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08-29-2013, 04:49 PM | #1 | ||
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Newly Joined
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I have been looking for some time for a doctor who can do V1,V2,V3 and I would appreciate if you direct me to your doctor. By the way are you still happy with the PENS?
Thank you, Bill from NY Quote:
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09-01-2013, 05:45 PM | #2 | |||
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Junior Member
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I had my first SCS in 1986. for trigeminal neuralgia, atypical TN, atypical acial pain and anaesthesia dolorosa.
It worked for about 85% of the pain. Unfortunately I lost it due to an unrelated infection. The next did not work at all and I also lost that to an unrelated infection. Having no other options I had a sensory cortical stimulator implant placed in 1991. It was 100% experimental, only the 13th in world to have it. All of the were covered by my insurance, medicare and blue cross and blue shield. The last one helped more then I realized. It failed about a year ago and that allowed me to see how much better I had been doing with it working. The are not sure why it failed. I apparently have had it on and working longer then anyone else on whom they have records. I have been told that insurance companies are not willing any longer to pay motor cortical and brain implants because the studies do not back up the benefit. |
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09-02-2013, 12:38 PM | #3 | ||
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New Member
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Hi Bill, I am new here but not to TN. I have heard of a very competent Dr from NY who has done many Stim implants successfully. I will try to find his name and get back to you. It may take a few days, however, because I am going out of town tomorrow evening to have my own Stim trial Weds. and I am swamped with stuff I have to do before leaving. I will get back to you in a few days. CLTL
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09-02-2013, 04:23 PM | #4 | |||
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Junior Member
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I may be wrong but I have a feeling you are referring to Jeffrey Brown
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09-02-2013, 11:47 PM | #5 | ||
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New Member
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Quote:
Your book was incredible, I wanted so many times to reach through the pages and help you with your struggles. Thank you for writing it, I wish you could write a couple of more chapters at the end to continue your story. CLTL |
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11-02-2013, 08:47 AM | #6 | |||
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Grand Magnate
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I have learned that after my 12 plus years of support and wishing that FINALLY the stim has been approved by the gov for use in any part of the body for nerve pain as well as other things such as depression and strokes . and with that I feel I reached my dream and feel the need to move on. many of you that have posted have become great friends and I will continue to keep in touch. Thank you all.
PEACE BMW |
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"Thanks for this!" says: | kwebster (11-07-2013) |
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