NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Trigeminal Neuralgia (https://www.neurotalk.org/trigeminal-neuralgia/)
-   -   O.T. Cheryl awaiting PNS Final Implant (https://www.neurotalk.org/trigeminal-neuralgia/125291-cheryl-awaiting-pns-final-implant.html)

Burntmarshmallow 06-23-2010 05:36 AM

- moved this from up top-

T-REX --BMW'10
8 years old before I got a name
living to eat mmmm swallow the flame
Strong, Loyal and reliable I seem to be,
For the one who's preciously housing me .
I guess she finally knows we are a sure thing ,
She's loving the control of the pain I bring .
She doesn't call me the thing or stim no more ,
She gave me a name which I will roar !

T-Rex T-Rex named after a dinosaur .

Been meeting my cousins as many as I can
Even ones yet to be that is the plan.
Some with names some waiting for one,
Sharing info and support has at last begun.
Grrrrrr let me battle the pain I say
I am very hungry this time of day.
T-Rex cant wait for the new ones to arrive
So they can help their owners with pain survive
May they fight the monster and always sustain
a way at last to manage their bad pain.

T-REX IS ROARING ...right now Cheryl needs final date
the pain is heavy its so very hard trying to wait.
------------- -------------------- ----------------

I Had to do a silly poem :rolleyes: cus I LOVE to write too
PEACE
BMW

Mark56 06-23-2010 08:34 AM

You guys are TOO funny
 
HA HA HA!:ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLMAO::ROTFLM AO:

St. Triceratops..... what a combination. And I guess you are right, anyone, ANYONE who takes away my pain through this implant will be St. someone in my book. :)

Now, being duly admonished to stay on point, :paperbag::icon_redface: I will post only funnies here and stay with Cheryl's implant on the other thread.:Bow: Thy wish is my command.:Poke:

Now, in all seriousness, or is that levity, or can I keep a straight face.....
I hope Rae gets that other pocket knitted so she can find the surgery date for Cheryl in there!! Yep.

Cheryl, may your dentist appt go well. St. Triceratops...... Hmmmmm........

:grouphug:
Mark56

Mark56 06-23-2010 08:36 AM

Poems
 
And, Oh, goodness... I will go to the poetry forum for poems. :winky:
Mark56 :)

Burntmarshmallow 06-23-2010 03:43 PM

aww I didnt mean to sound mad :hug:and I wasnt yelling at anyone.
:grouphug:
It has just taken me SOOOOOOOOOOOOOO LONG to find a place that would let me have the info about Neuro stim as option let me have it up top. THANK YOU Neuro Talk (Chemar & Doc John).
For years on other web sites I have posted and others posted under me sharing their PNS/ Neuro Stim journey but soon the thread would get lower and lower on the page and then puff its back 2 ,3 ,5 pages and then it is gone. some places wouldn't even let my post stay on the forum :rolleyes: cus they are more for Motor Cortex .
So at last I have it up top it wont get shoved down lower and lower. it wont get lost. it is a place others can share their story and info.
Most important others will be able to find the info easy and it is in one place. I do want the side chat and casual conversations down here. cus it has taken along time to get info , make friends and contacts and I want the important info easy to find cus thats what a stickie up top is for :) ..I dont want to lose that privilege cant lose the stickie and all the precious info.
no biggie I didnt intend to sound mad or like I was yelling.
Thanks for understanding ! ! !
:grouphug:

PEACE
BMW

Mark56 06-23-2010 06:01 PM

Understanding served here
 
Quote:

Originally Posted by Burntmarshmallow (Post 667979)
aww I didnt mean to sound mad :hug:and I wasnt yelling at anyone.
:grouphug:
It has just taken me SOOOOOOOOOOOOOO LONG to find a place that would let me have the info about Neuro stim as option let me have it up top. THANK YOU Neuro Talk (Chemar & Doc John).
For years on other web sites I have posted and others posted under me sharing their PNS/ Neuro Stim journey but soon the thread would get lower and lower on the page and then puff its back 2 ,3 ,5 pages and then it is gone. some places wouldn't even let my post stay on the forum :rolleyes: cus they are more for Motor Cortex .
So at last I have it up top it wont get shoved down lower and lower. it wont get lost. it is a place others can share their story and info.
Most important others will be able to find the info easy and it is in one place. I do want the side chat and casual conversations down here. cus it has taken along time to get info , make friends and contacts and I want the important info easy to find cus thats what a stickie up top is for :) ..I dont want to lose that privilege cant lose the stickie and all the precious info.
no biggie I didnt intend to sound mad or like I was yelling.
Thanks for understanding ! ! !
:grouphug:

PEACE
BMW

Awww.... I know that, and it is why my message had smiles and a winky in it. You know, like someone says something and then winks afterward to let you know they have a gleam of humor in their eye?

