FAQ/Help |
Calendar |
Search |
Today's Posts |
|
06-13-2010, 07:50 PM | #1 | |||
|
||||
Grand Magnate
|
Possibly a good idea to share some links so one can see what the neuro stim looks like I DO NOT PROMOTE ANY ONE COMPANY OVER ANOTHER !! Nor do I promote any Doctor over another ! tho I have some Doc's lower on the list
It is the general Idea of neruo stim / PNS that I am fan of. I hope to provide some info about it and also hope others will share and ask questions and for support . PEACE BMW the links ---- Boston Scientific http://www.bostonscientific-internat...vedForMedProfs St Jude http://www.sjmneuropro.com/Products/...PG-System.aspx St Jude mini http://www.sjmneuropro.com/Products/...PG-System.aspx Medtronic http://www.medtronic.com/your-health...ator/index.htm Last edited by Burntmarshmallow; 06-13-2010 at 08:43 PM. Reason: fix the link |
|||
Reply With Quote |
06-13-2010, 10:28 PM | #2 | |||
|
||||
Junior Member
|
Quote:
Love to all, Cheryl |
|||
Reply With Quote |
"Thanks for this!" says: |
06-13-2010, 10:55 PM | #3 | |||
|
||||
Grand Magnate
|
Hello Cheryl! Glad you are feeling at least well enough to share an update! All hope and prayers that your date for permanent implant comes through soon! That burning fire is so difficult to bear. May yours be near to finished... forever... and may that perm implant do the job for you wonderfully!
ASAP, Mark56 |
|||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (06-14-2010), Rrae (06-14-2010) |
06-15-2010, 03:41 PM | #4 | |||
|
||||
Grand Magnate
|
As I "talk" with others and still others having trial for PNS/Neuro Stim and others awaiting Re-implant ...My info about the process and some worries and warnings may and probably will change. It is not my intent to mislead or have "the golden rules "sorta speak.
Please remember that mine was way back in 2002 and since then , the devices have gotten smaller and more advanced also too each Doctor and company have their own way of doing this . So please forgive if some contradiction come up..I guess that is what one might call advancement or higher tech..then when mine was done. THANK YOU for understanding . Cheryl is having MRI today. She is claustrophobic and the worry of this has made her pain flare like an angry bull dog. Sending positive energy and calm thoughts to you Cheryl. nothing much else just a whole bunch of waiting and praying but honestly .....too much waiting.. PEACE BMW edit to say wonder that I dont really care for the I thing and with out all of the Yous that have been there and here for me.. This thread would not be. It is not I that makes this thread it is WE . Last edited by Burntmarshmallow; 06-15-2010 at 08:37 PM. |
|||
Reply With Quote |
06-15-2010, 11:29 PM | #5 | |||
|
||||
Grand Magnate
|
You see, BMW, we are Blessed, all are Blessed according to the sharing, the caring, the uplifiting spirit of this very special place. Blessed. You bring reality to the masses who need to know the truth of alternatives to pain management. For your willingness I am ever grateful. You have been among ALL who reach out to give. You are a giver, and in this we all are blessed. Now to follow examples of giving we know in truth and urging hope as well brings us to a good venue of comfort.
Perhaps we may all reach a bit more wholeness as we journey on this path seeking one therapy or another. None ever know whether success will be the reward at path's end until finally it is reached, and funny thing, the path never does seem to end, does it? There are those in these threads who experience frustration, joy, hope, dissappointment, and more, but we push on. Helping one another as you wisely pointed out, WE become givers of all of this together. Thus is the experience of NeuroTalk enhanced, the coming more richly rewarding. I am glad You and All together form the We who are NeuroTalk. This is one of those rewards on the life path. I pray Calewark did well in her MRI today. I knew not it was occurring, and will send her a hug. Truly, I hope for her there is light in the form of permission to proceed with permanent solutions for her pain profile as this testing and the results of the Trial are reviewed. She has been waiting as have I for that call to come for another surgery date. I pray it is soon. These are my prayers of hope and gratitude for the whole of us, Mark56 |
|||
Reply With Quote |
"Thanks for this!" says: | Burntmarshmallow (06-16-2010), Rrae (06-16-2010) |
06-17-2010, 12:56 PM | #6 | |||
|
||||
Junior Member
|
I can't explain how bad the pain is today. I have done nothing different to make it worse (at least I don't think I have).
All I can say is that I was counting the days to the final implant and now I am counting minutes. Not good. I am sure we are looking at another 3 weeks or more. Each time the phone rings I say " oh Jesus, make it be them" Then the caller hears disappointment in my voice. I had my MRI on Tuesday . We did it as I can't have another one with leads in my face. With the help of a lot of Xanax, I slept thru it. Tomorrow is my teeth cleaning day. Oh the fear of cleaning the teeth on the right side about sends me into total despair. But I will get through this too. As you can tell, today is a bad day. Time to get off of this couch and do something to get my mind off the pain. Usually works pretty well. How about writing a poem: Oh stimulator,oh stimulator Where are you today? Are you in the warehouse? Is my name on it for now? Maybe you are in the lab Glad to be charged up Are you dreaming of the day That you will have your new home? My body is warmer Than that cold shelf you sit on now So do what you can do To get the show on the road. I am waiting anxiously to meet you soon Until then, we have to communicate by email. Oh stimulator, goodbye for now. That was really goofy. Oh well, was entertaining. Talk to all of you soon Love ASAP, Cheryl . |
|||
Reply With Quote |
"Thanks for this!" says: |
06-17-2010, 05:01 PM | #7 | |||
|
||||
Grand Magnate
|
We wanted to add some links in hopes this may help others find a Doctor in this area of surgery . Not sure if there is any top doctor that deals with just PNS OR Face Pain Stimulation only. I think most also do SCS and Neuro Stims for backs neck and other areas. It would be wise to ask this when contacting your pain management specialist , or Doctor. At least if they have knowledge of T.N , Neuro Stim for face pain etc....
http://www.poweroveryourpain.com/sb/pain_specialist http://www.mymedpages.com/pf/search.do Peace BMW |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
SCS/PENS for face pain, AD , T.N. | SCS & Pain Pumps | |||
Pain In Chronic Headache Alleviated By Nerve Stimulation Therapy (Topix) | Headache | |||
Face Pain TN? | Multiple Sclerosis |