 
Join Date: Nov 2007
Posts: 126
15 yr Member
Default BMW, thank you so much! Guess I'll chime in....

Quote:
Originally Posted by Burntmarshmallow View Post
Ahh and yes another date to keep in mind and please send prayers for this person for their trial surgery... keep them in your prayers for this to be helpful and that all goes well for them . May this be the answer for you to manage the horrible pain
July 26th
You know who you are ...and you better believe the whole bunch of us have you in our prayers and are sending positive thoughts .
I believe so much this is going to help you my friend .
when it is all done maybe you will feel up to sharing . many many prayers ,positive energy and sunshine on you especially for July 26th .

PEACE
BMW
edit to say...
May God guide you and the doctors threw the trial surgery making every bit of it smooth and successful .
Hi all,
I've been a lurker for a while here, and Dear lovely BMW told me about this thread that she had going here on NT. I'm signed up for PNS on July 26. I have a mixture of excitement and trepidation, and am praying and hoping with all my might that things work out with this surgery.
A little history...I began feeling pain somewhere back in 2007, the usual - thought is was a sinus infection / tooth sensitivity / eye condition until it broke through the NSAIDS that I was taking for it and went gangbusters. I had one neuro for about 6 months that tried to convince me that it was "psychogenic". I tried with all of my might to believe that, (with more than a little resentment of this guy for thinking that about me), but the pain was so rapidly escalating that I requested a second opinion, and got to another neuro, this one the Chief of Neurology at another hospital. He got me diagnosed through well-placed nerve blocks, then referred me for an MVD.
We did the MVD in 2008, and, after miriad complications due to high CSF presssure, found that it gave mixed results. The sharp stabs were gone, but the &*%$# () constant pain was still there. This was SO disheartening. I'm sure many of you have been down this road too.
So we talked about the high CSF pressure, (referred to by my doctors as Intercranial Hypertension/Pseudotumor Cerebri) and decided to see if it may have been the THAT that was causing the pain. So I had a shunt placed on mid 2008. It's called a VP shunt, and it taked excess CSF away from my brain and delivers it to my abdomen, where my body reabsorbs it. This surgery should also have been simple, but I had a seizure and coded. My husband was there and had been about to leave to go to the bathroom when it happened. So he screamed for help and they got to me in time. The unfortunate outcome of all of this is that the pain was STILL there.
So spring forward to today. I am still fighting the type 2 pain, and it is with me almost daily. Those days that it doesn't show up are like small gifts from heaven. I cherish them. Otherwise I am on that strange brew of antiseizure meds, antidepressants, and narcotics, just trying to make it through each day. In spite of all of this, which I know you all can identify with, I make it a point to count my blessings every day, and they are too many to count. I am lucky, all things considered. I have love, and a home, and enough $ for food and stuff, so, life is good.
We are more than a little fearful of opening my brain up anymore, so we are VERY hopeful that the PNS will do the job. I have realistic expectations, however, and am aware of the limitations that it has. While I wish for the "magic bullet" someday, I know that it is not likely. So I will take what I can get in the meantime.
Also, this is the first of my neurosurgeon's trigeminal stims. He has done others. like for ON, but not this one. I am very confident in his skills - he has helped many, many people through DBS and MCS, so he is highly skilled - but this will nonetheless be his first. I know that it has been a rocky road for me, but I do not hold him resposible for my unusual issues. I also have much arachnoid scarring in my brain, called Arachnoiditis, which also complicates it all.
So I will take any and all prayers that you might have to get this done and have it done right.
Like BMW says, PEACE, and love to everyone here. and Mark, thank you for your kind words and prayers

I will keep you posted.
Mylastnerve/Lily

Last edited by Mylastnerve; 06-28-2010 at 11:02 AM. Reason: spelling
Mylastnerve is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Burntmarshmallow (06-28-2010), calewark (06-28-2010), Mark56 (06-28-2010), Rrae (06-28-2010)
Old 06-28-2010, 06:00 PM #49
Burntmarshmallow's Avatar
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Burntmarshmallow Burntmarshmallow is offline
Grand Magnate
Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
Default

Lastnerve
Thank you so much for sharing .You are helping so many others God Bless you ALWAYS !
It sounds like you may have A.D (Anesthesia Dolorosa)
I really think the trial with neuro stim / / PNS is going to help you be able to manage the ugly pain so much better then other things youve tried before .
Oh sister I was the first in USA to have PSN for my face pain (A.D.) HE NEVER DID THIS FOR any type of T.N. before either... I am so fine and able to manage my pain now. it saved my life. You have a fine Doc do not worry sister !!
Just know all of us have been sending prayers and will continue to do just that. for you for the doctors for the success of PNS and the healing. you can count on that!!!





Thanks so much for chiming in !!!! keep us posted on how things are going and how your are doing .
PEACE
BMW


P.S. thanks for the chat before . you are one cool cookie
Burntmarshmallow is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
calewark (06-28-2010), Mark56 (06-28-2010), Rrae (06-28-2010)
Old 06-28-2010, 06:45 PM #50
Mark56's Avatar
Mark56 Mark56 is offline
Grand Magnate
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Mark56 Mark56 is offline
Grand Magnate
Mark56's Avatar
 
Join Date: Mar 2010
Location: Colorado, USA
Posts: 4,706
10 yr Member
Default Prayer for success

Hi Lastnerve-

Thank you for joining this forum of deeply caring folks who come alongside to help with the pain and the flipping stomach jitters of awaiting surgical help. May your time between now and 26 July pass quickly and your preparations for the trial stim be flawless so all paperwork and clearances are in order well in advance of that date.

Praying for time to pass and you stim trial to go oh so well,

Mark56
Mark56 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
calewark (06-28-2010), Rrae (06-28-2010)
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
SCS/PENS for face pain, AD , T.N. Burntmarshmallow SCS & Pain Pumps 5 06-07-2010 06:16 AM
Pain In Chronic Headache Alleviated By Nerve Stimulation Therapy (Topix) NewsBot Headache 0 10-12-2008 07:20 AM
Face Pain TN? slskckjebw Multiple Sclerosis 7 02-09-2008 06:42 PM


All times are GMT -5. The time now is 08:49 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.