You are SO absolutely right to keep us focused on the T.N. thread... so right. I am with you 100%. Can you feel it?:grouphug::circlelove::I-Agree::You-Rock::Heart::Thanx::Demonstration::highfive:

Blessings on you BMW, yep! :Wave-Hello:
Mark56 :)

Burntmarshmallow 06-23-2010 07:49 PM

Mark I have names for you :D
St. Maximus

or maybe St. Sabas (who I read was thrown into a blazing furnace. )
Yeah I know you are on the mark with the different threads :hug: just covering my butt in case ANYONE was offended . Love you Pal :hug:
more name suggestions to come.
PEACE
BMW

Mark56 06-23-2010 11:47 PM

Interesting Names
 
Quote:

Originally Posted by Burntmarshmallow (Post 668054)
Mark I have names for you :D
St. Maximus

or maybe St. Sabas (who I read was thrown into a blazing furnace. )
Yeah I know you are on the mark with the different threads :hug: just covering my butt in case ANYONE was offended . Love you Pal :hug:
more name suggestions to come.
PEACE
BMW

Now those are some interesting names!:)
:grouphug:
Mark56

Burntmarshmallow 06-24-2010 04:12 PM

:Dancing-Chilli::Dancing-Chilli:
Cheryl has a date for the Final surgery
:highfive:
MONDAY AUG. 5TH
:Head-Spin:

:Dancing-Chilli::Dancing-Chilli:
So Cheryl... did you like any of the names ??
St.Bruno
St Cyrus
St. Felix

Burntmarshmallow 06-24-2010 08:20 PM

humm Aug makes it a LEO for you Cheryl
and Marks is Cancer --
T-Rex July 30th a LEO too :)
So fun finding a name. I bet no one really knows cept for us how fun this really is. but really when you have this thing implanted inside and wires going here and there and a battery it really is like a new addition.
I remember how I felt robotic and stuff at first . it is like a new body part has just appeared. hard to explain. :rolleyes:
PEACE
BMW

calewark 06-24-2010 08:52 PM

Got The Date
 
Hi Everyone.
Well, finally I got the date. I was excited; but a little disappointed as I wanted it sooner. He could have done it on July 15th; but he is going on vacation on the 20th and did not feel comfortable doing the surgery and then him being gone and would not be able to help me. He said that I will with out a doubt need his help afterwards. I guess I really admire him for thinking about being here for me and not wanting it sooner. He seems to be so kind and caring. So, I will be happy about the wait. Looks like my summer will really be lost with the wait and the pain that comes with it and then the recovery afterwards. September is always nice in Denver, so will look forward to that. Hey Tina, I told you wrong...it is the 5th; but that is a Thursday.
After reading the name suggestions you gave me, I think I like St. Felix. He was put on fire ( like me ) on a gridiron, and then they took his head off. Sometimes that seems like a good idea. I am not real fond of cats as I think they are mean, so this would be perfect. I will just tell that mean cat to attack the pain with his ugly big claws. I bet you he could even have a pretty good fight with T-REX. Cats can be sneaky.

For those of you that are not up to date on my pain levels.....I almost went to the er 3 nights ago. The pain way the worst. The next day was horrible. I remembered the Valium idea from another member and tried it. I took 20 mg and my pain within 10 minutes went for a 10+ to about a 5. I did the same today. Oh my, what a difference. It gave me energy and I even found myself laughing ( which as not been around for a long time ). So Praise God, I am almost there.

So for now, I am going to watch some tv. Been in the yard all day. I will be writing another poem when it hits me.

God Bless
ASAP
Cheryl and Flix( who is still on the shelf in China somewhere)


All times are GMT -5. The time now is 08:41 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.