Been sending out those positive vibs and thinking of you Lily .
I really hope things are going good at your apt today with the Rep. I am not sure what time the apt was for but sure am wishing that your able to have more control over the pain and that you are learning to work the stim .
I am praying the surface pain where the leads are is calming down for you.
keep taking things slowly and do as both Mark and I have suggested ..writing down everything and doing the journal. and of course follow the doc and reps instructions. I will ring your way on Tuesday afternoon . if your up to it we wouldn't mind if ya give a quick up date on how you are doing as we are all rooting for you and thinking of you lots.
sending healing hugs and calm low pain wishes to you .
PEACE
BMW...Tina &T-Rex

Tina, Thanks, you are one amazing life-force! Bringing help to so many! The surface pain is calming down, no more bee stings. Now I am in need of a bit of electrode strand reprogramming - one spot feels too 'hot', while the others around it are quiet. That's on the cheek part. On the forehead, I am getting lots of spasming, but he told me that we can work on that. So, we shall see what the future brings with all of this.
It was all laughs and jokes right up to when I went under. When they brought me back up, I asked the doc to 'curve' the leads around my eye. He said he couldn't because the needle is straight, and I remember then telling him that he had to invent a curved needle! I can't beleive that I had the audacity to say that. I will blame it on the drugs. (But really, it wouldn't hurt for someone to invent that.)
That's enough ramblling for now - I need to keep my posts short and to the point - which is to log my experience with the stim.
So I will be back soon with more info soon.
Lily / Mylastnerve

Ha I LOVE it Lily we knew your a fighter inventing a curved needle while during surgery just proves it . Oh Yes I think a wildish clever beastie name for your new addition is in line . Play with the control I am sure you have some instructions on how to work remote to turn on,off up and down
(higher / lower) . remember to keep area clean ,dry same with your hands and stay away from people who have colds and stuff. Avoid any dirt or germs that might cause infection this is the number one rule !!
follow with lots rest good meals . taking meds and following doctors and Reps instructions. do a drawing ... I will trade you a poem for a drawing . or I will do a poem about your drawing
more good healing thoughts to you and your Hub.
Be in touch soon . your doing awesome sister
May A very smooth flow towards the trial being successful continue undisturbed!
PEACE
BMW

Do all you can do to avoid infection! Even having followed all of the instructions, I wound up with a gnarly infection post-Trial, pus, ick, and all. Antibiotics had to knock it, and, no doubt, delayed my permanent implant. BMW is right on!

Take all due care!
Peace,
Mark56 PJ

Oh geez, kids! Of course I decided to try to push my limits, kinda like my doc said to, by going out and working in the garden yesterday! OOOOOOOPS!!!

Well, after an attempt to meet up with the rep yesterday (It was the ulitimate Starbucks joke - he told us to meet him at one, and he ended up at another that was a block closer to the freeway, thinking that that was the right one! hahaha!), I finally got to meet with him this morning. So NOW I have some programs that I can work with, rather than stabbing spasming jolts. Funny thing was, though, after an hour of programming, I felt HORRIBLY nauseous. So bad that I went and laid down and slept till this afternoon. Too much stimuli for this little bunny. So now I just have to lay in wait and watch for pain to hit, so that I can try this puppy out.

I DO have a name in mind, but it has to work well for me to give it that name. So there, I left you all with a wee bit of suspense. For all of us, really.........more on this story later, folks.
Lily / MLN

So dose your screen name "My last nerve " represent what you might be saying or what someone might be saying about you?

Dang going out and working in the garden ! no opppsss...You better behave ! there is plenty of time to push your limits !! dont blow this shot of managed pain before it even gets started ! It is so easy to get infection. Seriously PLEASE be careful.
Okay I am done yelling at you now.
How long are they going to let you have the trial stim for at least 10 days ? I hope at least that long
I am sorry Lily I know I sound like your mom nagging at you but I just wanna keep ya infection free . I have found That is almost always the reason why others have had to have the stim taken out . .
So be good okay and keep that head up.
I will chat at you tomorrow . I hope you have good results as you work with the programs and stim.
PEACE at you inside and out.
BMW

I'm still waiting to hear when they will pull it out, because I haven't gotten a response from the NS's office yet. I hope that I get to keep it ten days, at least till next Monday.
I test drove it a bit last night, with mixed results - some good, some not. I think it takes some time to learn to understand this little beastie. But I think that I like it!
It's my pain that is/was getting on my last nerve
Lily

Ha I was kidding you on your name lastnerve in that you seem to be a handful never sitting still and always need to keep moving and being busy in motion. hard to stay on top of and pushing ones nerve
so names I have thought of some ...
Mosie??
TZippy?

how about...from video game a Super Hero named
- Eclipse - (manipulates light has rod that shoots lasers)
or maybe
Goblin ??
I am off now to call you... but wanted to throw some names into your mind.


PEACE
BMW

Glad to learn your Trial is turning out to be a successful test drive. Still hoping all goes fully well for you on this and praying.

Be well,
Mark56

Lastnerve had a really really bad day yesterday and the stim just seemed to make the pain worse .
wish for everyone to join me as I keep sending positive healing thoughts and many prayers for this to start helping her manage the monster pain.
Lastnerve rest, rest and take each day slow and easy. I am here in your corner praying . dont give up hope on this yet. call the rep and your Doc if need be. your not a pest doing this your just a normal person trying to get control of the pain and trying to figure out how the stim works...if it needs some tweaking by the rep dont be afraid to be in touch with them!!

have you in my prayers and sending positive vibs healing low pain thoughts
PEACE
BMW & T-Rex